Headache from cerebrolspinal fluid leak, lyme or ???
Hi All. This is my first time posting. I have always been a very active, healthy person with no real pain. I have a high tolerance for pain.
I woke up almost 4 weeks ago while on vacation at the beach in Michigan with what I thought was a dehydration headache that got much more severe as the day went on, so I though I developed a migraine (though I have never had one). It progressed to a point that when I sat or stood up it was much more severe & caused vomiting. I was in so much pain when sitting & standing, that I couldn't talk. However, I was able to contain the pain when I laid down. After the 4th day I went to the ER. They just wanted to take my diagnosis that I had a migraine & pump me full of narcotics & send me on my way. but I was persistent in seeing a neurologist (due to my mother in law's prodding). The neurologist knew right away this was not a migraine due to it being positional. I was diagnosed with a spontaneous cerebrolspinal fluid leak that was causing intracranial hypotension. I was put on bed rest & pain meds to try to heal the leak, but it didn't get me fully recovered, so I ended up having an epidural blood patch to try to fix the hole. I was told that I would have immediate relief. However, I have had a constant dull headache in the lower back left side of my neck & head that sometimes flares up to the front of my head. It seems the blood patch worked somewhat as I'm able to walk & talk, but I'm still sluggish, have constant dull headaches (not to the vomiting severity I had before - atleast not yet). I did develop a sinus infection (probably picked up from the time in the hospital) for which I have just finished a round of antibiotics, but don't think my remaining symptoms are sinus related. I feel that I cannot fully function. I'm constantly sluggish, foggy in the head, & live with headache pain. I don't know if this is still from the cerebrolspinal fluid leak or not. Now, I'm begining to think I have something else. I was paranoid of ticks while in Michigan & am wondering if this is lyme disease? Could it be? Does anyone else have this?
Any thoughts? I'm desperate at this point as I have a young child I must care for & enjoy life with & I want to see an end in sight.