It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-19-2012, 06:03 PM   #1
Newbie
(female)
 
Join Date: Oct 2012
Location: Massachusetts
Posts: 2
Mamaof2little1s HB User
Question Western Blot & 4yr Old

My four year old daughter was diagnosed with Lyme Disease recently after having both her first Lyme & Western Blot test come back positive. Her Lyme diagnosis came after she was waking in the middle of the night frequently for a few days and complaining of leg pains. I brought her to the doctor and it was discovered that the pain was actually associated with her hip and not the leg. She walks with what I call a hip swag and has been put on amoxicillin 3x a day for 21 days. The doctor told us that because her pain was in a large joint the Lyme Disease was most likely in a later stage then early.

I asked for what strands were positive and I think he thought I was nuts because he said "I've never had someone ask for the numbers" :\ Anyways this is what he told me, I have not seen the actual report although I will request it. But he gave me the "numbers"..

IGG
93
66
58
45
41
39
30
28
23
18

IGM
41
39

Does this mean all these strands were positive?? Don't really understand the Western Blot nor the disease all that much. I hate seeing my daughter like this and I'm hopeful that it will clear up after the antibiotics. Any info would be appreciated Thanks!

 
The following user gives a hug of support to Mamaof2little1s:
lucas vigo (10-20-2012)
Old 10-20-2012, 03:26 AM   #2
Inactive
(female)
 
Join Date: Aug 2007
Location: NYC
Posts: 1,434
jenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB User
Re: Western Blot & 4yr Old

You're right, your test doesn't make sense, nor does your doctor! Was the test done at the lyme lab, Igenex, in Palo Alto California? You really need to find a lyme specialist, an LLMD (read the sticky at the top of this board title "lyme newbies"). I have not heard of Amoxacilian being given for lyme nor that hip pain means late-stage lyme. Also, 21 days would not be enough of any antibiotic. I wouldn't delay in trying to find an informed doc (an LLMD or Naturopath). I wish you all the best in finding the care you need for your daughter.

Jen

 
The Following User Says Thank You to jenj770 For This Useful Post:
Mamaof2little1s (10-20-2012)
Sponsors Lightbulb
   
Old 10-20-2012, 05:54 AM   #3
Newbie
(female)
 
Join Date: Oct 2012
Location: Massachusetts
Posts: 2
Mamaof2little1s HB User
Re: Western Blot & 4yr Old

Thank You so much for your response

To be honest I am not sure where the test was sent or what lab performed it. I am going to ask for a copy of it for sure. I believe they give mainly children under 8 yrs amoxicillin as the antibiotic because doxicyciline is to strong for them.

Since she has been on it it which has only been 3 days she is able to sleep comfortably now at night but it may be because of the children's ibuprofen that I was administering at the same time. I am going to stop that and only give her the amoxicillin and see if that is what is truly working and not the latter. My daughter definitely has the "hip swag" walk still going on but seems to be able to put pressure now on that leg when walking.

She didn't have the bullseye rash, headaches (that I know of), or fatigue really. The manifestation really only began in pain/aches in her leg which now the Dr says is in fact her hip not the leg. She did tell me a few times it felt like she had bugs in her legs (tingling??). I don't know, I thought a diagnosis of Lyme would make me feel a little better so at least we knew what the problem was, but now I feel like I am back at square one :\

 
Old 10-20-2012, 06:56 AM   #4
Inactive
(female)
 
Join Date: Aug 2007
Location: NYC
Posts: 1,434
jenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB User
Re: Western Blot & 4yr Old

Quote:
Originally Posted by Mamaof2little1s View Post
Thank You so much for your response

To be honest I am not sure where the test was sent or what lab performed it. I am going to ask for a copy of it for sure. I believe they give mainly children under 8 yrs amoxicillin as the antibiotic because doxicyciline is to strong for them.

Igenex tests have minus and plus marks on them next to each code. They also have positive or negative diagnosis for Igenex and CDC. I don't see any of this on your test.

Since she has been on it it which has only been 3 days she is able to sleep comfortably now at night but it may be because of the children's ibuprofen that I was administering at the same time. I am going to stop that and only give her the amoxicillin and see if that is what is truly working and not the latter. My daughter definitely has the "hip swag" walk still going on but seems to be able to put pressure now on that leg when walking.

Glad to hear that abx is working for her!

She didn't have the bullseye rash, headaches (that I know of), or fatigue really. The manifestation really only began in pain/aches in her leg which now the Dr says is in fact her hip not the leg. She did tell me a few times it felt like she had bugs in her legs (tingling??). I don't know, I thought a diagnosis of Lyme would make me feel a little better so at least we knew what the problem was, but now I feel like I am back at square one :\

Most people don't get the bulls eye rash. Symptoms of lyme vary widely. This is why an LLMD is necessary to properly diagnose and treat. Again, all the very best with this. Jen

 
Old 10-28-2012, 08:19 AM   #5
Junior Member
(female)
 
Join Date: Oct 2012
Location: Minneapolis, MN USA
Posts: 14
Lizalu HB User
Re: Western Blot & 4yr Old

Hi! I hope that you find a good Lyme Literate Doctor for your daughter. I would say that you've done a great job in getting her diagnosed and i cannot imagine how it must feel to see your little one afflicted with lyme disease.

Now since you've done the hard work of getting the diagnosis, it might be time to shop around for a new doctor who understands how lyme can move around in the body, cause multiple symptoms, and become chronic if not treated appropriately in the beginning.

My lyme nightmare started at age 22 with arthritis in my hands.

And i don't want to scare you but it could get much worse for her if she doesn't get the kind of treatment she needs now.

By the way-get all Elisa's, Western Blots, and IgeneX testing results in writing from this doctor so you have them for the lyme specialist.

You're on your way though, so keep your chin up, and good luck finding the right LLMD for her. Praying for you guys...

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jojo (69), jenj770 (45), tess201 (29), ticker (14), Administrator (11), 6Blues (9), annalisa9397 (7), dganz (5), Katherine777 (5), lala52 (5)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (896), Titchou (832), janewhite1 (823), Gabriel (757), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:29 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!