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Old 10-24-2012, 12:47 PM   #1
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llmd in pgh area for seven year old

Hello everyone. I'm trying to make appt for my seven year old son to be seen by a doctor specializing in Lyme. We live in gibsonia, PA which is about 30 min from pgh,pa. I'm torn between taking him to an infectious disease specialist at children's hospital who concentrates in Lyme or a doctor in hermitage, pa that is an MD but specialist in Lyme disease and who many many of you have raved about on this board. The doctor in hermitage is taking appts on a cancellation basis instead of scheduling a month out so said she will call me when something opens up. Both Dr are in network difference is the Dr. In hermitage Dr. S will provide us with vitamin and antioxidants in addition tonantib whereas I'm sure the infect disease Dr will solely give prescrip meds. My son is currently on 28 days amoxyc from hisnpediatrician. This is a missed diagnosis and he has had symptoms for two years some of which are neurological so I'm torn who to take him too. Any advice appreciated!

Last edited by jtrupert1; 10-24-2012 at 12:48 PM.

 
Old 10-25-2012, 03:40 AM   #2
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Re: llmd in pgh area for seven year old

I have not seen either doctor so those who have will hopefully weigh in. However, I would offer this to consider. Detoxing is extremely important. If it were me, I would favor the doc who recognizes the importance of this by supplying vitamins, herbs, etc. Your son will need them throughout his treatment with abx. I would be wary of putting a child on heavy abx with no supplementation for herx's and such. I wish you the best with this.

Jen

Last edited by jenj770; 10-25-2012 at 03:42 AM.

 
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Old 10-25-2012, 06:53 AM   #3
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Re: llmd in pgh area for seven year old

Quote:
Originally Posted by jenj770 View Post
I have not seen either doctor so those who have will hopefully weigh in. However, I would offer this to consider. Detoxing is extremely important. If it were me, I would favor the doc who recognizes the importance of this by supplying vitamins, herbs, etc. Your son will need them throughout his treatment with abx. I would be wary of putting a child on heavy abx with no supplementation for herx's and such. I wish you the best with this.

Jen
Thank you Jen, that is exactly what my gut has been telling me. I know if I go to a straight infect dis Dr he will prescribe more than one antib and send us on our way. I feel as you do that his immune system has to be pumped up with some vitam supplem and help detox and handle *** the meds and toxins from Lyme. So unbeliev that there's a lack of Dr that know what lymes about. Can't believe my pediat group even thinks I don't need to see a specialist. Maybe if it was an acute case it would be more clear cut but his symptoms have been dismissed sadly for a two year time frame at least and now we are left to back peddle. I feel like it is too late as it is but guess should be content we found answers to *** hisnoddb*** symptoms of light sensitivity, headaches, eye twitching, feeling like something is in the eye, pupil dilating at odd time setc. I'm scared to death with *** of this I read online. Sure hope Dr. S can help us through this journey.

 
Old 10-25-2012, 07:48 AM   #4
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Re: llmd in pgh area for seven year old

You might also consider Salt/C along with the abx. Many children are on it. The eye symptoms you list are common with lyme. You might want to take a look at the book The Salt/C Protocol for Lyme Infection by M Fett even if you don't do the S/C protocol. I say this because he has an excellent list of therapies to be used for detoxing depending on the location of the ailment.

Jen

 
Old 11-06-2012, 04:33 AM   #5
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Re: llmd in pgh area for seven year old

Hi again, we managed to get appt with Dr. Swami hermitage, pa. Everything went well and h was very thorough but careful not to overwhelm us all at once. We finished amoxycillin prescribed by pediatrician and Dr swami added clarithromyacin,getting his stool tested for possible celiac which surprised me as Dr said many w celiac get Lyme. Also had more blood labs testing for coinfections. Florastor and yogurt as probiotics. Maybe he will add more supplements next visit in 6 wks. We feel we are in good hands as Dr very very caring and obviously confident in treatment. We are blessed to have found an expert in Lyme field and not one guessing treatment plan. Thank you to all who referred on this board.

 
Old 11-06-2012, 08:20 PM   #6
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Re: llmd in pgh area for seven year old

Hi! I'm actually semi local to you. I live in Armstrong county. My daughter was first dx'd with Lyme.back in Sept 2010, went thru antibiotics and we thought all was well. This past weekend Anna started limping, and on Sunday her knee was horribly swollen. After having her knee fluid pulled at our local hospital, we were transported to Children's by ambulance. Spent a night in the hospital thinking we were facing surgery, but we met with the Infectious Diseases team, and they believe Anna has Lyme Arthritis. I had hoped our ordeal was over 2 years ago, but that seems not to be the case. It just stinks because she's a 4 year old little girl. We were discharged yesterday, and start a 4 week antibiotics (ceftin ). Who was the Dr they wanted you to see? We are seeing Dr Michaels. Next month.

 
Old 11-07-2012, 10:59 AM   #7
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Re: llmd in pgh area for seven year old

Quote:
Originally Posted by KB2004 View Post
Hi! I'm actually semi local to you. I live in Armstrong county. My daughter was first dx'd with Lyme.back in Sept 2010, went thru antibiotics and we thought all was well. This past weekend Anna started limping, and on Sunday her knee was horribly swollen. After having her knee fluid pulled at our local hospital, we were transported to Children's by ambulance. Spent a night in the hospital thinking we were facing surgery, but we met with the Infectious Diseases team, and they believe Anna has Lyme Arthritis. I had hoped our ordeal was over 2 years ago, but that seems not to be the case. It just stinks because she's a 4 year old little girl. We were discharged yesterday, and start a 4 week antibiotics (ceftin ). Who was the Dr they wanted you to see? We are seeing Dr Michaels. Next month.
How very, very sad. Heartbreaking story with your young baby girl. Just so sorry to hear that she had a flare up. I will say prayers for her and wish her a speedy recovery. Im no expert by any means as just recently been doing research myself. We had a great visit with Dr. Chandra Swami in hermitage pa who is a pcp but specializes in lyme and was referred from the llmd website and recommended in my area. Its obviously closer and more convenient to go to childrens hospt of pgh but I had no referrals and was unsure who to see. this whole disease is devastating and quite honestly terrifying to read about online and with stories like yours. Not sure if they will ever be rid of symptoms.Every fever, every virus etc how will we not be sure its not lyme rearing its ugly head. Hope Anna is back to herself soon, playing with dolls etc and not focusing on aches and pains.

 
Old 11-07-2012, 11:34 AM   #8
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Re: llmd in pgh area for seven year old

We may end up back in Childrens.. I talked to 2 people from Infectious Diseases this morning, cause Anna will not take this medicine, so they are trying doxycycline. If she wont take/or has any issues taking this med, we are admitted back to Childrens Hospital for 28 days.

I hate lyme disease. My 4 year old baby shouldnt have to go thru this for life

 
Old 11-07-2012, 05:25 PM   #9
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Re: llmd in pgh area for seven year old

Oh my I'm so sorry to hear this. My son hates taking this clarithromyacin as tastes horrid apparently w awful aftertaste so I am sure its no easy feat persuading a 4 yr old. Can't imaginr what your going through. Everything I've read says doxycycline is contraindicated for children under 8 yrs of age...does other things but can affect teeth development as well or something like that. I was on fence about wanting it prescribed for my son as he is close at 7.5 yrs of age.Dr didn't choose that one so I'm not sure. I would reallllyyyy call the Dr. if I were you and if nothing else run by the treatment plan from infect disease Dr to make sure the protocol for your young. Baby is approp. He's dedicated his life to studying Lyme so supposedly the best to go to????????? I thought as last resort they also do IV antib so maybe thats what your talking about. I don't know anything about the arthritis symptoms and treatment. Just so sad she's in pain. I did read steroids are neverrr supposed to be used as makes lyme soooo much worse unless its needed due to life threatening purposes. Doctors scare heck out of me as I've heard tose in western pa know nothing about Lyme.

Last edited by moderator2; 11-13-2012 at 12:29 PM.

 
Old 11-07-2012, 06:15 PM   #10
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Re: llmd in pgh area for seven year old

Yeah, but it is our last option before IV antibiotic therapy in Childrens. They said a 28 day treatment shouldnt cause damage, but she should get better. Atleast thats the hope

 
Old 11-13-2012, 11:51 AM   #11
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Re: llmd in pgh area for seven year old

I called a Dr and he doesnt see children, he told me to call a dr in CT. I'll try that other dr you mentioned too

Last edited by moderator2; 11-13-2012 at 12:27 PM. Reason: please, no mention of llmd's, not even by initials or towns

 
Old 11-19-2012, 07:20 PM   #12
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Re: llmd in pgh area for seven year old

How is Anna?any updates.did you get scheduled to see any doctors?

 
Old 12-13-2012, 09:19 AM   #13
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Re: llmd in pgh area for seven year old

She's doing good! I actually just made a post about her last night

Last edited by moderator2; 12-13-2012 at 09:22 AM.

 
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