It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-29-2012, 09:05 PM   #1
Junior Member
(female)
 
Join Date: Jun 2012
Location: ne georgia
Posts: 42
katnben HB User
chronic or post treatment lyme disease

hey all, I have a question for you. what are the chances of ending up with chronic Lyme if you were not treated until it you were having neurological issues? I was diagnosed in 2000 but only because I had 2 episodes of optic neuritis and had begun experiencing some numbness and tingling in extremities. I was put on 28 days of IV antibiotics and declared cured. I have.continued to have symptoms for the.last 12 years and no doctor seems to be able to figure out what is wrong. is chronic or post treatment Lyme disease possible and who do I see about this? rheumatologist? thanks for the help!

 
Old 10-30-2012, 02:44 AM   #2
Inactive
(female)
 
Join Date: Aug 2007
Location: NYC
Posts: 1,434
jenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB Userjenj770 HB User
Re: chronic or post treatment lyme disease

Unfortunately, chronic lyme is likely since you did not see a lyme specialist; therefore, did not receive proper treatment. This scenario happens all too frequently. But there is hope.

Read the post at the top of this board titled "lyme newbies". If you want to go straight allopathic medicine you will need to find an LLMd (lyme literate medical doctor). You could also go alternative which, IMO, actually works best for cases where lyme wasn't treated early and has progressed to a chronic state. Heavy abx use over years and years is hard on the system and causes its own problems but . . . many go this route. You could also do a combination of abx and alternative. Salt/C is a very effective treatment for lyme. You could research, if interested and/ or take a look at the book The Salt/C Protocol for Lyme Disease by M. Fett.

You can get better. You just need to find the right resources.

Jen

 
Sponsors Lightbulb
   
Old 10-30-2012, 05:20 PM   #3
Junior Member
(female)
 
Join Date: Oct 2012
Location: Minneapolis, MN USA
Posts: 14
Lizalu HB User
Re: chronic or post treatment lyme disease

Hi! I have to agree with Jen that it is entirely possible for you to have developed a chronic infection especially if you have exhausted many different doctors for multi-system (body wide problems) that no one can quite pinpoint the problem.

Unfortunately, finding a lyme specialist to have you properly diagnosed can be the hardest part of navigating this disease. If you want to see a true lyme specialist, check the list of Lyme Literate Medical Doctor's (LLMD) recognized by ILAID's. I've made many mistakes seeing people that i've heard treated lyme (and i'm in a major metropolitan area of 800,00 people) but many only treat on a CDC positive test which many lyme patients don't have due to inaccurate testing.

If someone you want to see only treats based on IDSA guidelines (and you should ask this before setting up any appointments), i would look elsewhere to save yourself time, money, frustration, and emotional pain of them telling you there's no help for you. For chronic infection, you need an ILAID's doctor.

And if the doctor you want to see hasn't heard of either the IDSA or ILAID's, then I wouldn't even consider them for treatment of myself, or anyone in my family!

Hope this helps. You can do this!

Lizalu

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



jojo (69), jenj770 (45), tess201 (30), ticker (14), Administrator (11), 6Blues (9), annalisa9397 (7), Katherine777 (5), dganz (5), lala52 (5)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 02:36 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!