Re: chronic or post treatment lyme disease
Hi! I have to agree with Jen that it is entirely possible for you to have developed a chronic infection especially if you have exhausted many different doctors for multi-system (body wide problems) that no one can quite pinpoint the problem.
Unfortunately, finding a lyme specialist to have you properly diagnosed can be the hardest part of navigating this disease. If you want to see a true lyme specialist, check the list of Lyme Literate Medical Doctor's (LLMD) recognized by ILAID's. I've made many mistakes seeing people that i've heard treated lyme (and i'm in a major metropolitan area of 800,00 people) but many only treat on a CDC positive test which many lyme patients don't have due to inaccurate testing.
If someone you want to see only treats based on IDSA guidelines (and you should ask this before setting up any appointments), i would look elsewhere to save yourself time, money, frustration, and emotional pain of them telling you there's no help for you. For chronic infection, you need an ILAID's doctor.
And if the doctor you want to see hasn't heard of either the IDSA or ILAID's, then I wouldn't even consider them for treatment of myself, or anyone in my family!
Hope this helps. You can do this!