sfcharm

Hi all,

I was diagnosed with neuro lyme seven years ago. My symptoms were bodwide twitching, calve atrophy, bodyjerks, seizures. I spent one year treating orally and one year on Rocephin IV.

I had two full years where I was symptom free. Since then I tend to have a reoccurencce of symptoms once a year. I pulse three antibiotics for three months the last three years to push back symptoms.

REcently I have had bodywide muscle loss. Severe loss in both ankle areas and so much in glute area I can hardly sit.

I saw a specialist at Univ of Pennsylvania ALS clinic, it was completely ruled out.

Saw two neurosurgeons on west coast at STanford and UCSF. I have a history of three neck surgerys and wanted to rule out a problem with my spine.

Both want me to see a nerve/muscle specialist.

I hate to blame everything on lyme, but other than the muscle loss I work out five days a week at the gym . I still can walk 4 miles with out a problem. No loss of any strenghth.

Both neuro Dr.'s that I recently saw on west coast wondered how I can walk with all the muscle loss in feet.

Any ideas??