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Old 11-29-2012, 04:35 AM   #1
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I have had Lyme disease for 5 or 6 years. Two drs. and and Igenex lab in Ca. say I have Lyme. Every other Md. and ll the tests and MRI's, CT scans, blood tests, say I don't have it. Have had 5 Neuroligists that can't find anything. They keep saying I am perfectly healthy. Have had Acupuncture and Chiropractor-Kinesioligist that haven't been able to do anything. Getting so I can't walk, even with a walker,

Am on antibiotics that are not doing anything either. (7Mo) Lots of supplements too.
Have had Bioxin, Amoxicillan, Nepron, Azythromax, LeviQuin, and others. Don't tolterate a lot of drugs. I keep reading about Rocephrin but, the Lyme Dr. hasn't given me that one yet. Has anyone have any more ideas?
Need help.

 
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Old 11-30-2012, 05:17 AM   #2
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Re: cb1220

I'm a bit confused. Are you actually seeing an LLMD - lyme literate medical doctor? This is someone who just specializes in lyme disease. You mention other specialists so it isn't clear (to me). An LLMD probably would not say you're "perfectly healthy" if your Igenex test and clinical symptoms indicate lyme.

It would be helpful if you could first clarify this.

Thanks,

Jen

Last edited by jenj770; 11-30-2012 at 05:19 AM.

 
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Old 11-30-2012, 09:33 AM   #3
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Re: cb1220

I am going to a Lyme Dr. now. I am taking, Clindamycin, Azythromicin and Mepron. Two Drs. have told me its chronic Lyme. The Lyme Dr. I am going to now and The one that sent the blood to Igenex. I have never had the bite, rash or bullseye. Getting harder to walk all the time. Do you know how I can tell it its getting better ? Have no pain just the walking problem. Really tires all the time too. Thanks

 
Old 11-30-2012, 10:09 AM   #4
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Re: cb1220

You don't need to have had the bulls eye rash to have lyme. Most actually never had one. I never took abx so maybe someone else will respond to that question.

But are you detoxing? If not, this is vitally important during treatment. This will help with the fatigue and whatever else you are experiencing. Detox potions are almost always in the nature of vitamin and herbal supplements. From what I understand, LLMDs often do not emphasize this. This is a good book for a thorough list of them, depending on the ailment: The Salt/C Plus Protocol for Lyme Disease Infection by M. Fett Don't let the title throw you off. As I said, a great detoxing section as well as other pertinent information about lyme. But for a start, epsom salts or magnesium salts in a bath soak would help with the pain. Taking an extra magnesium supplement would also be beneficial. Lymies tend to be low in magnesium.

You should know when you are progressing by less severe and/or longer periods between "flares". I hope you will soon experience this.

Jen

 
Old 11-30-2012, 10:27 AM   #5
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Smile Re: cb1220

Don't think I am detoxing, but I don't know. Have had an awful earache the last few days. Take all kinds of vitamins and also a magnesium pill. Can't get into the bath to soak or I would. Also once in awhile the glands in my neck hurt. I do have some days that are a little better than others.
very few, but hopefully mor will be coming. I will try to get in the soak in the bath. Thanks again, Carol

 
Old 11-30-2012, 10:47 AM   #6
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Re: cb1220

You could just do foot soaks to get the extra mag in your system. I have found colloidal silver drops good for ear aches.

I hope things start turning around for you soon.

 
Old 12-01-2012, 07:49 AM   #7
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Re: cb1220

I would listen to your llmd and follow his protocol. I would also research taking natural supplements. The combo of both of these should help. It takes a very long time though. I would drink lemon water too. Also, if you can get in the bath I definitely would. I dry brush my skin first. Then use Epsom salt and hydro peroxide. Make the water warm - not too hot. Soak for at least 20 minutes. This will help detox.

 
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Old 12-01-2012, 08:28 AM   #8
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Angry Re: cb1220

Hi,

Am going to the Lyme Dr. all the time. I sure wish there was one at the UW Wisconsin. Would be a lot closer. Can't beleive there isn't any closer to me.
Next time I go I am going to ask him about Rocephrin.
I am going to try to get in the tub to soak and just hope I can get back out. My legs are not any good to me at all. My husband had heart problems and I don't like to have him lifting on me, even if I don't weigh a lot. I will try anything. I drink lemonade, but will just take lemon water instead. Thanks for the info. Carol

 
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