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Old 12-08-2012, 02:38 PM   #1
Join Date: Dec 2012
Location: NY, USA
Posts: 6
JEliz2 HB User
Question How reliable are the Lyme tests?

Hi Everyone,

Wondering if anyone knows whether its possible to have Lyme but to have the ELISA come back negative twice and the Western Blot once (expect for one band which was positive). I was tested through Quest Diagnostics both time and I heard they were not very reliable. From what I know about Lyme my symptoms only seem to fit Lyme: widespread tingling/numbness, swollen painful knees, joint pain, back soreness, neck stiffness. (I've been seeing an Orthopedist for my back and he's baffled cause he says I'm too young to have these symptoms.) Anyway, thanks, its been difficult to know where to turn next.

PS - Good Luck to everyone.

Old 12-08-2012, 02:41 PM   #2
Join Date: Dec 2012
Location: NY, USA
Posts: 6
JEliz2 HB User
Re: How reliable are the Lyme tests?

Forgot to mention. My C-Protein and ESR were elevated as well there's no signs of any neurological/rheumatology diseases (MS, Lupus, RA). Thanks

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Old 12-09-2012, 01:31 AM   #3
Join Date: Aug 2007
Location: NYC
Posts: 1,436
jenj770 HB User
Re: How reliable are the Lyme tests?

Many people with lyme disease never test positive.This is why clinical symptoms are the primary diagnostic tool. Please read the sticky post at the top of this lyme board titled "Lyme Newbies" for more information about this, where to get properly tested and the type of specialist you should be seeing. It's important not to delay starting treatment for lyme as the infection can rapidly proliferate.

I hope you get the help you need soon.


Old 12-09-2012, 04:54 PM   #4
Senior Veteran
Join Date: Jan 2010
Location: New York
Posts: 576
lala52 HB Userlala52 HB Userlala52 HB Userlala52 HB User
Re: How reliable are the Lyme tests?

Sounds like lyme to me. How did your symptoms start? Quest lab is not a good lab for testing of Lyme. You need to get your blood tested from a company in California called Igenix. I have tingling also on the top of my head and upper back. Do you have the tingling on the top of your head? laLa

Old 12-10-2012, 11:52 AM   #5
Join Date: Dec 2012
Location: NY, USA
Posts: 6
JEliz2 HB User
Re: How reliable are the Lyme tests?

Thanks Jen and LaLa,

I'll definitely take your advice.


My symptoms started in late September. I go hiking a lot (and was on Shelter Island in August) so Lyme disease was one of the first things I thought of. I don't notice the tingling on the top of my head or back; mostly on my face, the top of my hands and face, and forearms. Do you notice if stress makes the tingling worse? One doctor thought it might be anxiety but I haven't really been stressed. Thanks again.

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