I have been having issues for the past year and a half and wondering what is going on. I started going to Doctors back in August. I have Lyme disease on my list of possibilities, but it seems like everybody has joint pain who has it. I know the proper way to diagnose this is with a blood test from Palo Alto, but just judging by the symptoms, is it necessary to have joint pain in order to have Lyme disease? Is the likelihood reduced if I don't have that pain?
HeyJohn, not everyone has joint pain. We're all different when it comes to Borreilia and co-infections.
If you haven't already there are 2 threads above. How to Share LLD's names and Lyme Newbies.
It would be a wise idea to get to a Lyme Literate Medical Doctor. To rule in or out Lyme and co-infections. Beings testing is NOT accurate, they go solely on clinical evaluation.
Hope you find your answers soon!
Thank you Jojo. There is a support group in my city that will hopefully shed some more light. Even though the testing isn't accurate, I want one anyway. I hear it can cost up to $1800? I feel that is worth it to see if someone can measure it in my system.
Hi Heyjohn, there are a few LLMD's in the bay area. I helped a young friend get an appt with one of the best in Redwood City. He really likes this doc.
There are others and a few places to go that treat with alternative. I see a specialist in Sac, he treats the infection Chlamydia Pnumonaie, which many of us have. The treatment is basically the same as for the Borrelia bacteria.
You will need to be tested for heavy metals, treated for parasites, and yes I agree it does not hurt to have test ran by Igenex. Even though it took me 12 years of treatment to finally test positive through them. My doc at the time still went on my symptoms. And my doc now still treats me.
Bottom line it is good to rule out Lyme, babesia, Erichliosis, Bartonella, Mycoplasma, Chlamydia Pnumoniae. Also a good idea to be tested for viruses, Epstein Barr, Cytomeglovirus, and other herpe viruses.
You can call Igenex, request a lab kit, but you need to have a doctor sign off the lab slips. Make sure to get copies of all test you have done.
Hope you find your answers!
The following user gives a hug of support to jojo: heyjon (02-20-2013)
Heyjohn, keep calling that one office. Yes they are very busy.
Ticks are not the only way to get Borrelia. It is said, it can be transmitted through any insect that bites, draws blood and goes host to host. Borrelia is in the syphilis family. And it is being said that it can be transmitted via sex. Blood transfusions. Some say even just siliva.
My doc tells me, that what ever we have, we can pass it on to our partners. Any type of bacteria/.virus.
I think you are on to something. Most Lyme docs don't take insurance, because Lyme is such a political disease. If you have not, you can watch "Under Our Skin". It is a documentary that has been out a while now. You should be able to find it from where you are sitting.
I went YEARS without good sleep. After 12 years of treatment with western meds and alternative. Now I can sleep better with just taking benedryl.
I was a mess by the time I got a doctor to listen to me. I do believe you are on the right track. Lots of nasty critters out there.
You can be infected then it lays dormaint in your system. Only to pop out once our immune system drops. So you could of been infected years ago.