Lyme herx lasting months
i am confused. People who have Lyme say they feel better on abx. My pain increases double, the burning in my legs gets worse, sciatica, neck pain, heart palpitations, I can't sleep much and I am so anxious and have anger issues I am so restless and terrible left sided headaches. I am a anxious mess. this happens EVERYTIME I go on abx. The dr. Pulls me off for a time and then things settle down a bit and then we try again. But this ALWAYS happens. A renowned Lyme Dr. Told me I should feel better on abx and a herx only lasts a few weeks at most.
How can this be Lyme when I NEVER feel better on abx? Have been on Rifampin and Zith since end of NOv. I don't want to stop this time thinking this will eventually pass. I drink lots of water and take probiotics. I am positive with Igenex, false-pos with CDC Lyme test (that is what the CDC dr. Said without seeing me), CD-57 test is 22, pos Bartonella test. Any experience and or suggestions? I have hyper reflexes but MRI's are clear so I have tried to rule out everything else at great expense. Thanks for any responses