I am 77 years old and live in Georgia. In June of 2011, I visited a lake area with my family. About a week later, I noticed an itching on my back, right under my shoulder blade. I had my daughter look, and it was a tick. She removed it and we thought nothing else about it. About two weeks or so later, the lower part of my legs had this bright red rash and my ankles were swollen. I went to my doctor and he said it was a reaction from the sun and my blood pressure medication.
A few months later I began having intense joint pain and fatigue. I have lupus, and I just assumed that was causing the symptoms. This went on for some time and then I developed intense itching and pain in my lymph glands in my groin area. My doctor ordered a colonoscopy, which was normal. I began having horrible leg cramps at night and was prescribed klonopin for that. I kept having the joint and muscle pain. Some days could hardly function. I went from one doctor to another and had blood work; CT Scans; ultrasounds; x-rays, and no diagnosis. I finally started researching online and when I ran across Lyme Disease, I discovered that I had all of the symptoms.
I found a doctor and had the Western Blot test which was positive for Lyme Disease. I was negative for any co-infections. It amazes me that not one so-called specialist ever considered testing me for Lyme Disease. One doctor even inferred that I was a hypochondriac.
I have geen prescribed Doxycycline Hyclate, 400 mg. per day, which I cannot tolerate. Stomach pains, continuous nausea and itching caused me to stop the medication. Would be interested in hearing similar experiences and other options as to medications.
Hi Sbabb, I just saw your post. I hope by now you have read other post and know that for proper treatment, you truly need to see a Lyme Disease Specialist. As you are finding out, doctors that just want to treat peoples symptoms don't do a good job in finding what the causes are.
There is a thread above, How to share LLD names (Lyme Literate Doctor). We can not post names on the board to protect these doctors. Also from where you are sitting you might find a Lyme support group in your town, county or state. There might be a contact person that you can talk to and see if there are any LLMD in your area.
I am so sorry for what you are going through. You need more than a 4 to 6 week course of antibiotic. And only taking one type is not enough, Lyme docs usually treat with 3 types of antibiotics. One of the newbies, ones that kill the older ones and one to break open the cyst that they create around themselves.
I hope you can find a Lyme doc and get on the proper treatment.
Hi, did your doctor also put you on supplements to combat the stomach issues? I was on 2,000mg abx per day. Took over 50 supplements per day to combat the stress to the stomach along with managing the die off of the critters. I had little stomach issues. Some nausea but was manageable.