Greetings olivieplants12, 6Blues here. A good friend told me you were looking for me. :-)
I am very sorry to hear that you suffer from oscillopsia, it's just the worst! I know exactly what you mean that you want to just sit and close your eyes. From my experience as a patient, here is what I have learned.
Normally, our skull is in motion all the time: when we walk, drive, stand, etc. Even our heartbeats can move our skulls a teeny tiny bit. This motion is normally cancelled out by our brains so we aren't aware of it. This is called gaze stabilization. It's also related to the vestibulo-ocular relfex, or VOR. This process is really complex and involves the muscles, bones, nerves and the brain.
In my case, Lyme disease broke my balance nerves on my left and right sides, causing bilateral vestibular loss. This means I completely lost my sense of balance and my gaze stabilization mechanism. Not knowing what was happening was awful and trustme, I was a wreck! I went from doctor to doctor, getting poked, scanned and evaluated. I had plenty of scary dead ends, but no real answers.
My diagnosis took years because doctors were stumped by my symptoms. I had many misdiagnoses before I got the correct one.
Eventually I was referred to Penn University Dept of Otorhynolaryngology. (That's a mouthful!) I had health insurance at the time so they put me through every test they had. I looked for my test results so I could give you the name of the tests, but I can't find it, sorry. I will describe what I remember here so you can ask your doctor about them. There was a test where they recorded my eye movements with special goggles while they squirted very hot and very cold water into my ears. There was a test where my eyes movements were recorded while I sat in a spinning chair in a small room with black & stripes on the wall. And there was a test where I stood in a complete body holster while trying to balance on a moving platform.
The tests proved that my balance nerves were completely gone on both sides, and this is what caused my oscillopsia. My vision was fine, but the nerves that are supposed to cancel out this motion were broken, so every time my skull moved even a teeny tiny bit, I saw motion. Driving was the worst! When it was bad, I could see my TV screen jiggle in time to my hearbeat.
You may not have nerve damage from Lyme, but it sounds like you have some cranial nerve damage that has broken your VOR and gaze stabilization. The good news is that there is hope.
I suggest you find a good physical therapist who has experience in gaze stabilization therapy. I was able to walk and see clearly after just 4 weeks of therapy! I am a very determined person, so when my therapist assigned me exercises to do, I did them morning, noon and night. I always did more than they asked, so my therapy was very successful.
The therapy was not physically hard, but since you are re-training your brain, it is mentally exhausting.
Good luck and please feel free to private message me or ask any questions.
Peace and health to you,
Last edited by 6Blues; 05-10-2013 at 05:25 PM.