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Old 12-07-2004, 08:56 AM   #1
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Question about blood test results for someone with lymphoma

HI!

Was curious to know when your blood test results came back, did it show you had elevated white blood cell count? What about your lymphocytes?
Am very curious to know what it would show for someone with lymphoma.

Thanks for all your help!

 
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Old 12-31-2004, 07:15 PM   #2
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Re: Question about blood test results for someone with lymphoma

Hi I am new here but have non hodgkins lymphoma went through chemo- all of my blood tests came back normal except that my platelets were low. For my type of lymphoma (diffuse large b cell) blood tests were not a good diagnostic tool.

 
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Old 12-31-2004, 07:47 PM   #3
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Re: Question about blood test results for someone with lymphoma

Quote:
Originally Posted by luv2bmommy
HI!

Was curious to know when your blood test results came back, did it show you had elevated white blood cell count? What about your lymphocytes?
Am very curious to know what it would show for someone with lymphoma.

Thanks for all your help!
The reason that blood tests do not usually indicate the diagnosis of lymphoma is that the disease is in the lymphatic system rather than in the blood system. The lymphocytes in the blood stream may be perfectly ok, but the disease process is in the lymph node drainage system. It is an entirely different circulation system. Sometimes anemia does develop in the later stages of disease due to the stress on the body of trying to deal with healing itself. Of course if radiation or chemo or other chemical therapies are used, the blood counts will become effected.
There is a lymphocyte depleting form of lymphoma, but once again, it is usually associated with HIV, which is also a lymphocyte depleting disease.

 
Old 01-01-2005, 08:51 PM   #4
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Re: Question about blood test results for someone with lymphoma

Thank you so much for the replies. My doctor blew me off pretty much when I questioned lymphoma. She said my WBC were fine so there should be no cause for concern, BUT I've been through many tests and still no answers. Lymphoma or not, I want to know what is happening in my body and why I have all the symptoms but no one will do anything about it. Is there a certain kind of doctor anyone can recommend? Thanks for all of your help.

 
Old 01-03-2005, 01:28 PM   #5
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Re: Question about blood test results for someone with lymphoma

Hello, I'm sorry to hear about your situation and your difficulties in trying to find out what is wrong. Maybe I can offer some help. Last fall during my senior year of college, I started exhibiting strange symptoms..night sweats, pallor, some weight loss, problems with my lymph nodes and jaundice. I had also noticed some changes in my appetite. I finally went to a General Internist who ran many tests. Fortunately, he was a very compassionate doctor and took the time to rule everything out. It turns out that my blood tests revealed an unsual type of anemia--deficient in folic acid. He wasn't sure what was causing the anemia and sent me to see a hematologist/oncologist. I was also scared of something like lymphoma or leukemia--but luckily after many more blood tests, it turned out I had a rare blood disorder called hereditary spherocytosis. It turns out that this condition causes a rare type of hemolytic anemia where red blood cells are destroyed faster than they are made. Luckily, I've gotten the proper treatment and know how to manage the condition, although I'm still fatigued a lot.
If you're concerned about lymphoma, I would recommend seing a hematologist/oncologist..usually after a few diagnostic tests they can determine what condition you have. This may include a bone marrow tap, complete blood workup, blood smears, CT scans, lymph node biopsy or a test where you swallow fluid and they exam your lymph system with an xray. It's definitely not the best situation to go through, but once you find the right specialist..you're on the right track. I hope you are able to find the proper medical treatment that you need, and don't give up! Sometimes you have to keep pursuing until you find the right answers. Good luck and all the best in the new year

 
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Old 01-07-2005, 09:58 PM   #6
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Re: Question about blood test results for someone with lymphoma

Thank you so much for sharing your story and for your encouragement! I will try to see if my doctor will refer me to an oncologist. I just want to know what is happening Thank you so much again and God Bless you!

Stacie

 
Old 01-09-2005, 10:18 PM   #7
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Re: Question about blood test results for someone with lymphoma

Dear Stacie,

I'm glad I could offer some help Make sure you ask your General Internist for a hematologist-oncologist. They specialise not only in diseases of the blood, but also blood cancers. They tend to know what tests to run based on your symptoms. I wish you all the best. Good luck and good health in the new year. God Bless!

 
Old 01-10-2005, 05:35 PM   #8
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Re: Question about blood test results for someone with lymphoma

Well, I'm going through a very tough time right now with my Primary Care Physician. My OB/GYN has been trying to help. I have so many different things going on that we don't know what to do! They CAN DO something! My OB/GYN encouraged me to speak with my primary doctor and have her refer me to an oncologist. I called her today and she was so rude!!! She said, "If you expect me to refer you to anyone then I need to see you first and decide." so I'm seeing her again Thursday. If she is not willing to help me then I'm switching doctors, but there's no telling how long I'll have to wait to see a new one! This is driving me crazy! I'm scheduled to see a GI doctor on the 27th to rule out any problems there. This is the first time that they are at least trying to look for something! Meanwhile my lymph nodes are growing (as they have been for the last 2 months). My abdomen is killing me! PAIN. My legs have been going numb, sometimes the will feel really hot and I'll itch them like CRAZY!!!!

I don't know, but I'm so frustrated that no one will help me! I have faith that there is a reason this is happening and I know answers will come soon enough.

Thanks again for your kind words and advice!
Stacie

 
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