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help0001 05-26-2005 01:11 PM

Could this be lymphoma? After recent appointment with blood specialist?
 
Hi all. I am regular of to this forum. I have noticed for quite sometime that I have had enlarged lymph nodes in my groin and under my arms. I finely got the courage to tell my parents about it, i'm 19 years of age afterall. I was made an appointment to see the Doctor, and he was quite concerned at first. He ordered some blood work, and I told him that I do have Raynauds so he ordered an Anti-Nucleur Anti-body test (ANA). I phoned up for the results, and the secretary told me all was fine. I thought great, nothing to worry about. Then an appointment came through my door to see a blood specialist. Apparently my ANA came back positive.

I went and seen the blood specialist yesterday, who did some more blood tests and said they were all fine. He did say that the Doctor was originally worried because of lymph node enlargement in the armpits and the groin. He mentioned that they look for both leukemia and lymphoma when lymph nodes are enlarged. I haven't been feeling well for a while, and I have good days and bad days really. I have been going red under my eyes an all. The consultant said that I looked quite healthy, and that the nodes were quite small really. He said that they could be reactive, and that I should not worry about lymphoma at this stage. What does reactive mean? I've got an appointment to see him again in August because he wants to see what I am like then. He did say also that a positive ANA can cause lymph node enlargement, but I don't no what it is. I do often feel warm.

Can anyone think what the best thing to do here? do you think my consultant is worried or concerned that its cancer? would my ANA have anything to do with it? and what does reactive mean in terms of lymph nodes?

Any help would be most appreciated. After having it mentioned to me yesterday I was quite scared and worried. Please help.

Thank you.

meatball 05-26-2005 01:45 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
I think that if you had something bad like cancer, then the consultant you saw would be a little more worried. Not to mention you said all your blood tests came up clear. Usually in a hodgkins, leukemia case, your labs would be abnormal if anything. Did you have a cbc w/ differential? That alone will be able to tell the doc and consultant if there were any abnormalities. Other than the nodes, do you have any other symptoms? I would imagine you would if you had cancer. A positive ANA means you have an auto immune virus, which makes me feel like you have the nodes from something else.. have you been tested for lupus? Good luck and keep us posted.

help0001 05-26-2005 02:07 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]I think that if you had something bad like cancer, then the consultant you saw would be a little more worried. Not to mention you said all your blood tests came up clear. Usually in a hodgkins, leukemia case, your labs would be abnormal if anything. Did you have a cbc w/ differential? That alone will be able to tell the doc and consultant if there were any abnormalities. Other than the nodes, do you have any other symptoms? I would imagine you would if you had cancer. A positive ANA means you have an auto immune virus, which makes me feel like you have the nodes from something else.. have you been tested for lupus? Good luck and keep us posted.[/QUOTE]

Thanks for the reply. I don't no what they did. I remember a CBC being done and loads of other additional tests being done. There were no abnormalities apparently with my tests. He did say that everything was quite good. I do get a little warm, and I have a tingling sensation at the top of my head which i've told him about. He was more concerned with the nodes though. I do have a positive ANA, I have the result in front of me. I haven't been tested for lupus, except the ANA. Could lupus cause enlarged nodes? What else could cause them to enlarge?

Thank you for wishing me well. How are you? Do you have any lymph node problems?

Take care.

meatball 05-26-2005 02:20 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
Unfortunately I don't know much about lupus. You might want to lurk over in the lupus boards and read some of the symptoms but I can't imagine swollen lymph nodes not being a symptom. Having swollen glands/nodes means that your body is trying to fight off an infection. I would go see a hematologist asap so they can give you the proper diagnoses. When you say you feel warm, do you have a fever?

I have had swollen lymph nodes on several occasions always when I am sick or fighting an infection. You did the right thing by telling your folks and seeing the doc and consultant. Keep positive. I don't think it's anything life threatening.

You also mentioned you have Raynauds disease. Could that be the causeof all this and the positive ANA? Sorry not to familiar with that one.

help0001 05-26-2005 02:26 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]Unfortunately I don't know much about lupus. You might want to lurk over in the lupus boards and read some of the symptoms but I can't imagine swollen lymph nodes not being a symptom. Having swollen glands/nodes means that your body is trying to fight off an infection. I would go see a hematologist asap so they can give you the proper diagnoses. When you say you feel warm, do you have a fever?

I have had swollen lymph nodes on several occasions always when I am sick or fighting an infection. You did the right thing by telling your folks and seeing the doc and consultant. Keep positive. I don't think it's anything life threatening.

You also mentioned you have Raynauds disease. Could that be the causeof all this and the positive ANA? Sorry not to familiar with that one.[/QUOTE]

Thanks. I have already visited the lupus section. I do have Raynauds but I have never heard of it causing lymph node enlargement, but sometimes so what i've read Raynauds can be a symptom of other conditions like Lupus as you said. When I feel warm, I feel like hot flushes would best describe it. I've had my Thyroid checked an all and thats absolutely spot on. I'm just not sure now. My Consultant didn't seem to worried, and he did say "not to be worried at this stage", so I am wondering whether he is suspecting lymphoma or not. I have had Raynauds since i've been a teenager, and I was tested for ANA's before and it came back negative. Only recently have I got a positive test.

Thank you for saying I did the right thing. I'm so scared though now. I do sometimes feel well, then the next i'll feel ill and then i'll be good again and then bad again. I'm just unsure. Do you think it could be lymphoma from what i've been telling you?

By the way, I am already under a hematologist who is the consultant I am talking about. He is the one that mentioned and didn't rule out it being lymphoma. I've got to see him again in August.

Thanks again for replying back.

meatball 05-28-2005 07:29 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
hi,
hope you are doing a bit better today. I am having the same hot feeling as you, last night I actually thought I had a temperature but when I took it, it was a 97.3 which is way below normal. Sometimes my skin feels warm, then in the morning it feels cool, I can't keep up. I think you would have so many other symptoms if you have lymphoma, you would be running a low grade fever, you would have night sweats (amd not the kind where you sweat a little bit) the kind where you wake up and you have drenched the bed, you would have loss of appetite, etc. If your doc was worried, he would not be taking this lightly. His butt is on the line too don't forget. Do you have anxiety/panic disorder? I have it and sometimes that alone can cause the flushing symptoms we are both having. Your body can do some crazy things but it also has a great way of healing. 2 weeks ago I had liver enzymes in the 1,000's and when I went for my last checkup they were almost back to normal. Trust your body (and your docs). I know it is easier said than done but really, if you had lymphoma you would be sick ALL the time! I actually just put up a post about swollen glands and the flushing we have so maybe we can see what causes it. Deep breaths my friend!

help0001 05-29-2005 01:21 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]hi,
hope you are doing a bit better today. I am having the same hot feeling as you, last night I actually thought I had a temperature but when I took it, it was a 97.3 which is way below normal. Sometimes my skin feels warm, then in the morning it feels cool, I can't keep up. I think you would have so many other symptoms if you have lymphoma, you would be running a low grade fever, you would have night sweats (amd not the kind where you sweat a little bit) the kind where you wake up and you have drenched the bed, you would have loss of appetite, etc. If your doc was worried, he would not be taking this lightly. His butt is on the line too don't forget. Do you have anxiety/panic disorder? I have it and sometimes that alone can cause the flushing symptoms we are both having. Your body can do some crazy things but it also has a great way of healing. 2 weeks ago I had liver enzymes in the 1,000's and when I went for my last checkup they were almost back to normal. Trust your body (and your docs). I know it is easier said than done but really, if you had lymphoma you would be sick ALL the time! I actually just put up a post about swollen glands and the flushing we have so maybe we can see what causes it. Deep breaths my friend![/QUOTE]

Hi. I'm getting there. Thank you for asking. I'm still very concerned and worried especially as he seems to want to "wait and see". I don't have loss of appetite, and actually according to the consultant I seen, I look really healthy, its just that these swollen lymph nodes are not supposed to there. He was mentioning that it may not be lymphoma, but instead other disorders especially when I told him my ANA was positive. I do sweat, and don't get me wrong I do feel hot. I don't have night sweats as bad as what you said. All my other blood tests have came back normal, so what could it be? Thanks for telling me that you put a post up on swollen glands, hopefully we'll find some answers. I don't think I have anxiety, but when you are facing such problems I do tend to worry about it. How many swollen glands do you have enlarged if you don't mind me asking? What will my haemotologist do next time when I see him? What abnormalities in my blood would show if it was lymphoma?

Thank you, and I hope you are well.

meatball 05-29-2005 01:36 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
I get swollwn glands all the time. I just had tons of them from a virus I just had and I get little ones that stick out of my neck too. I try not to get too worried but I do keep an eye on them to see if they are getting bigger etc. You know your body the best and if you feel ok, then my guess is that you ARE ok. Many times, the minute people get a swollen gland or node, they immediately jump to the big "C" word, when in fact, there are a million different reasons for swollen nodes. Chances are you would have already found out by now if you did have something terminal. Your hematologist's specialty is finding the proper diagnoses for you which they have been trained for years and years to do. I know the waiting is so hard but just think how much better you will feel when you finally can out this behind you. If you do have an autoimmune disease, you will get it taken care of. Millions of people live normal lives.. Try not to worry. I know this is easier said then done, being that I am the BIGGEST worrier, but when you have to trust your docs and specialists at some point. No one wants their butts on the line so they are going to do whatever they can to get you better. Hang in there :)

help0001 05-29-2005 12:22 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]I get swollwn glands all the time. I just had tons of them from a virus I just had and I get little ones that stick out of my neck too. I try not to get too worried but I do keep an eye on them to see if they are getting bigger etc. You know your body the best and if you feel ok, then my guess is that you ARE ok. Many times, the minute people get a swollen gland or node, they immediately jump to the big "C" word, when in fact, there are a million different reasons for swollen nodes. Chances are you would have already found out by now if you did have something terminal. Your hematologist's specialty is finding the proper diagnoses for you which they have been trained for years and years to do. I know the waiting is so hard but just think how much better you will feel when you finally can out this behind you. If you do have an autoimmune disease, you will get it taken care of. Millions of people live normal lives.. Try not to worry. I know this is easier said then done, being that I am the BIGGEST worrier, but when you have to trust your docs and specialists at some point. No one wants their butts on the line so they are going to do whatever they can to get you better. Hang in there :)[/QUOTE]

Hi. Thanks again for replying. What i'm worried about is that my consultant suspected leukemia and because he ruled that out through my blood work, he didn't rule out lymphoma. What is even more worrying for me is that I have two enlarged lymph nodes, one under each armpit. I have two in my groin, one on each side also. Should they be there? I'm just worried in case it does turn out to be lymphoma. They haven't grown in size or anything. The consultant said they are quite small, and not to worry at this stage. If it does turn out to be Lymphoma? Is it curable, especially as my lymph nodes are quite small? Please help... i'm worried as anything here.

Hope you are well.

Take care.

cookingmom 05-29-2005 02:20 PM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
Hello,

Do you know the numbers of your ANA and did they mention if there was a pattern to it - example - speckled?

When you say you don't feel well, can you explain what you mean? Are you tired, have joint pain - how do you feel when you are feeling bad?

I too am glad you were able to tell your parents. Sometimes diagnosing something takes time - especially if it is autoimmune. Hang in there and let us know how you are.

help0001 05-30-2005 02:45 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=cookingmom]Hello,

Do you know the numbers of your ANA and did they mention if there was a pattern to it - example - speckled?

When you say you don't feel well, can you explain what you mean? Are you tired, have joint pain - how do you feel when you are feeling bad?

I too am glad you were able to tell your parents. Sometimes diagnosing something takes time - especially if it is autoimmune. Hang in there and let us know how you are.[/QUOTE]

My ANA was 1:80, and it was speckled pattern. What does that mean?

Well, I do often feel quite tired and I do have joint pain. I often feel that its difficult to do things like I have to force myself. This all started when I felt really ill when I lost all my appetite and so on but i'm still not right.

I'm glad I have told my parents knowing the complications of lymph node enlargement. Do you think I have anything to worry about? Could it be an auto-immune problem arising?

meatball 05-30-2005 02:53 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
hey there my friend,
this might cheer you up and i could be wrong but from my knowledge of lymphoma and swollen glands is that you would NOT have one on each side. They would be in completely random places. Granted I'm sure you have them, there is a reason you have pairs of them. Am I making sense? :) Basically if you had lymphoma you would have glands popping up all over the place especially from your belly button up and aong your collerbone. I believe this is called the media stynum (sp?) Yours, from what you are saying, are symmetrical to each other. This is good! No lymphoma and no worrying!! When is your next appt with the specialist?

help0001 05-30-2005 03:01 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]hey there my friend,
this might cheer you up and i could be wrong but from my knowledge of lymphoma and swollen glands is that you would NOT have one on each side. They would be in completely random places. Granted I'm sure you have them, there is a reason you have pairs of them. Am I making sense? :) Basically if you had lymphoma you would have glands popping up all over the place especially from your belly button up and aong your collerbone. I believe this is called the media stynum (sp?) Yours, from what you are saying, are symmetrical to each other. This is good! No lymphoma and no worrying!! When is your next appt with the specialist?[/QUOTE]

Hi, thanks every so much for that. Thats given me some hope. I do have them up in armpits and in my groin area but they are about the same sizes and have not grown at all. Why do I have pairs of them enlarged? My next appointment is in August. My Haemotologist wants to wait and see what happens. I do sweat a lot and have been feeling warm, and i've just automatically thought it could be lymphoma. How are you today? What are your nodes like? Are yours symmetrical to one another? Does my nodes not growing in size mean a good thing?

Hope you are well.

meatball 05-30-2005 03:17 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
The fact that your hematologist doesn't want to even see you until Aug is a good sign in itself. Until then, no worrying and start enjoying life. (I know- easier said than done) but really if you had lymphoma you would be sick. Just keep an eye out for change in shape and growth and try not to touch them or push on them,(btw are they painful or no?) this might aggravate them. I am doing ok, dealing with my own health issues, but I am trying to take it day by day. :)

help0001 05-30-2005 06:15 AM

Re: Could this be lymphoma? After recent appointment with blood specialist?
 
[QUOTE=meatball]The fact that your hematologist doesn't want to even see you until Aug is a good sign in itself. Until then, no worrying and start enjoying life. (I know- easier said than done) but really if you had lymphoma you would be sick. Just keep an eye out for change in shape and growth and try not to touch them or push on them,(btw are they painful or no?) this might aggravate them. I am doing ok, dealing with my own health issues, but I am trying to take it day by day. :)[/QUOTE]

Hi. I think he is concerned in the back of his mind really. He did say not to worry "at this stage" about it. But he definetly suspected lymphoma. I'll try not to worry but it is difficult. Its always at the back of my mind. I do sweat or have been and I believe this can be a symptom associated with it? I do have one thing in my favour though, a positive ANA, so fingers crossed it isn't lymphoma. I'd be happy with anything else than that. The lymph nodes aren't painful at all, they are just there, and I can't see why they are. I do regularly just feel them and check to see if they are the same shape and size. One of them (in my groin) feels harder and more raised than the other. I'm glad you are going well. I hope you are alright. I'm going to have to take the day by day approach. I've just got to live for today, and take each day as and when it arrives. Are your nodes painful? How old are you as well if you don't mind me asking? How have your blood tests turned out?

Take care,


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