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Old 08-04-2005, 08:29 AM   #1
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Question I"M SO CONFUSED!!!!!!!!!!!!!!!!

OK. i'm so sorry if anyone has read my story before because i've posted on a few different boards, because i have been batteling this "thing" as i'll call it for so long with out a diagnosis. My name is Barbie and i'm 23years old. I have been to the doctors with c/o numbness in my right hand, and terrible itching that doesn't really appear to be related to anything ( i use lotion everyday and i dont' have dry/flaky skin) so i don't think its just dry skin, my scalp aslo often itches and no dandruff or anything. and i have these horrible night sweats, i wake up in the middle of the night soaking wet. i have a lot of pain in my lower back and in my joints. I have been to my family dr, a neuro, rheumie and no one has come to any conclusions. I have been diagnosised with having SVT (a very fast heartbeat) and i had cardiac ablation for that last june (2004) and then in feb of this year i was diagnosised with Neurocardiogenic syncope (vasovagal syncope). I have b12 deficiency and i'm slightly anemic, i have had 2 very very slightly positive ana test and rheumtoid factor (they thought maybe lupus, but have since ruled it out) well to jump back to whats going on now i had my gall bladder taken out last week and when i went back to the surgeon today i told him that i didnt' think this was related but since surgery my night sweats have been worse and then he started asking me a bunch of questions and is sending me to see an onc doctor. I also have this "bump" on the back/left side of my neck that i would guess is no bigger than a pea, he said it could by a lymph node, but that "bump" has been there since i can remember sometimes it changes sizes, but nothing ever oozes out of it or anything its hard, but not like a rock, more like rubber. I'm sorry this was long, but if anyone has any ideals or comments it would be greatly apperciated. I"m so scared/ nervous/ confused i dont' know which way is up. thank you very very much for your time barbie

 
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Old 08-04-2005, 01:29 PM   #2
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Re: I"M SO CONFUSED!!!!!!!!!!!!!!!!

Quote:
Originally Posted by mtm9138
OK. i'm so sorry if anyone has read my story before because i've posted on a few different boards, because i have been batteling this "thing" as i'll call it for so long with out a diagnosis. My name is Barbie and i'm 23years old. I have been to the doctors with c/o numbness in my right hand, and terrible itching that doesn't really appear to be related to anything ( i use lotion everyday and i dont' have dry/flaky skin) so i don't think its just dry skin, my scalp aslo often itches and no dandruff or anything. and i have these horrible night sweats, i wake up in the middle of the night soaking wet. i have a lot of pain in my lower back and in my joints. I have been to my family dr, a neuro, rheumie and no one has come to any conclusions. I have been diagnosised with having SVT (a very fast heartbeat) and i had cardiac ablation for that last june (2004) and then in feb of this year i was diagnosised with Neurocardiogenic syncope (vasovagal syncope). I have b12 deficiency and i'm slightly anemic, i have had 2 very very slightly positive ana test and rheumtoid factor (they thought maybe lupus, but have since ruled it out) well to jump back to whats going on now i had my gall bladder taken out last week and when i went back to the surgeon today i told him that i didnt' think this was related but since surgery my night sweats have been worse and then he started asking me a bunch of questions and is sending me to see an onc doctor. I also have this "bump" on the back/left side of my neck that i would guess is no bigger than a pea, he said it could by a lymph node, but that "bump" has been there since i can remember sometimes it changes sizes, but nothing ever oozes out of it or anything its hard, but not like a rock, more like rubber. I'm sorry this was long, but if anyone has any ideals or comments it would be greatly apperciated. I"m so scared/ nervous/ confused i dont' know which way is up. thank you very very much for your time barbie
Hi. I am sorry to see that you are going through a rough time at the moment. I can sympathise with you. I have five neck glands raised in my neck and two under each armpit and two each side of my groin, so I perfectly understand why you are scared, nervous and confused. What is the most worrying thing hear is your symptom of "night sweats" and "itching". Night sweats are a symptom of lymphoma, and I myself have started having them. The itching I also get. I am currently under a hematologist who I will see in a few weeks time. It will be my second appointment with him. I have got to report all these new symptoms to him. I have a positive ANA myself and it is quite high. Please remember that you could still have lupus because it does not always show up in blood work immediately due to its very devious nature. Do you get any other symptoms? I hope this turns out to be nothing sinister. If you can, try and get referred to a hematologist who specialises in blood and lympathic cancers. I hope you manage to get well soon, and it turns out to just be a very nasty virus. Please keep me posted.

 
Old 08-04-2005, 01:53 PM   #3
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Re: I"M SO CONFUSED!!!!!!!!!!!!!!!!

the only have "symptoms" i have is that my hair is falling out. way more than a normal person who is just shedding. I get a small handfull everytime i run my hands through it.

barbie

 
Old 08-04-2005, 01:56 PM   #4
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help0001 HB User
Re: I"M SO CONFUSED!!!!!!!!!!!!!!!!

Quote:
Originally Posted by mtm9138
the only have "symptoms" i have is that my hair is falling out. way more than a normal person who is just shedding. I get a small handfull everytime i run my hands through it.

barbie
Hi, did you know that auto-immune disorders can cause hair loss? What was the reading for your ANA? I'd try and get back in touch with your Rheumatologist because you are definetly showing one of the key symptoms of lupus. Hope you are well today.

 
Old 08-04-2005, 02:05 PM   #5
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Join Date: Feb 2005
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Re: I"M SO CONFUSED!!!!!!!!!!!!!!!!

my ana is only barely elevated at 1.1 (should be equal or <1). i'm going to the oncologist on sept 2nd so i'll wait and see what he says and if he wants to do another complete blood work up. thanks. barbie

 
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