my mom was just diagnosed with aggressive NHL. - Lymphomas Message Board

Iadinae · 01-20-2006, 08:09 PM

I am trying to find info on her prognosis. The Dr.s are telling us that the aggressive kind is the most treatable but from what I am reading we are confusing treatable with good outcome. It looks like it will be easier to cure if it can be cured, but the stats do not look good in terms of survival rates. Any input?

DiannaLee · 02-01-2006, 07:42 AM

I found this website:
[url]http://www.asco.org/ac/1,1003,_12-002636-00_18-0016-00_19-002642,00.asp[/url]

It has the International Prognostic Index in Agressive Non-Hodgkins Lymphoma

I don't really understand the stats but I was curious because my mom died at age 33 of NHL in 1967 and they didn't have much to offer in the way of treatment back then. She lived 2 yrs. after the diagnosis but they said her MD waited too late to consult a specialist for them to do anything for her. There is a lot more hope these days. I hope your mom finds treatment that helps. My thoughts are with you both.

cardshark · 02-22-2006, 09:20 PM

In 1987 I was diagnosed with NHL, I was 4, my parents were told several times during the course of my treatment that it would take a miracle for me to survive. I did 18 months of chemotherapy and some radiation and was then in remission. Doctors don't know everything, stay strong for your mom and be supportive; she has a long and hard road ahead of her but with your love and support she can make it through this!