| CTCL Cutaneous T Cell Lymphoma
Does anyone have experience w/or info on Cutaneous T-Cell Lymphoma?
I'm told it begins and is first diagnosed on the skin but is classified as a lymphoma due to being in the nodes. I think it starts as an "eczema or psoriasis" type rash but by then has progressed to the lymph system. Also is it a NHL?--some sites say it is. The info out there is vague and somewhat limited. I was just wondering if anyone had some real life exp or advice..I read it's hard to dx. Due to some rapidly changing lymph nodes and rash my ENT thinks this may be my situation. So I'm waiting for the next step. I really just don't know what to expect on this journey of discovery. Thanks in advance for any help. Schnookie
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