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Old 10-03-2006, 05:24 AM   #1
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angeleyes0906 HB User
Thanks for your imput

I'd really like to thank everyone who responded to my plea for information on this dz.

I recently underwent a pet scan as most of you are aware, and the news wasn't the greatest. I havent confirmed it with my new surgeon yet, and It hasn't been confirmed by biopsy, so I still hold out hope that its not right, but it came out suggesting malignant melanoma, with matastasis, Im sure I misspelled that sorry. I guess I will be jumping to the melanoma threads to see what I can find out.

I really appreciate all your time and information, it really helped to have somewhere to come and get support.

Thank you all again.
Trish
angeleyes

 
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Old 10-03-2006, 10:45 AM   #2
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Re: Thanks for your imput

I am so sorry to hear your news and hope the biopsy proves otherwise. However, if it is melanoma, I wish you the best in your treatment.

Love and prayers,
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Husband dx July 2003, advanced rectal cancer stage 111C; myself dx July 2006 indolent lymphoma; husband dx February 2010, stage 2 prostate cancer.

 
Old 10-03-2006, 11:18 AM   #3
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Re: Thanks for your imput

Hmmm...did you have any types of rashes, moles or bumps on you skin anywhere that melanoma would cause...If I am not mistaken doesn't melanoma start in the skin and then work it's way inside to the organs??

 
Old 10-03-2006, 04:55 PM   #4
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Re: Thanks for your imput

apparently I am supposed to have a nodular version. It started like a simple cyst, I was told it was nothing to worry about and all the doctors were caught up in the thyroid goiter and nodules there and determined that I was experiencing viral infections that they didn't pursue the cyst. Last week just after I had an excisional biopsy of my lower arm for another lump that just showed up, the lump in my back, literally blew up like a balloon, it went from pea size to ruffly 4.5 cm around and about 1.4 cm deep into my subq fat. I showed an interal med doctor Im associated with and he thought it was an infected cyst and put me on 875 mg of levaquin for 10 days, during this time the doctors were still trying to locate a primary, my abdomen and interanal organs all came back clean. I have regional metastsis so far, auxillary area and neck. Anyway, the radiologist picked up on the mass on my shoulder and labeled it my primary tumor. Apparently, it went hot on my pet scan. The radiologist explained that the pet scan picks up on tissue that burn glucose normally and any abnormal tissue that is burning glucose. I guess that is a marker for cancer. based on his report this has probably been in action from just a couple of months to 5 years, I remember this mass coming up a few years ago, and having 3 doctors look at and all say the same thing, just a bakers cyst. Noone ever referred me to a surgeon for further follow up. Last sunday evening the thing actually exploded and hasn't stopped draining since.

Never had rash, no new moles, no skin discolorations anywhere, just various cysts and lymphnode swelling. Unfortunately, I was raised on the water, we were always swimming and boating and conoeing as kids. I am blonde, with very light irish skin, so you can imagine, its not that improbable it happened, Im pretty much in defensive mode right now trying to figure out the best course of action. I kinda get the impression however, that my destiny is already decided regardless of what I try. But we shall see,

again thanks for all the support

 
Old 10-04-2006, 09:41 AM   #5
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Re: Thanks for your imput

Whatever you do, do not give up~

With modern medcine and faith you can be a survivor too...there are so many different treatment methods and options these days that you will make it, sounds like it has not gone all over your body so you should be OK...hopefully they can kill and or remove the cells and get you a course of treatment to get you back to normal...wish you the best of luck....keep you hopes and faith...you will make it

 
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