| Re: misdiagnosis
sta21,
I'm sorry to hear of your troubles and I do want to say I've heard multiple cases of misdiagnoses.
that's why it's GOOD when we learn and know our bodies. Doctors make mistakes. we all make mistakes.
if you have a gut feeling something is wrong and you're not feeling well, by all means keep pursuing this issue. find another dr like you did. you hire them, not the other way around.
did the new dr prescribe an antibiotic first?
it goes in steps. sometimes blood work can be totally normal and a person can still have a form of lymphoma. some people feel fine and some don't.
are you doing research yet? just be careful of what you read because one can get very frightened and hear alot of negativity.
I think you are very wise for your age and you sound very mature.
don't you have one person or a close friend you can share this with?
you must be a nervous wreck and to not say anything about it till you find out an answer can drive one nuts.
it's good that we have boards like this where we can come and vent.
there is a national lymphoma foundation that has many answers to your questions if you are searching them. They're up to date and can be trusted with what you read.
I wish you peace and wish the best outcome for you at this frightening time.
you can write the first dr a letter. I've seen it done before by other patients who were misdiagnosed. he should be more aware of the symtoms of this disease. he NEEDs to be made aware.
alot of general dr's aren't up to date about the different types of lymphomas.
lymphoma specialtists are trained in this area specifically.
ENT's are good too. ear nose and throat doctors. they'r surgeons and can do an excisional biopsy. if you need a biopsy, have the entire node removed rather than be tested by a fine needle aspiration or what ever they call the needle biopsy where they take just a piece of the enlarged node.
this method can miss harmful cells. so that's another way things get misdiagnosed. also, always get a second lab to do the pathology, because if one eye misses it, another trained eye can see it. that's another common mistake that people aren't aware of.
to always get a second opinion of the biopsy.
just a few suggestions. please keep in touch if you can.
sincerely,
linda
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