Fairy-Lights - Lymphomas Message Board

DebM412 · 06-13-2007, 10:31 AM

Where are you? I hope that you are okay!!

Luv, Deb

fairy-lights · 06-15-2007, 02:36 PM

Hi my dear friend,

I am sorry, I am really fed-up and i have had enough, my family have had enough, because i haven't had a proper diagnosis, they think it's in my head, well they haven't come out and said that, but I know that they are thinking it!!

I stayed a way, because i didn't want to seem down all the time, I'm no help to any one.

I don't even want to get out of bed, i ache I feel really ill, the sweats are really bad, and I think what's the point my consultant thinks I'm some kind of loony and I think maybe I am making something out of nothing.

I don't know if I should continue as I am not sure what to do any more, my husband isn't talking to me, and I just feel so low.

I am so sorry Debs and i thank you for your friendship, xxxx

That isn't meant in a bad way the continue thing!!

Ails · 06-15-2007, 02:46 PM

Babes, I know where you're coming from - my Doc was such a ***** about it that she made me think it was all in my head and that I was a hypochondriac!! YOU know something is wrong so push it.

Can you not go private for the initial consultation - I paid approx 60 quid and things moved VERY quickly from there!

I hope you're feeling a little more positive soon and back to your sunny little self in no time

Big big virtual hugs (combined with swift kick up butt for even contemplating not coming on here

)

Ails xx

DebM412 · 06-15-2007, 03:13 PM

Oh my friend,

You are sick, this is not in your head. You have major symptoms! You have a partial diagnosis, you just need treatment! Don't ever, and I mean EVER think of not coming on this board cause you are down. You are a bright light to so many, me included! Everyone here cares about you. Here I thought maybe you were getting the treatment you deserve to get better.
Can you get private help like Ails suggested? Please, try. Whatever happened to the ENT appt? Please get out of this slump or I will come over with Ails and we will get you out of it.
What is going on with the family? Is the Mother-in-law again?

MAJOR <<<HUGS>>>

Deb

singer78 · 06-15-2007, 04:49 PM

Fairy,
Add me to the mix! I missed you immensely!
Look at me....do I come on here all chipper and perky all the time? I wish I did.
I'm just lucky I got an early diagnosis. Although, that has it's draw-backs, too--as, I'm still adjusting my schedule, my thinking, ---I mean my world came to such an abrupt STOP it's been mind-boggling. BUT--I'm thankful.
I remember the "not knowing" part. Mine only lasted 2 GRUELING weeks, but I had an enlarged, very fast-growing tumor, right on my collarbone, for the whole world to see.
Don't leave any stone unturned. These gals on here are so right. Push, push until you can't push any more for answers. We all can tell you're a bright, shiny person that's just experiencing some health problems---a minor kink in the road---like me. But, you are in charge of your own body & no one

will push like you.
I literally feel like I'm fighting for my life. I know I am. Even though I have a team of specialists---I still feel I have to add my feelings and my thoughts "to the mix." For instance, my diet. I've started adding good, quality protein. There for awhile, I was living on ice cream. I think my body was in dire need of good nutrition, but "they" really didn't stress that to me at my Oncologist's.....I'm thinking "outside the box" now, and combining some knowledge from books, from you people, etc...
Are you far from where Ails lives? I'm really not familiar with England, but look at her---she's the picture of health right now & is giving you great advice. Perhaps, her health care providers are somewhere within your reach, too.
Aileen... is that possible?
Anyway---just want you to know I missed your posts & even just your cheery little smilies made me happy, when I've been so down, I could hardly turn the computer on!