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Old 06-16-2007, 11:58 AM   #1
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BeachJen HB User
Rejection and devastated

My spinal fusion is off for Monday. I had my PAT on Thursday and it was not good news. My white count was very low and my liver enzymes were all out of whack. I haven't been feeling well with digestive problems and extreme tiredness. But I thought it was from getting back to work and just all the excitement of getting my life back together.

The results were sent to my oncologist and he wants me to come in this week. I asked what could be causing this and he said I might be rejecting the stems cells. For some it happens immediately and others it might take a while. I can't tell you how devastated I am by all this. I thought this was the last piece of the puzzle and now I feel like I'm back to square one.
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Old 06-16-2007, 12:19 PM   #2
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Re: Rejection and devastated

Jen,
I'm so sorry to hear this. It must be "in the air," because, if you've read any of my posts from yesterday, my white blood cell count was so low, they sent me home & told me to wait until next week for my chemo. Now, I'm going to be pushed ahead further into 2007 with treatment! Darn. What I'm dealing with, sounds miniscule to what you're having to deal with---but, rest assured, the doctors know what they're doing. I've found that through this illness, "patience is a virtue." I SO want to rush through---regain my old life---but, that's just not possible. Now, is a time to get intuned with your body, like never before.
Ask questions, if you need to....plenty. I literally go into my Oncologist's with a list (like 20 questions) and he actually answers them all! I'm still feeling my way around my diagnosis---it's just so surreal. It always "happens to someone else" --not me. Wrong. That's life.
So do whatever you can to make yourself feel better. You're just having another "kink" in the road, like we all do on here, at one time or another.
The best to you.
Keep us all informed.
S.

 
Old 06-16-2007, 12:55 PM   #3
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Re: Rejection and devastated

Yes Singer I did read that you're chemo was delayed because of low WBCs. I was afraid to reply because I thought I scared you by saying about the shots. If I did I truly apologize.

I can't even think of questions at the moment. I'm so tempted to research it on the net but I'm terrified. If I read that I might need more chemo, well I don't know.
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Old 06-16-2007, 02:02 PM   #4
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Re: Rejection and devastated

I know,--
Sometimes the internet can scare the "beejeebers" out of you.
And not ALL the information is always correct.
I've found this forum to be more helpful than anything.
No...you didn't scare me. I realize your WBC gets low during chemo, usually at one time or another. I just thought "I'd" be different.
S.

 
Old 06-16-2007, 02:37 PM   #5
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Re: Rejection and devastated

Thanks Singer, I'm glad I didn't scare you. I just can't believe this is all happening. I came to HB to ask for advice about my spinal surgery and saw the lymphoma forum and thought I'd share my experiences. I'd never in my wildest dreams thought I'd be posting in this capacity.

Quote:
I just thought "I'd" be different
I'm so sorry you're not.
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