Hi I'm back trying to be cheery!! - Lymphomas Message Board

fairy-lights · 07-01-2007, 08:39 PM

Hi Everyone!! I hope that you are all well, and haven't forgotten me already (lol).

I must apologise i have had the worst few weeks recently, and have just returned again from hospital, my white cell count was raised plus usual and I had really bad (runs Sorry!!).

I have found things really hard to deal with, especially wondering if I really had the strength to actually find out what is wrong with me, and then thinking I'd rather not know, especially as no one seems to want to treat me!! It's always your already under a consultant we can only do so much

I think I am just going to see if I can just get better on my own, i am sure that the lymph nodes will eventually go down?
I am going to see a healer next week, my aunty is into it all, and feel that I need to be cleansed, I'll give anything ago!!

I want to thank you all that have stuck by me, and I want you to know that despite my absents I have still thought of you all, as you have all remained in my heart and will continue to do so, my dear friends.

I have missed our chats and hope to catch up with you soon, another restless night for me, so I thought I'd fill you in.

All the best God bless

Susie xx

Nassau one · 07-02-2007, 05:45 AM

Hi Susie,
I am so sorry that you continue to be so unwell and no-one can really give a good diagnosis. It must be SO frustrating! When do you see your consultant again? I guess at this point it is worth trying any kind of healing, when conventional methods have not worked for you.

Love,

pinkmada · 07-02-2007, 10:34 AM

Hey Susie, is there any way you can change your GP and demand a second opinion from another consultant? I'm so sorry you were back in hospital.

xxx

fairy-lights · 07-02-2007, 02:42 PM

Hi Alison, and Amanda

Believe me I have tried to get a second, third and forth etc appointment for another opinion, just not having any luck.

Hopefully I will get some answers one of these day's and I can then resume to normal.

Alison, how are you?, I have had so many prob's change of e-mail and all that and one thing after another so I haven't had the opportunity to catch up wit you, I do think of you and wish you well.

Amanda, I am so pleased that you haven't got long to go, full steam ahead!!!!!!!!!!

You have both been an inspiration to me,

love to the both of you, your friend Susie xx

Nassau one · 07-02-2007, 03:06 PM

I do hope you get answers soon. It is hard for me to know what it is like to not know what is going on. I was not getting any symptoms of lymphoma and my diagnosis came as a result of a scan to look into a lower pelvic problem. However, as the problem was small and I felt well, waiting for a diagnosis was easy! When I got the diagnosis, and I am coming up to my anniversary, I was not shocked...not sure why, but just was not. I think it must be awful to just not know what is going on and to feel so bad. Being treated is not nice but at least you get some sense of control of the situation.

I am also older and have got to the stage where I expect anything!!
By the way, I am feeling great!
Love,