Hello everyone.........well my lump on my neck did not go away with antibotics so my primary is sending me to a surgeon to get a biopsy.....have lump on left side of neck and a smaller one on the right side....one on left side protrudes out and has gotton bigger.......lump does not hurt....just been diaganosis with fibro and ostie artheritis.......also have neck muscle problems...........oh yeah and I am itching all over.......have a bad rash on the back of my neck and my head feels like it is on fire all the time.....anyone have these other symtoms????????
I check this message board everyday and keep hoping for a reply something to look forward too another person that maybe I could reach out too.....I am scared and confused........I hope I get an appt soon with a surgeon and get this biopsy over with I am killing myself with worry and wondering what will happen to my kids if something happens to me........Well I will check back later..........hope to talk to someone tc
hi, I am going through the same thing as you, so I know the frustration and the anxiety. My doctor didn't put me on antibiotics because my white count was normal. I had a sonogram the same day the lump was found, and then a CT 3 days later. I got in with an oncology surgeon the following week, and am having my biopsy tomorrow. Its just been 2 weeks since my lump was found. I will get my biopsy results on Wednesday.
I will be keeping you in my thoughts. I know you're scared. Me too!!!
Hi Hillbilly,
I'm here for you. it takes a little while sometimes to get an answer but they come trickling in.
I'm sorry you're going thru such a stressfull time in your life right now.
I went thru a similar experience back in 1998. I found a lump on the right side of my neck right under the jaw line. I was sent to an ENT who put me on a course of antibiotics, it didn't go away, he sent me for an MRI, than a CT Scan which the radilogist said it was a high suspicion for a lymphoma.
the biopsy did not hurt as bad as I thougth it would. they did an excisional and not a needle biopsy. a needle biopsy can somtimes miss the malignant cells because it's only taking out a portion of the mass. where as with an excisional, the entire mass can be examined. some masses, depended where they're located can only have a needle biopsy if it's sitting on the carotid artery which is a dangerous spot for the surgeon.
A general surgeon once told me he woulnd't touch it with a ten foot pole becaujse he was afraid if he slipped, he'd damage the nerves which effects the facial muscles.
My ent never ever said anything to me like that. that's because it's the ENT's specialty to perform such surgeries.
my surgeon said he'd do his best job with me so he wouldn't scar my pretty neck. his exact words. he was right too. he did a fantastic job. all I have to do is cover it lightly with a little foundation each day and you can barely notice I have a scar there. he was proud of his work.
Mine turned out to be " Atypical Follicular Lymphoid Hyperplasia" which is benign. My ent called me just about every single day telling me he was waiting for the results and he's sorry it was taking so long.
he also had the sample sent to a seperate independent lab besides the hospital's patholgist to read.
I was recommended to always get a 2nd opinon on a biopsy. espeically lymphnodes because there's something like 30 different subtypes of lymphoma's and the pathologist has to be maticulous in reading the biopsy.
did you call a surgeon yet? what type of surgeon are you going to see?
how long were you on the antibotics' for and are you getting any symtoms?
alot of people I met thru the computer all said they felt fine and many of them had no symtoms before they're diagnosis. You can't go by blood work to detect a lymphoma. only a biopsy can detect it.
then there are some that do feel symtoms like being very tired all the time, sweats, a deep itchy feeling in their body and if it's hodgkins, if they drink an alcoholic beverage, the node would hurt. only when they drank though.
eveyone is different and you're your own unique person so you can't go by what you hear from others.
let us know when you've made you're appointment and if you need to talk to get out your stress, feel free to do so.
it's the best way of relieving your worries instead of keeping it bottled inside.
I wish you the best.
please keep us informed of your update.
Thank you Jeri and Linda for your replys it means alot to me. Like I am not all alone with this. I seem to have developed another lump on the other side of my neck now. Still waiting for my referral to see a surgeon......they said it would probably be today.....I hope so I just want this thing over with
I hope you find out today so you can get this moving.
the anxiety alone is enough to drive one nuts. It's difficult to not think about it during the day and night. they say the chance of it being malignant is small but I always say, what if we're in that group that makes up the small percentage?
so it's ok to being frightened. just come here and talk if you need to.
get it out so it doesn't make you sick. that's what I do all the time when things are borthering me. otherwise i"d explode.
let us know the outcome. good luck hon.
Linda
YES! that's wonderful news. You got in real fast.
I'll send you good ***** at that time today.
stay calm, take a deep breath and if you have questions for the dr., write them down and bring them with you so you dont' forget.
I've done that so many times. Linda
Went to the surgeon today and he scheduled a biospy for Monday.........I guess now it is just a waiting game.........will post after biospy tc everyone
they're moving real quick on this hillbilly.
thank goodness your wait isn't too long.
did the surgeon tell you what type of biopsy he or she is going to perform?
I'm curious, becasue remember the lump on my neck I told you that came back?
well I went to my family dr for a routine ck up last evening after work and I had him palpate the lump again. this time he see's it's gotten larger.
he is referring me to an ENT doctor to needle biopsy it.
he said there's no sense to order an MRI or CT scan to see the lump because he feels there's a lump and the scans can't tell whether it's malignant or not, only a biopsy can. so he's suggesting a needle biopsy for me. I dont' want a needle biopsy because thru speaking with alot of people at a lymphoma board, they all say do not get the needle biopsy because it can miss cells. it only takes out the core of what the needle took out. it can miss the surrounding tissue that may have bad cells in it, therefore giving a mis- diagnosis.
how large would you say your lump is?
can you move it when you palpate it?
I wish you good luck on monday. please keep us informed.
sincerely,
linda
A CT scan is worth getting. I was on the road to biopsy and my doctor ordered a CT scan. Thank goodness I got it. I took the films to the ent dr and it diagnosed my problem. My lump was my submandibular gland that produces saliva. It was not blocked by a stone but only inflamed. She said I don't even have to return. I was told to massage it every day and drink lots of water which I've been doing. I can hardly feel it now. Hope you have a good outcome too!
Hi lintek I am having a excisional biopsy. My dr said that the lump needs to come out. The lump is on the left side of my neck in about a size of a grape I would say.....another lump is a little lower than that one and it is about a pea size......my other lymph nodes on the other side of my neck are swollen but not sticking out like this one.....I did my pre op today and I am all set for the surgery on Monday. I will keep everyone posted....Thank you all so much for being here for me it has meant so much to me
How are you feeling Hillbilly?
are you in any pain?
Friday is almost here. I'm sure you're anxious. just keep yourself busy with work or hobbies you might like to do.
good thoughts are being sent your way from all of us.
sincerely,
L.
actually i am doing pretty good. Not much pain just certain ways I move my neck it hurts. I am just so so so tired I feel like I just want to sleep and sleep and sleep......Well I will let yall know about the results when I get them on Friday... Take care everyone ..........xoxoxox Diane (Hillbilly)
hey Diane,
today's the DAY!!!
I'm sure the week dragged for you but now you can finally get your answer.
you will be tired because you're body is under alot of stress right now. believe or not, emotional stress can wipe you out!
it's what weakens the immune system too.
I felt my lump this morning and it's huge and I'm getting alittle scared myself. maybe it's time for me too to go and just get this over with.
you are giving me the motivation and this is what I need.
please let us know what the outcome is if you have time and if you feel up to posting.
I'm with you in spirit and mind. good luck.
sincerely,
linda
ps- what time does the office open? do you have to call them? or is your dr supposed to call you?
Waiting for surgeons appt for biopsy 
Linda
