Well, I am still very worried about these nodes in my neck an groin and now have some leg swelling. I've been told the nodes feel "normal" whatever that means, but I can't stop worrying. One surgeon told me that he would biopsy the one in the groin, just to make me feel better,but i'm not sure I want to do something so drastic for peace of mind.
I was wondering if a pelvic CT scan would be helpful in showing if there are enlarged nodes/areas that can't be felt, that may be causing leg swelling. Any info or experiences would be greatly appreciated!!
Thanks for your reply. Yes, I've had several opinons, but the ones that they can feel are not worrisome to any of them. I'm just worried that there are some that can't be felt that may be enlarged causing my leg to swell. I'm only 28, and I know it is rare at this age to have NHL, but I'm so worried that they might be missing it! So why do they have to keep an eye on yours, and what prompted the scan in the first place?
Where do you live? I live in AZ and I was lucky enough to find a surgeon that would do an excisional biopsy of a small lymph node I had. He wasn't real worried about it, but he understood how worried I was so he did it. It came back as just a benign lymph node.
I have a surgical oncologist that will biopsy my groin lymph node, but being the worrier I am, even of it that one came back negative, i would still worry about other ones. That's why I'm wondering if it makes more sense to do a CT Scan first to check for other enlarged nodes that you can't feel. Where was your node and how big was it? I have two very small on the right side of my neck that the onc. said he would absolutely not touch because they feel fine.
My lymph node was on the right side of my neck, and wasn't even half of a centimeter--but I panic about my health a lot so it freaked me out--I don't like lumps or bumps where they shouldn't be ya know?
My advice to you.......since you are worrying so much about it (just like I did)--if he is willing to do the biopsy of the one in your groin--go for it--it would sure give you peace of mind ya know? Peace of mind is priceless
My lymph node was maybe half a centimeter. I think it had been there for awhile, but I also haven't been feeling well for a long time--have a diagnosis of fibromalgia and chronic fatigue. I just wouldn't take no for an answer b/c I wasn't getting any sleep at night and was crying all the time thinking of the worst. It wasn't thank goodness, but if an odd lump or bump pops up again and stays there...I wouldn't hesitate having a biopsy again. I do have some health anxiety, so I may be a bit drastic--but it did put my mind at ease.
Well, I talked to my doctor and she talked to the other doctor that I've also seen at the practice, and they don't recommend that I get a CT Scan. I guess I should trust them? She said she's not worried about my leg swelling, it doesn't look like swelling to her, just a difference in muscle. I do trust her and I know she wants to help me stop worrying. I had blood work done about 2 months ago and it was all normal, but she said if it would make me feel better I could do that again. Although I know Lymphoma doesn't show in blood, are there ever any abnormalities in it if you have lymphoma?? Thanks!
Last edited by confused78; 09-13-2007 at 06:38 AM.
If it makes you feel better to have the CT then I think you should get it. I don't think anything is serious, that is not what I am saying but it would put your mind at ease and let you know that it is nothing serious. God forbid it is something, well it is caught early. Give your leg through the weekend and if it is not getting better maybe call the doc again.?
No, the node hasn't grown and it's on the opposite side of the "swollen" leg. My doctor did a thorough examination of my legs and thinks it's just muscle, not swollen. I feel like if she was worried about anything, she would want me to have a scan or biopsy.
The anxiety is worse than brutal and you could not be more correct when you said that we are our own worse enemies. I have been living in my own hell for 1 1/2 years now. It controls my emotions, thoughts and plans. I guess when it comes down to it I just want to [B]KNOW [B]if I have cancer. The time game is not fun!