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Old 09-24-2007, 04:28 PM   #1
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How long can Lymphoma go undetected?

How long can Lymphoma go undetected? I don't know what is going on with me, but my symptoms seem to me to point to Lymphoma. It started a year ago with really low fever (100 degrees max) that came and went for several weeks, chest pain, fatigue that made it hard to do anything, and a lump that popped up in my groin. I also have several other swollen nodes in my groin, neck and armpits that have been there for years I think, never thought much of them.

I felt good all summer for the most part, then 5 weeks ago I started feeling bad again with the fatigue and chest pain. I checked out my lumps and they were all still there and not any smaller, including the big one that popped up overnight last year. My temp was running higher when I took it (99+) and I have had night sweats every night for a month, bad enough that I started putting deodorant on my back because my pajamas were soaked on my back. I weigh about 10 pounds less this year (125 and I'm 5'8"). I also have a little cyst thing that pops up right above my belly button every now and then. It's really hard, gp thinks it's just scar tissue (I guess from pregnancy?)

In February I had cat scans from neck to pelvis and the only thing they told me was I had "shotty" nodes. Oncologist was stumped and said to call if there were any node changes, otherwise he didn't think it was lymphoma I guess. He may have said if it was low grade there would be no treatment to do right away anyhow, but I could be remembering this wrong.

I'm tired of being treated like a hypochondriac. After my last visit I swore I wasn't going back to the doctor unless I was dying. But here I am again wanting answers. I hate feeling bad and not knowing why. Maybe I can feel all those nodes because I'm skinny, the ones in my groin I can actually see and that's how I noticed the newest addition to my swollen node family. Is it normal to be able to see them if you're skinny? I've also noticed the ones in my neck get smaller and bigger for no particular reason, but they never go away.

Thanks for reading this and letting me vent!

Michelle

 
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Old 09-25-2007, 07:54 AM   #2
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Re: How long can Lymphoma go undetected?

Hi Michelle,
I've been here seeking answers, since I was diagnosed with Hodgkin's in May. This is a wonderful forum.
Maybe you should seek a 2nd opinion.
I was one of the lucky one's, and was happy with my Oncologist, from the get-go, but had I not been---I would certainly get a 2nd opinion.
I know sometimes a diagnosis is difficult, especially for lymphoma.
I had a very visible lump appear--I guess I was "lucky" in that respect.
Keep seeking answers. Running a low-grade fever like that, obviously means something is not right.
I wish I could help more. Good luck. Even if it "is" lymphoma, it's very treatable, these days.
Singer

Last edited by singer78; 09-25-2007 at 08:02 AM.

 
Old 09-25-2007, 08:38 AM   #3
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Re: How long can Lymphoma go undetected?

Hi Singer - thanks for your reply.

I'm waiting to hear from my gp today. I also have little red bumps on my chest that are itchy which I had the last time I was feeling this way, and my ankles have been itching really bad. I didn't think anything about it but I just read that that can be a symptom, too.

The oncologist told me in February that the nodes in my neck wouldn't be that big in a healthy person, so I'm wondering who I'm supposed to go to about this because he didn't think we should do a biopsy at the time. My gp suggested an infectious disease doctor so that might be my next move. I just think that I have so many lymphoma-like symptoms. But then I have these times of feeling good so I don't do anything about it.

I saw your other post and wish you luck and hope you're in remission. I like this forum, too. It's good to be able to bounce things off others who know more than I do. Take care

Michelle

 
Old 09-25-2007, 08:47 AM   #4
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Re: How long can Lymphoma go undetected?

Sandpuff,

How large are the nodes in your neck? Are they over 1 cm?

Deb

 
Old 09-25-2007, 09:35 AM   #5
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Re: How long can Lymphoma go undetected?

The size is not really a factor. The only way to find out for sure is to have a node biopsied. To put your mind at rest, that might be the best way.

Hope you find answers soon.
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Husband dx July 2003, advanced rectal cancer stage 111C; myself dx July 2006 indolent lymphoma; husband dx February 2010, stage 2 prostate cancer.

 
Old 09-25-2007, 09:35 AM   #6
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Re: How long can Lymphoma go undetected?

The largest one is about 2 1/2 centimeters if I'm measuring right. It's the one the oncologist paid the most attention to when I was there in February. It starts under my jaw and extends down my neck. It's pretty hard and doesn't move around. It's on my left. There are 2 on my right side and they're probably about 1 1/2 centimeters. They're all a lot longer than they are wide (oval shaped).

 
Old 09-25-2007, 09:53 AM   #7
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Re: How long can Lymphoma go undetected?

Sandpuff,

You need a biopsy. it is the only way to know what is going on.

Deb

 
Old 09-26-2007, 06:22 AM   #8
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Re: How long can Lymphoma go undetected?

hey I feel like you do if that helps any. I also have had enlarged lymph nodes (except mine are in my neck) for almost 4 years now. And I'm always fatigued and weak, I have chest pain and tightness there, chronic infections with high fevers, itchy legs, sweatiness(except mine isn't that bad), upper back pain, headaches,and sometimes stomach pain that radiates into my chest. I also feel like everyone thinks I'm just being a hypochondriac. I'm going to get my ct results today and I'm worried that nothing is going to show warranting the docors any concern. But I'm prepared for that and I am going to get a second opinion regardless. I think that's what you need to do. My belief is that it is never normal to have enlarged lymph nodes that just don't go away, especially if they are on the bigger side and don't move, wether it's cancer or if it's an autoimmune disorder. hope I've helped.

 
Old 09-26-2007, 07:00 AM   #9
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Re: How long can Lymphoma go undetected?

Hi Desperado - I know the feeling of wanting them to find something. I know some people wonder why you would want something bad to be discovered, but it's just so hard to feel bad and not know why, especially when you're paying for a bunch of costly tests. To find out nothing after going through all that is a miserable feeling. That's where I was at in February. I had cat scans and nothing alarming showed up so they sent me home with no answers.

Let me know what you find out today. I'll be thinking of you. You sound like you have the right attitude. I always end up beating myself up for going to the doctor, especially when I start feeling better.

Just know that you aren't a hypochondriac. I've heard of people that actually pass away before doctors find out what's wrong with them. Doctors definitely don't know everything, and the good ones will admit that.

Michelle

 
Old 10-04-2007, 05:01 PM   #10
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Re: How long can Lymphoma go undetected?

you're right doctors don't always know everything. I went to see a general surgeon yesterday who is also a breast cancer specialist. He told me he wants to do the lymph node biospy that I wanted. I am scheduled for it on Oct.19th at 8:30. But it feels like an eternity away. And he did feel the really big lymph node I have on the back of my neck which again frustrates me because the doctor who read my ct scans is either an idiot or lazy and looked at it quickly. It's the only explanation I could think of for my ct scans being "normal" when clearly there is something going on with me! Anyway I hope you also find what it is your looking for. Good luck.

 
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Old 10-19-2007, 05:52 AM   #11
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Lightbulb Re: How long can Lymphoma go undetected?

hi there, my brother had raised nodes about 6 years ago and the dr said it was only a raised lymph note so he left it ,,, for the 6 years,typacle male.. well it grew in size on his fore arm to the size of a grapefruit.. you think if it was growing you would get a second oppinion... any way he has started chemo and in the first 3 days the lump got smaller very quickly we could not believe how rapidly it went.. now his lump is flat with a bit of a divit in his arm ... amazing... he is still going through chemo and hopefully he will be finished by christmas.. he is only 35, but now he is gonna check any lump and get it checked... take care..... tania-michelle

 
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