mcelroy21

Hi, I am freaking out--tomorrow I get my PET scan and then I have to wait a whole week before I see my onc. I'm about 1.5 years out from NHL Large B-cell with the chemo/radiation. The problem for me is that every three or four months I have the scan and then I am told I have an "area of concern". Last scan it was my neck/thyroid area. The scan prior to that was my abdomen--glowing lymph nodes--before that, more glowing lymph nodes in my neck where the cancer infested lymph nodes started from originally. All areas have been biopsied and all were negative! Great news for ME--questions for my doctors? My onc says I am the first false positive that they have had. I am totally okay with the false positives and the doctors are not carving on me anymore to get the tissue samples as all have been negative--so I guess this means they now believe I DO have false positives. I put a post here a few days ago and it was looked at but not responded to. Is a false positive PET scan that rare? I really would like to know if anyone has had any false positive PET scans. Being told every four months that your cancer has reocurred and "lets think about getting you ready for the stem cell transplant" which translates to a week long drip given to me in the hospital---is really quite stressful. And it gets a bit worse everytime. My concentration goes, cannot focus long enough to complete a sentence, and cry over nothing..........Then, when I get the good news from my onc that they will not go in and get a sample of whatever it is-- it takes me about two weeks to decompress......and return to my normal functioning. Anxiety is just terrible-