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Old 10-22-2007, 07:18 AM   #1
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stacey28 HB User
Question enlaeging lymph node in neck unwell

Hi
ive been ill for two months now starting with extreme dizziness, chest/back pain, fatigue etc. Brain ct/mri neg bloods (CBC, ESR, CRP etc) negative at start of illness; doctors conclusion anxiety!?!! I noticed my glands up on one side of my neck but figured that was normal as i was ill.

I was not happy that the doctor diagnosed anxiety and the dizziness persisted so he did an ENT referral for the dizziness. I have the appointment in two weeks but last week felt my neck and one of the enlarged glands has grown to double the size! I am aware what they describe as normal/abnormal feel of nodes but mine is questionable. It is not 'stony' hard but certainly firm, perhaps 'rubbery', not sure if particularly moveable feels about 2cm. Not painful, no ear infection or sore throat.

The last four days i have had a numb chin and bottom half of face, like i have had a local anaesthetic at dentist, still dizziness, fatigue, generally unwell. Went to doctor today in case they wanted to repeat blood test or maybe scan the neck prior to ENT appt (also as the referral was for dizziness not the nodes), crabby old fart of a doctor who said 'yes you do have a thickness there, oh i see you have a spot or two and some acne scarring on your chin i will prescribe some antbiotics, but its probably to do with your acne'!!

I have had bad skin for 12 years(also now is best it has ever been so not nice of him to comment that i had one spot on my chin!) but have never had enlarging lymph nodes. He said wait and see the ENT! I am very worried now i have been poorly for a while and everyone saying it is in my head. I know anxiety can cause a lot of symptoms but come on i must be bloody good if i can make my lymph node swell! And take antibiotics? with no sign of infection?! not sure on this.

Anyway sorry so long, appreciate any words of advice or support, have read through a lot of the threads you seem a great bunch of people.

xx

 
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Old 10-22-2007, 04:13 PM   #2
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mojorisin29 HB User
Re: enlaeging lymph node in neck unwell

Hi,

As a fellow sufferer of anxiety i can understand what you are going though. Anxiety and (usually underlying) depression can manifest itself in countless ways, light headedness and dizziness are common, and believe it or not, lymph node swellings can be depression related.

I can't say what it is you have, if its not anxiety related as am no expert but i can say that you need to try and relax. Don't get too worried until you've seen the ENT specialist, worrying will just make your anxiety worse. Jumping to conclusions of Lymphoma will unnecessarily make you anxious.

People will say these things are in your head, I get it all the time. I just ignore them, they're not being nasty, they are concerned but just can't relate to an anxiety problem. I don't think I could truly empathise with an anxiety problem until i started experiencing GAD. Take a step back and a deep breath and try to keep calm until you see Mr ENT. Be realistic at all times, lymphoma if thats what it is (which is very very unlikely as you don't have any "classic" symptoms) is a very cureable disease, we're living in the best time to get treated for cancer in human history and its getting better every day. But like i say thats a very very unlikely possibility.

Don't beat yourself up over something you cannot possibly diagnose on your own on the internet.
Good Luck.

Last edited by mojorisin29; 10-22-2007 at 04:20 PM.

 
Old 10-23-2007, 07:18 AM   #3
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Re: enlaeging lymph node in neck unwell

Stacy,
it's normal to be nervous when a person finds a swollen lymph node.
and lymphoma's don't always have symtoms. people who DO have symtoms are called B symptoms. hodgkins lymphoma's usually have symtoms, but the 30 other different types of non hodgkin lymphoma's can be symptom free.
I've met so many people on line with lymphoma's and ALOT of them did not have any symptoms and all of their blood work were normal too.
you can not rely on blood work to detect lymphoma's.
Only a biopsy can know for sure.

stress and anxiety can make a person feel that they have a terminal illness,.
people with GAD which stands for general anxiety disorder is a physical illness and not just a mental health problem.
it causes really problems in the body and can make a person sick.
they feel more pain than others and are more sensitive to stimuli than others, there fore they feel more aches and pains and because the mind is constantly worrying about things, which can raise the blood pressure and put the body in a constant fight or flight response, where the adrenaline is always running on high, can really injure the body's system.

it's hard not to be offended when you go to multiple drs' who can't find anything wrong and yet the person who's sick know's they're sick and the dr's don't have a diagnosis that jumps right out at them, so they label it "stress".

you hire the dr's, so if you feel they're not helping you and if they're just making you feel like you're a hypochondriac because you're a woman, by all means find a new doctor.
you hire the doctor, they don't hire us. we pay for their services so have all the right to find another dr who will listen to us and not make us feel like we're crazy.
it's your body and you know you're body best. you are your best advocate and no one else is.
there's been so many mis diagnoses because doctors tell patients, "oh it's nothing' don't worry, or "its' just a cyst" or "lymphoma's are very rare.
lymphoma's are not rare like they used to be and there is an increase double fold in this country. for non hodgkins lymphoma's. there's less hodgkins.
they dont' know exactly why there's such an increase either.
they're doing studies on it and have learned alot in such a short amount of time.

also, the protocol, the first step after they find a lump is first send the patient to an ENT, depending on where the lump is, and then the next thing they do is put the person on an antibiotic to see if there's an infection going on. They also do a cat scan or MRI and THEN if the lump has not gone down after the antibiotic treatment, then they consider doing a biopsy.

malignant nodes don't have to be huge to be malignant. any node over 1cm size can be. dr's become concerned over lymphnode size when they're over 1cm.
normally scans aren't able to detect 1cm size lymphnodes, so if they're detectable on the scan, then usually they're larger than 1cm.

also, very thin people can feel their nodes better than others. you can feel them mostly in the neck, the underarms and groin.
it's common in thin people to feel them there.

I wish you the best outcome and understand how horrible you're feeling. I too am feeling sick and have for quite sometime. and I too have GAD like the other person. I've been on medication for it now for 3 years and it's not true that depression can cause your nodes to swell. I've never ever heard that or read that anywhere.
you should be careful though what you read on the internet because it can scare the living day lights out of you.
it will only make you feel worst. so try not to read too much about lymphoma's until you're diagnosed with it.

I do it too, so I know.

best wishes,

Linda

 
Old 10-23-2007, 02:40 PM   #4
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Re: enlaeging lymph node in neck unwell

Thank you both very much for your replies, it is reassuring to hear from fellow anxiety sufferers. I admit that i responded to being ill by surfing the net and thinking i had everything under the sun, perhaps it was me willing myself to find something. But the node is definately there but i will certainly take the antibiotic and wait to see the ENT.

Oh and try not to worry in the meantime!

It is hard especially with friends and family thinking it is all in your head but i guess it is a hard thing for others to understand. If there is nothing pathologically wrong i think i will get help for the anxiety.

I really appreciate your responses

 
Old 10-24-2007, 06:36 AM   #5
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Re: enlaeging lymph node in neck unwell

Stacey,
I finally went to an ENT the day before yesterday and they got the authorization immediately for me to get a CT scan performed. usually it takes the insurance companies so long to give approval to the dr's office.
I did tell them my insurance is running out at the end of this month which helped push this fast.
I wound up having the CT scan the next day which was yesterday.
they did it WITH contrast and WITHOUT contrast.
I told the ENT that this lump is huge on certain days and other days less swollen but still palpable. he agreed that this can happen.
he numbed my throat and nose and put a lighted tube down it. only on the left side though. he didn't go all the way down on the right side where the lump is.

he said he definetely feels a mass, (duh!) that's what I went there for.

It just so happened the time I went to him was at a time the node wasn't in it's huge state, so I was alittle worried he might have thought I was being a "pain in the neck woman who over reacts about the slightest things"
I say this mockingly because we both know that's the way we've been treated in the course of our illnesses.

I almost felt like he was summing me up at times trying to see what type of person I am and whether he should take my worries seriously or not.
I didn't care for him very much. He was not warm in his greeting, nor during our session. I hope his expertise is better than his personality is.
but then again, I"m not there to socialize, but I'm there for buisness. right?

anyway, the test is over and I go back to see him tomorrow for the results.
he said if it winds up being a lymphoma that it won't be enough time to get all the testing done by the end of the month.
at least we got the intial step over with and whether to see if it requires a biopsy or not.
I'd feel alot better getting a biopsy and I told him also that I do NOT want a needle biopsy, but an excisional. I may not even need it, who knows?

I also had an apptn right after the CT scan to see a rheumatologist to see me for some problems I'm having and I finally got an answer to the pain I've been suffering for 3 yrs. I have fibromyalgia ontop of having my arthritis and osteo. so the pain is real and is NOT just in my head like most people treated patients who had an undiagnosed fibromyalgia.
it's a chronic condition and is very painful. they can't cure it and they don't know what causes it. the good thing is they have finally agreed that it's NOT in the persons head and it is a very real thing.
I FINALLY am going to feel good again stacey and I can't tell you how happy I am to know I'm going to feel good and be able to do things I used to do before without suffering pain anymore.
I'm beginning to think now maybe my lymph node is swollen due to the fibromyalgia and i forgot to ask the rheumy dr if this can be associated with it?

so things are looking up for me and I"m getting ready to go for a job interview today, which hopefully I"m hired and hopefully now I can keep a job and not miss so much work due to my health not being well, because now they can treat it.

to have anxiety is normal by the way. do you know how many people suffer with anxiety this day and age? it's a wonder we all don't have it to some degree. all the expectations that are demanded of us in our jobs, at home, and by others is enough to make our blood pressure soar.

so hand in there sweety and I can't wait till you finally get to see the ENT.
I forgot. do you already have a date set up to one?


Linda

 
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