CC, hope you're well...(& a little about me.....) - Lymphomas Message Board

singer78 · 11-14-2007, 06:45 PM

Hi.
I'm so glad to hear from you, CC.
And that's wonderful about your bloodwork.
I guess it's a double-edged sword, that you can start chemo on Friday--but, think of it as "killing the beast."
When I went to my psychologist Monday, she told me she wished that I'd come to her before I started radiation. She said she had a "relaxation tape" that would help you imagine the rays of radiation as "soothing, healing rays." I, on the other hand, would shudder when the door would close, and they hit "the button" that goes "bzzzzz..." I needed to do better imagery. I jumped almost every time it went off.
Anyway...if you can imagine how the chemo is doing your body "good,"---that's a good thing. It's your friend, not your enemy.

Yes, the holidays can be rough, when loved one's are gone & especially when your health is not up-to-par. Just think of how great it will be next year!
We'll both make up for lost time!
I don't know about you--but, I think there's always room for turkey & dressing. I even eat it during the summertime at Bob Evan's. Turkey's good protein, you know.

I started a new thread, because the last one was being temperamental.
Sometimes it was there...other time's not.
Hopefully, this one will be better.

love, S.

CancerChick · 11-15-2007, 12:49 PM

Hi Singer,

I've been busy keeping myself busy. I've been on a cleaning frenzy and cleaning out my pantry, my oven and frig. I've got everything all sparkling clean and it smells so good in here even though it's so miserable out. Are you getting the nasty whether like we are? It's so raw and damp.

I too am sorry that you didn't get those tapes before you started radiation. I know how nervous you were about the whole thing. If I ever get that far, I'll remember the buzz.

Yes I hope next year is better for both of us. I'm sure you'll be dancing in the streets Singer. I'm dreading the holidays this year but there are some activities at the cancer center I just might go to.

I found out some more about what's going to happen the next few days. All I can say it's a good thing I have this port in or else I'd be a human pin cushion. First day I get the dreaded Ritauxin and an infusion of etoposide for an hour. On day two the etoposide is repeated and I also get a 60 min infusion of carboplatin and start a 24 hr infusion of ifosfamide and mesna. The mesna is given to protect my bladder and kidneys. Then on day 3 I get another infusion of etoposide over and hour and finish the 24 hr infusion of ifosfamide with mesna. And finally a 12hr infusion of mesna alone and treatment #1 is over. If all goes well I should be home sometime Sunday evening.

I miss my kitty already

Back to more cleaning. I have to do this while I'm feeling good. I don't mind cleaning at all. I'm a neat freak.

I hope you're having a good day Singer and Linda, as always, the prayers haven't stopped for Don.

Hugs,

LINDA505 · 11-15-2007, 05:16 PM

CC. sounds like you are going to be on a whirlwind of treatment but it is so good that you know what to expect and you will be in the hosp. That is so good to keep yourself busy and cleaning is always a good what to accomplish both things. I am glad that you sound strong. You can do this.

Singer and CC:

I talked with my sister in law today and the news is not good. Don is bleeding to death and now the blood is coming out of his eyes even. I do not understand how it could come to this. It was a very stressful conversation as she is looking to me to help guide her in stopping the respirator. They have one more test tomorrow that will show if he has any of her stem cells working and if not than he will come off the respirator. I will support her decision on this as I can not bear to think of him living (if you call that living) on a respirator. There is no quality of life in that. I do not understand how he is still here but she does not want to give out on this last hope nor do I. If he is not making any platelets I find it hard to think that the transplant will work at this point. My heart is heavy with this so much so it is hard to think straight. They will go to my father and tell him together . He knows something is not right but is afraid to ask to many questions. My heart aches for him as they worked together for years and had a close father/son relationship. Even though they fussed with one another they had
alot of love for one another. Well that is the story and I do not foresee it coming to a good conclusion based on what my sister in law is saying. I will still accept all your prayers for him and maybe God will perform a miracle. If not the miracle should be that he goes in peace to his Maker. Thank you all for your support and friendship through these trying times.

Love
Linda

marnb77 · 11-15-2007, 05:59 PM

Hi Linda, (and others)
I hate to barge in on your thread, but I am freaking out a bit here. I have had a hive looking lump on my left breast since september. It sometimes itches and i wasn't worried because I figured it was nothing. I just went to my dermatologist today and he took a biopsy of it and wouldn't tell me what he thought it was. He didn't have the best bedside manner and I am sitting here crying thinking the worst and thinking I have lymphoma.
I feel so selfish sitting here asking for your advice, when you are all going through so much with your own health, but I have read everything you have wrote to Singer and CC, and you just have such a calming way about you and you seem so knowledgeable. I was just wondering if you could tell me what this sounds like.
Again, I am so sorry to barge in on you guys thread.
Singer, and CC i pray for you guys everyday. I really don't know how you do it. I have had a close family friend survive stage 4 lymphoma and i know you guys will beat this nasty beast.
I just have no one to turn to and i feel so lost.
I am sorry if i am rambling. I am just so terribly nervous. Also have very bad anxiety, that i have been trying to maintain my whole life.
Linda- i have been following your posts about Don. Please know that you and him are in my prayers. I am so so sorry to hear the latest news.

CancerChick · 11-15-2007, 07:42 PM

Linda my heart aches for you right now. I'm not good at words in this type of situation but you and Don have been such an inspiration to me. I can see the love that you two have for each other and I so wish the outcome was better. He's been through so much and been fighting this beast for so long and now to hear this. I wish I could think what to say Linda but please know that I won't stop praying. I do believe in miracles and if that's what it takes we have to keep praying for that.

Hi Mar. Please don't ever think you are intruding. This forum is for asking and sharing and we're all here together. I'm sorry I don't know the answer, I'm just learning about all this myself, but if Linda is able to I'm sure she'll have an answer for you. She's so full of knowledge about this being a nurse and I can't say how many times she's calmed me down with her words.

And please don't feel selfish asking about this. It's your body and of course you're worried. And don't ever feel alone. I hope you can feel the bonds that we've made here. Everyone is so kind and caring and we'd love to have you join in and ask away.