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Old 01-24-2008, 04:17 PM   #1
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Definitely not lymphoma?

This past year I've had some severe acid reflux problems. Endoscopy
confirmed the reflux esophagitis and the hiatal hernia presumed to
be responsible for it. But, before this diagnosis when I was having
trouble swallowing and they didn't know what it was, I had a neck
CT scan which showed:

* Swollen left tonsil
* Swollen left base of tongue
* Some swollen cervical lymph nodes, but they were described as being
"not pathologically enlarged". Jugular and bigastric lymph nodes
were described as not enlarged.

My Dr. said he wasn't worried about those, but should I be concerned?
It's conceivable these could be caused by acid reflux. I haven't had
any fever or night sweats. There were no problems with my blood tests.
My arms are itchy, but I think that's possibly because of dry skin (my
scalp is itchy, but that's seborrhea!). I haven't noticed any swelling
in my neck, arms or groin, but I'm not really sure what I'm looking for.
Would I definitely notice if I had swollen lymph nodes in any of those
places? Does lymphoma always have fever and night sweats?
I've been losing weight slowly over the past 9 months (~30 lbs.) but
that might be explain by my eating less on account of the reflux.

Just wondering if I should be paranoid about this or if concern
about lymphoma is uncalled for.

 
Old 01-25-2008, 08:33 AM   #2
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Re: Definitely not lymphoma?

Only a biopsy of a lymph node would definitely rule out lymphoma. But, have you been fatigued at all? I am not talking about not getting enough sleep one night and being tired the next day. Have you felt a lack of energy daily where you can look back and compare it to how you use to feel?

Deb

 
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Old 01-25-2008, 12:33 PM   #3
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Re: Definitely not lymphoma?

Well, I've lost a lot of weight. I'm 6' tall and currently
weight 135 lbs. so I have less energy than I used to. But if
you mean lack or energy like when I had mononucleosis (EBV)
when I was in college, then no. I'm definitely not experiencing
mononucleosis-type fatigue.

Is that type of fatigue always present? I've read some symptoms
lists for lymphoma on the web and they always say, "the following
symptoms MAY be present". I'm not sure which are essential
symptoms or which are optional. My family-practice doctor told
me not to be concerned, but I'm just trying to make sure.

Mark.

 
Old 01-25-2008, 01:59 PM   #4
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Re: Definitely not lymphoma?

You always hear how fatigued someone feels with lymphoma. The weight loss seems pretty signifigant. Is your doctor concerned with this at all?

 
Old 01-25-2008, 05:13 PM   #5
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Re: Definitely not lymphoma?

I was diagnosed as having acid reflux. I've had acid reflux
problems for many years, but nothing like I've had in the last
year. The gastroenterologist thinks the recent onset of severe
symptoms is "functional", meaning he thinks it's caused by
stress or depression. I asked for a second opinion and am
seeing a reflux specialist at Stanford in a month. As far as
my doctor and gastroenterologist are concerned, I have stress-related
reflux. Yes, they are concerned about the weight loss, but I
do have a severe digestive problem that might explain that.
I have asked both doctors directly if they were sure I did
not have any sort of cancer. I was told that they believe
they have ruled that out and that cancer is very unlikely at
this point (they were not as optimistic earlier in the year).

The enlarged lymph nodes that showed up on the CT scan have
not been biopsied. I was told they were not big enough for
concern. I'm just trying to share their optimism buy getting
a feel for how lymphoma really presents itself.

Part of my concern is because a friend's brother in law died
of lymphoma because he was misdiagnosed by his gastroenterologist
and, subsequently, didn't get the help he needed in time.


Mark.

 
Old 01-26-2008, 02:53 PM   #6
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Re: Definitely not lymphoma?

I sure can understand your concern. At this point I would wait to see what the reflux specialist diagnosis is. You obviously do not present severe symptoms and what you are describing could be related to many things. Do not hesitate to voice all concerns with the specialist and request any testing you feel necessary. One complaint I have heard all to often is that the doctors wrote off symptoms due to stress. You know your body the best and most of the time you are the one who has to fight for necessary testing.
I wish you the best and please post when you find out more.

Take care!

Deb

 
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