Just wondering... - Lymphomas Message Board

singer78 · 06-28-2008, 09:50 AM

Hi.
This is Singer.
I haven't been on here a lot (which is good, actually) because it seems like a whirlwind of activity has landed on me.
I didn't think I could handle it, after chemo & radiation---and the worrying, of course...But, somehow I've managed to forge forward and enjoy life.
I'm finding myself pushing myself to "the limits," which is probably making me a little stronger each day.
I just wanted to tell all my supporters that I used to talk to (on a regular basis) "Hello," and I hope everyone is enjoying the summer. (It's not in Australia, though, right?)
I have a "biggie" test coming up, the end of July---and I'm trying desperately not to worry. It's just like during chemo---"one step in front of the other..."

Amanda, I know you're having a rough time. I hope you find some peace. Every situation is different. I've found by being extremely busy, it's helping so much--when, before, I couldn't even drag myself off the couch.

Don't get me wrong...this is still not easy. Sometimes, my back hurts so bad, I don't think I can even walk. I think I manifest my nervousness there.

I'd love to hear from my friends, if even just to say, "hello," and how you're doing.

What a journey this has all been...and what lessons I've learned and am STILL learning.

God Bless.

Singer

Bofonic · 06-30-2008, 03:57 PM

Hello Singer

I'm glad to hear you are doing well! Keep pushing yourself you're seizing life with every moment!

LINDA505 · 07-05-2008, 08:59 AM

Hello Singer,
So glad that you are getting somewhat back to a normal life. You will get there. You have gone through the storm and on the other side is the rainbow. Good luck with your scan this month. Let us know.

Love
Linda

singer78 · 07-07-2008, 08:32 PM

whew. I was getting worried I'd lost my friends.
It's so nice to hear from you 2.
I'm in the middle of a break (a few days)...then, back on the road for awhile.

I came home to get my port flushed, and had a concern...
I think it's the culmination of "resuming" a normal life. I started again with a low-grade fever and aches everywhere. So, today, my chemo nurse told me to switch from Tylenol (which I surmise I must've take close to 1,000 throughout the last year during treatment and thereafter) to Advil.
It's like a miracle! I think I've built up a resistance to that drug. Is that possible?

It's sooooo wonderful going back to "life," although I just don't have my strength built up. I'm assuming they're right, when they say it takes a year, before you really feel "good."

I'm starting to freak a little about the scan coming up. It's best for me to stay as busy as possible, if I can. It's when things get quiet, that I start obsessing.

It's so nice to hear from you both.
I was thinking and talking about Kayla (Cancerchick) today. My heart breaks, when I think about how difficult it was for her, without her beloved mother & not much support. She's really been on my mind. She's such a sweet spirit. I miss her.
It's been months since we've talked, but I'm not giving up hope.
I hope to come on here someday, and see an email from her.....
What wonderful news that would be!

In the meantime, you guys take care & thank you for responding.
Enjoy the summer. Soak up the sun, (as Sheryl Crow says)....

Love, S.

LINDA505 · 07-08-2008, 02:17 PM

Hey Singer,
Glad that you are resuming your life and moving on. I am sure that each scan you will always be nervous. I know I would be. You will do fine. Each yr that goes by the threat of it coming back gets less and less.

Yes, I was thinking about Kayla as well and always wondered if she just shut down from it all and needed to get a bone marrow transplant. The process is daunting and alot of people just don't want to talk about it.

We have been fine here. I do not like summer but so far it has not been so bad. We have done some nice day trips and have been having some fun. We are still debating if we are making the trip to Fla, the end of this month.
We probably will. Ugh. I would like to see my Dad though.

My daughter and her hubby are going to Europe in Sept. They are flying to Paris and then from there going to Florence, Venice and Rome for a total of
2weeks. They are very excited. I am for them as well but I get nervous.
He just bought another motorcycle and my daughter is riding on it with him and that makes me real nervous. I hate it and am still alittle upset that she is doing it. I have had bad experiences in my young married life with my hubby riding bikes. What can I do though they are adults.

Glad to see that your working. I am sure that you build a resistance to Tylenol or any kind of medication taken for long periods. It can elevate your liver enzymes so maybe it is better to lay off it for awhile anyway.

Did anyone ever do anything about your iron levels (ferritin)? It was such an issue for them to be swept under the rug and not do anything.

Well it is good to hear from you.

Take care and keep in touch
Love
Linda