scott49

I was diagnosed w/follicular nhl on 3/15/05. At the time i was diagnosed i was stage 4/grade 4. Went to duke for second opinion and was confirmed although they think i was stage 3. Have been thru many treatments all were tollerated well with little to no side effects. Cvp w/rotuximab was my choice rather than chop or rice which is what my onc recommended. I was lucky to have found someone in my area who had been dealing with follicular nhl for almost 11 years at that time. She has passed on this year making it 14 years from the time she was diagnosed. Her message to me was to try to live a good quality of life without using the hard chemo, which is what she did, and is what i've been doing as well. So although our cancer is considered terminal it doesn't mean your will die tommorrow. I've just gone thru a new treatment called zevilan r90. No side effects but very expensive rotuximab w/high dose radiation. Has put me in remission or as my onc calls it maintained for up to 6 years without any more chemo.