Re: newly diagnosed with lymphoma
welcome to the forum. I am sorry to hear about your situation. It is really difficult not to give up hope. I know a lot of people believe you must be positive all of the time, and that is what works for them. But at times, this stuff does overwhelm you, and you just have to sit back and say this all really sucks!!
I followed most of your post, but I am less familiar with the role of PET. This is because I am in the U.K., where PET scanners are still quite rare, and I have never been treated in a centre that has one. I take it that the diagnosis of lymphoma is based primarily on the fact that your nodes and spleen are lighting up on the scan? As Amanda says, they really need to get some affected tissue under a microscope to determine what type of lymphoma you have, which determines what treatment they might suggest. They will want a bone marrow sample for completeness, but that is in addition to, rather than as a substitute for, a lymph node biopsy.
Please do keep us informed as you find out more. This forum has a lot of knowledgeable people on board, but it is also useful for simple words of support and encouragement. I certainly post on here when I am worried (frequently) about something, and it is rare that someone does not reply.
Take care and please make use of this forum, as it really is a great resource.