It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lymphomas Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-25-2010, 10:09 AM   #1
Newbie
(female)
 
Join Date: Aug 2010
Location: Flagstaff, AZ
Posts: 7
lovemy3 HB User
Second opinion?

I was sent to a hematologist recently by my primary care doctor because I have all the classic symptoms of lymphoma and my labs suggest it as well. They are:
Itchy legs.. from deep within and every day
19 lbs. weight loss in 4 months... almost 14% total body weight
swollen painless lymph nodes in my groin
night sweats
shortness of breath
blurred vision
nausea
chills and sporatic fever
pain in my lower back
and more but not sure if they are related

I was seen by the nurse practioner, not the doctor, and she seemed very thorough. The doctor came in for the final minutes of the visit and right off she said she is not convinced it's lymphoma. I asked about the swollen lymph nodes and she said "what swollen lymph nodes?". she was unaware of them (apparently was not told of them or did not take the time to look at my chart ahead of time) and had me lay down to check for herself after the NP had already done that. Turns out I have several swollen nodes throughout my whole body-which I know can be a number of things- so she ordered blood work/x-ray/scans. blood work was done there in the office and then they forgot to give me the prescription for the other tests (I had a lot on my mind and should have reminded them before I left. but they should have been on top of their game). The doctor said she would see me again in 4 weeks.
In the last month, most of my symptoms have kicked in to high gear. I wonder how I will feel in 4 weeks??? even if it isn't lymphoma, why wait so long to treat an infection if I am having a harder and harder time as the days and weeks go on? I should get a second opinion, right?

 
Sponsors Lightbulb
   
Old 08-28-2010, 10:35 PM   #2
Newbie
(female)
 
Join Date: Aug 2010
Location: Flagstaff, AZ
Posts: 7
lovemy3 HB User
Re: Second opinion?

I did get the second opinion and am so thankful I took the time to do it. The second doctor sat with me for 45 minutes and asked so many questions about my current state of health and my health history. He left no stone unturned! He was everything a doctor should be... he explained things clearly and would pause occasionally to ask if I understand it all. He invited my comments and questions. I was amazed that he cared enough to really consider everything and was graciously honest about his opinions. He ordered his own round of blood work and that was done right away. I will be getting a CT of my chest this week. I meet with him again in less than 2 weeks and I should learn a lot more info at that appointment. He said he is looking at autoimmune and lymphoma, but carefully said he really thinks it's the latter. Even though he did not have great news, I left there feeling really good. The last few weeks and months have taken their toll on my mental/emotional state and my time with this doctor gave me a breath of fresh air! I felt heard, validated, cared about. All of those can really lift someone up, wow!

 
Old 08-30-2010, 12:35 PM   #3
Senior Member
(female)
 
Join Date: Jan 2010
Posts: 135
Stabevrian HB User
Re: Second opinion?

That is great you went for the 2nd opinion! I had a scare back in April with some enlarged lymph nodes and I got 2 opinions also, mine were opposite yours though- my first Dr was great and the 2nd one was not very helpful at all. Have you had an utrasound at all? Sometimes that and a CT scan can tell if the lymph nodes are malignant (of course you need the biopsy to tell for sure), but I think if the centers look "fatty" that is a good sign.

I ended up just getting dx'd with celiac (autoimmune disease) so I am not sure if my lymph node issues were related to that or not, but my enlarged nodes did go back down to normal size. Mine were very painful though and mine were in my left armpit.

Good Luck to you!

 
Old 08-30-2010, 07:07 PM   #4
Newbie
(female)
 
Join Date: Aug 2010
Location: Flagstaff, AZ
Posts: 7
lovemy3 HB User
Re: Second opinion?

I have another question...
Ever since Friday night, my airway and chest have been getting tighter and tighter. Sunday morning I woke up to feeling like I had a huge brick on my chest and kept coughing over and over to get whatever it was in my lungs to come out. It was awful! It's only been a few days, but it seems as that every hour that goes by it's getting worse. I can only take shallow breaths and I always have a dry weak cough. I wonder if it's related to my other medical stuff going on? Is it normal for someone in my possible condition to have trouble breathing?

 
Old 09-01-2010, 10:20 AM   #5
Senior Member
(female)
 
Join Date: Jan 2010
Posts: 135
Stabevrian HB User
Re: Second opinion?

Hi- I am not sure, I am no Dr. I would call to see if you can get in sooner than later if you are experiencing this amount of discomfort. I hope you feel better!

 
Old 09-03-2010, 07:06 AM   #6
Newbie
(female)
 
Join Date: Aug 2010
Location: Flagstaff, AZ
Posts: 7
lovemy3 HB User
Re: Second opinion?

I have been doing breathing treatments with the nebulizer at home but breathing is still and issue! I'm trying to find information on the internet about it. I have come across pleural effusion... I'd like to hear from anyone who has or had this, or has knowledge about it. I don't want to assume I have it or diagnose myself with it, but I do find it interesting. Please help!

 
Old 09-07-2010, 01:26 PM   #7
Newbie
(female)
 
Join Date: Aug 2010
Location: Flagstaff, AZ
Posts: 7
lovemy3 HB User
Re: Second opinion?

It seems that every week I have a new symptom. The breathing is still an issue, just like everything else. The breathing treatments have helped a lot. I now have bone pain that runs from my left hand on up to my shoulder. My elbow has ached on and off over the last year but now it is constant and spread through my entire arm. It is not muscle pain, it is bone. I really really want to hear from someone with similar issues. I want to know if anyone has experienced this... I wonder if I am making this up in my head sometimes!!! I know I am not, but all of this is starting to drive me crazy.

 
Old 09-23-2010, 01:52 PM   #8
Inactive
(female)
 
Join Date: Feb 2009
Location: canada
Posts: 420
fufu HB Userfufu HB User
Re: Second opinion?

Glad to hear that you found a doctor that you feel comfortable with it is very important.
If your blood work comes back okay and your other tests come back okay, please insist on having one of those nodes biopsied, it is the only way to confirm whether you have lymphoma or not. I wish you the best.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Recommendations for Second Opinions on Biopsy Dad1939 Cancer: Prostate 5 09-05-2008 02:13 PM
Second Opinion? Mets_Fan Pain Management 4 07-12-2007 07:40 AM
Should I get a second opinion? david45249 Sleep Disorders 3 01-02-2007 07:36 AM
Second Opinion Worth The Visit! Anxiety Man Eye & Vision 19 03-30-2006 08:10 PM
Second Opinion Dr Confused msmona Back Problems 6 01-25-2006 11:14 AM

Tags
lymphoma, second opinion, swollen lymph nodes



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ativan
Benadryl
Morphine
Penicillin Potassium
  Prednisone
Tylenol
Xanax
Zofran
Zoloft




TOP THANKED CONTRIBUTORS



Nassau one (7), ladybud (7), lucy157890 (5), Sandpuff (2), Hodgkins2003 (2), zip452 (2), Upatnight (2), PurpleSaddle (2), worrywartmom39 (2), Gennel (2)

Site Wide Totals

teteri66 (1165), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 04:49 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!