It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lymphomas Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-09-2010, 05:10 PM   #1
Junior Member
(female)
 
Join Date: Oct 2010
Location: FL, USA
Posts: 13
rockcandy96 HB User
My dad has Non Hodgkins Lymphoma, Low Grade, Stage IV

Hello,

My dad was recently diagnosed with low grade NHL at stage IV. He is 59 yrs old. I am wondering what to expect in coming years. I have read some of your posts, but I would like to hear from someone who has the exact same diagnosis as my dad. He does not suffer from night sweats, but has had tremendous weight loss and fatigue. He completed his first treatment of Rituxan today and it went well. It was supposed to last 8 hours, but since he was having no adverse reactions, they bumped up his dosage and he was out of there in 5 hours with no side effects. I am wondering what the life expectancy is and quality of life is down the line. Any information would be appreciated. Thank you.

 
Old 01-10-2011, 01:34 PM   #2
Senior Member
(female)
 
Join Date: Mar 2005
Posts: 267
cardshark HB Usercardshark HB User
Re: My dad has Non Hodgkins Lymphoma, Low Grade, Stage IV

Quote:
Originally Posted by rockcandy96 View Post
Hello,

My dad was recently diagnosed with low grade NHL at stage IV. He is 59 yrs old. I am wondering what to expect in coming years. I have read some of your posts, but I would like to hear from someone who has the exact same diagnosis as my dad. He does not suffer from night sweats, but has had tremendous weight loss and fatigue. He completed his first treatment of Rituxan today and it went well. It was supposed to last 8 hours, but since he was having no adverse reactions, they bumped up his dosage and he was out of there in 5 hours with no side effects. I am wondering what the life expectancy is and quality of life is down the line. Any information would be appreciated. Thank you.
Hi and welcome to the boards. I am sorry to hear of your dad's diagnosis. I was diagnosed with NHL 24 years ago. I went through 18 months of high dose chemotherapy and radiation and the NHL has been in remission ever since. When I went through treatments a number of the meds that were being used were experimental and doctors have learned much in the past 20+ years. For example, they have learned that most of the time NHL responds just as well to chemo alone as it does to chemo & radiation so most of the time they only use chemo to treat it. Because of the stage of life your dad is in and the fact that he is only having chemo decreases the likelihood of severe long term/late effects. For example, I was still growing when I had the radiation to my leg as a result of the radiation the growth of that leg was slowed and it is smaller than my other one which has lead to back problems and headaches; because your dad is done growing and not doing radiation he doesn't have to worry about that happening to him. You also need to remember that just because one person had long term/late effects from treatments doesn't mean that your dad will. I know a number of people that have had NHL and had chemo treatments 15+ years ago and aren't having any long term/late effects; I know others that are. Like most things it varies from person to person and you just have to wait and play the hand as it is dealt to you. Don't stress over the what if's or you will drive yourself crazy. The best thing you can do is just be there for your dad, encourage him, remind him everyday of how much you love him, keep a positive attitude and hang in there.
cardshark

Last edited by cardshark; 01-10-2011 at 01:35 PM.

 
Sponsors Lightbulb
   
Old 01-12-2011, 04:45 PM   #3
Junior Member
(male)
 
Join Date: Sep 2007
Location: San Clemente, CA, USA
Posts: 35
mudrunner HB User
Re: My dad has Non Hodgkins Lymphoma, Low Grade, Stage IV

As cardshark suggested, everyone responds to cancer treatments in various ways. I’m a little over three years out from stage 2 grade 2. Just turned 68 last month and PET/CT then was still clear. Had no particular symptoms other than nodes in left armpit and left neck popping up. Did CPV-R and showed clean for six months. Then went on Rituxan “maintenance” and stayed clear for a little over 3 months. Next did radiation thing to left side of chest and neck, which seems to be holding. Last spring, decided I’d be around long enough to justify getting an annoying cardio problem fixed.

This is my third cancer adventure. Prostate in 2001 was fixed by surgery. Multiple skin cancers also done by surgery. Other than the biopsies, my fNHL has been just chemo and radiation. The cardiac ablation for AFIB was the easiest (they just make three little holes for the catheters). I’ve entered all of my numerous medical interventions with the expectation of success in staying around for at least another 10 to 20 years and you should encourage your dad to have that same expectation.

While I do NOT believe cancer can be “willed” away, I do firmly hold that “state of mind” can significantly affect the outcome of treatments involved with any form of cancer. I will not lay down (very long) for any of the debilitation involved with any of the chemos, radiation or surgeries required to keep these old bones moving.

As to the “quality of life” you speak of: the CVP-R thinned my hair out for some time but it came back OK. Although, it seems to have a longer term affect on my memory (or perhaps it’s just geezer accumulation in the brain cells) as I’m still having occasional difficulty getting a word or memory straight. On the plus side, the associated sickness goes away after the cycles are complete. The radiation treatments were significantly less than pleasant but I was assured that mine was an unusual reaction. The hair loss from that adventure appears to be permanent but since it’s on the back left side; I can’t see it and few people have had the moxie to ask about it, so I don’t care.

You can help with encouragement, but ultimately it’s up to your father to carry thru with treatments and fight the fatigue and unpleasantness associated with them. After three successful (so far) Big C encounters, my wife and sons expect nothing less from me and I try my best to accommodate. I expect you dad will do the same.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
NH Follicular Lymphoma 3b grade hopeandbelief Lymphomas 22 02-18-2011 09:09 AM
had hodgkins 13 years ago, ask me anything you want! Helen caruso Lymphomas 16 12-18-2010 04:13 AM
my doctor says i have low grade lymphoma is it cancer nycnaples Lymphomas 2 06-20-2010 08:16 PM
NPHL a type of Hodgkins Lymphoma - Anyone??? demiar04 Lymphomas 2 03-03-2009 01:56 PM
non hodgkins lymphoma new diagnosis Susey Lymphomas 4 11-23-2007 07:41 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ativan
Benadryl
Morphine
Penicillin Potassium
  Prednisone
Tylenol
Xanax
Zofran
Zoloft




TOP THANKED CONTRIBUTORS



ladybud (7), Nassau one (7), lucy157890 (5), worrywartmom39 (2), Gennel (2), Sandpuff (2), Hodgkins2003 (2), zip452 (2), Upatnight (2), PurpleSaddle (2)

Site Wide Totals

teteri66 (1165), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:28 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!