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Old 04-03-2011, 08:43 PM   #1
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feelingaverage HB User
Is waiting a bad idea? Symptoms of Lymphoma?

Hi Everyone,

I am a 35 year old mum of two (a seven year old and 18 month old) I have been seeing my gp for about 4 months now about a range of symptoms I am having. I am so frustrated because I feel so sick and am getting nowhere, I am worried for my family if I have a serious illness...I am experiencing the following symptoms:

Extreme fatigue regardless of sleep and rest
Pain rhs humerous at top of bone and at elbow end also
Lump LHS cervical node for 5years (firm and non painful)
Pain rhs ribcage and under breast
Itchy arms (not all the time)
Pain rhs jaw
Dizziness
Abdominal pain and occasional pain rhs leg (in lymph node area)
Loss of appetite, some weight loss
Recently (last two weeks) I feel like Im holding something under my right armpit and have a hard non painful lump on my collar bone at the shoulder end (feels like bone not flesh)
Insomnia most nights due to the bone pain but have not had any night sweats.

My DR is a caring man, he has done blood tests and scanned my liver and gall bladder. I have looked and felt so unwell at times he has wanted to put me in hospital. However my blood tests are "within normal range" except my kidneys are working very slowly and my ESR rate is very low(?) He has checked for probs with thyroid, arthritis, lupus, diabetes - nothing has come up.

I realize you guys are not Dr's and am not looking for medical advice but am really interested to hear if your experiences with lymphoma have given you the same symptoms?

I am supposed to start some prednisolone 35mg twice daily tabs to see if that helps but am putting it off as I keep hoping it will all just go away! I have always been pretty healthy and take good care of myself...Your help is greatly appreciated

Last edited by feelingaverage; 04-03-2011 at 08:50 PM.

 
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Old 04-07-2011, 08:18 AM   #2
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indytechguy HB User
Re: Is waiting a bad idea? Symptoms of Lymphoma?

If you're anything like me, waiting is unbearable. IF there is something wrong with me, I want to know now and I want to work towards a game plan to address the issue. Waiting and not knowing, at least for me, is worse than knowing what may be wrong. The anxiety can't be deterimental to your health too and just how you go about your days. In my situation, I'm seeing on oncologist because of night sweats and itching. Hope you find some answers soon.
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It is not length of life, but depth of life. -- Ralph Waldo Emerson

 
Old 04-08-2011, 04:43 AM   #3
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feelingaverage HB User
Thumbs up Re: Is waiting a bad idea? Symptoms of Lymphoma?

Hi Indytechguy and thanks for responding to my post. Im sorry to hear that you also are un-well and without a diagnosis as yet. I agree with you totally about wanting to know asap what the deal is and just get on and make a plan to deal with it best as possible.

It's so frustrating and confusing to be feeling so un-well yet un-able to pinpoint what's causing it! Have you tried steriod treatment for your itching? I have started the prednisolone at a pretty hefty dose of 50mg a day for three days and then onto 25mg pday for three days as instructed by the specialist in an attempt to shotgun my immune system and body 'back into gear'. Upside is I have more energy and feel more like myself than I have for a long while, down side is it makes me feel sick and the pain is still there. This drug has loads of side affects however!!

After this course of steriods I will then have to go and have a radio-nucular bone scan (which Im not keen about) for the drs to see if there is a problem with my actual bones. Hopefully this will be the resolve and I can just move on with my life, I wish you all the very best for your health and hope you too gain an insight as to what is wrong and how to fix it.

Thanks again for your reply. Would be great to hear from some people who have been diagnosed, surely you were in our shoes once before?

Cheers

Last edited by feelingaverage; 04-08-2011 at 04:44 AM.

 
Old 04-10-2011, 08:59 PM   #4
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Re: Is waiting a bad idea? Symptoms of Lymphoma?

waiting is so frustrating and can be detrimental not only physically but emotionally.When I was first dx with Hodgkins I was a single mother and a full time college student-so I thought the exhaustion was easily explained as did my gp - for 2 years.Then I got a cough that wouldn't go away and itchy arms and legs.I was treated for pneumonia for several months then I got steroid tx -all this time my blood work was fine.After the steroids and 6 months of back and forth for repeated x-rays I was told it was possible that it wasn't pnuemonia after all andI needed a biopsy done.I've been fighting Hodgkin's since 2003.So I hope u get the answers u r looking for and really hope nothing is wrong.Good luck to you.

 
Old 04-10-2011, 11:02 PM   #5
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feelingaverage HB User
Re: Is waiting a bad idea? Symptoms of Lymphoma?

Hi hodgkins2003
I really appreciate your time and would like to thankyou for your reply.
I guess It is hard for the doctors to find what's going on I think until it becomes apparent and until then I guess they rule things out rather than in when trying to diagnose people. I am trying to stay positive and hope that it is something that can be sorted easily. I am curious to know if the itching you mentioned was all the time or did it come and go? Thankyou so much again and I wish you all the very best of health for the future.

 
Old 04-10-2011, 11:33 PM   #6
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Re: Is waiting a bad idea? Symptoms of Lymphoma?

Hey feelingaverage,

I'm also 35yrs old and a mother but I only have 1 (12yrs) so I can only imagine how difficult it must be to be feeling so bad with 2 young children to take care of. I truly feel your pain and understand the anxiety you must be feeling.My itching would come and go and I didn't get night sweats until later on in my disease,obviously every person is different and that doesn't mean that your intemittant itching is a sign of lymphoma all the symptoms are so non-specific it really does make it difficult for drs to diagnose.In saying that however, I firmly believe that each person knows their own body better than anyone else andwe all need to b our own advocates-if you feel sick u probably are.You need to stay on top of your drs- bloodwork doesn't always show mine was always fine until my disease was advanced.Anyway,that was way more longwinded than I had intended....I'm glad to hear ur keeping a positive attitude as difficult as it may be at times I really believe it makes a differance

 
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Old 04-11-2011, 04:44 AM   #7
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feelingaverage HB User
Re: Is waiting a bad idea? Symptoms of Lymphoma?

Quote:
Originally Posted by Hodgkins2003 View Post
Hey feelingaverage,

I'm also 35yrs old and a mother but I only have 1 (12yrs) so I can only imagine how difficult it must be to be feeling so bad with 2 young children to take care of. I truly feel your pain and understand the anxiety you must be feeling.My itching would come and go and I didn't get night sweats until later on in my disease,obviously every person is different and that doesn't mean that your intemittant itching is a sign of lymphoma all the symptoms are so non-specific it really does make it difficult for drs to diagnose.In saying that however, I firmly believe that each person knows their own body better than anyone else andwe all need to b our own advocates-if you feel sick u probably are.You need to stay on top of your drs- bloodwork doesn't always show mine was always fine until my disease was advanced.Anyway,that was way more longwinded than I had intended....I'm glad to hear ur keeping a positive attitude as difficult as it may be at times I really believe it makes a differance

 
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