Re: Follicular Gd 1 Stg 4
Hi. Yes, I'm on a 2-year Rituxan maintenance plan; although, it has been delayed because I haven't been healthy enough to handle it. My wbc count hover around 1. I am taking the IVIG (antibody infusion) monthly. The first time I noticed a marked difference, but not so much the second time. I have both IVIG and Rituxan infusions scheduled for early next week. Blood will show whether I can handle Rituxan or not. If not, I'll probably have a Neulasta shot - which I always dread. It is really painful for the back of my skull and my spine - also my sternum.
I chose the Bendamustine regiment for my chemo. I had the initial six with Rituxan and that knocked down lymph swelling. Some of the nodes in my mid section were as large as oranges. My spleen was twice the size of normal. Bendamustine did a number on all of that. I'm hopeful I won't have to do that again anytime soon.
I agree with you on the Rituxan. I can tolerate the infusion (although, it makes me VERY tired), but the weakened immune system really is the pits. I sometimes wonder if my body will ever normally produce wbcs again.