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Old 02-18-2012, 09:52 AM   #1
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Lucy126 HB User
When does treatment begin

I was diagnosed with Follicular Lymphoma six months ago. I had surgery in the biopsy process and had my left parotid gland removed. It had a grade 2 mass in it. I am seeing two oncologists, one locally and one at MD Anderson in Houston. I have lots of "spots" and lymph nodes that are activated, on my liver, right lung, messenteric lining, spleen, right kidney, groin and now my right thigh. I have night sweats and pain in different places as nodes are activated and then recede. The biggest tumor is just under 2cm in my abdomen. I suffer from chronic fatigue. I have been told that I do not qualify for any treatment presently and that I won't until one of the masses becomes greater than 3 cm. I was just told the cancer appears to have reappeared in the left parotid bed. Do other people have the experience of being told to go live your life and just wait for treatment with this disease?

 
Old 03-06-2012, 09:44 AM   #2
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Re: When does treatment begin

Quote:
Originally Posted by Lucy126 View Post
I was diagnosed with Follicular Lymphoma six months ago. I had surgery in the biopsy process and had my left parotid gland removed. It had a grade 2 mass in it. I am seeing two oncologists, one locally and one at MD Anderson in Houston. I have lots of "spots" and lymph nodes that are activated, on my liver, right lung, messenteric lining, spleen, right kidney, groin and now my right thigh. I have night sweats and pain in different places as nodes are activated and then recede. The biggest tumor is just under 2cm in my abdomen. I suffer from chronic fatigue. I have been told that I do not qualify for any treatment presently and that I won't until one of the masses becomes greater than 3 cm. I was just told the cancer appears to have reappeared in the left parotid bed. Do other people have the experience of being told to go live your life and just wait for treatment with this disease?
I thought that once one experienced B symptoms, such as night sweats and pain, that treatment would be recommended. However, there appear to be many differing opinions on the whole issue of treatment or no treatment. If you are not comfortable with your doctor's opinion, I would suggest getting a second opinion. On the other hand, it is often considered preferable not to get treatment until really necessary as remissions tend to become shorter between treatments. I have been lucky so far in that my remission is nearly 7 years. If I had had a shorter remission, I might have regretted getting treatment so quickly after diagnosis. All the best to you.
__________________
Husband dx July 2003, advanced rectal cancer stage 111C; myself dx July 2006 indolent lymphoma; husband dx February 2010, stage 2 prostate cancer.

 
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