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Old 07-10-2012, 08:11 AM   #1
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sezza978 HB User
So many lumps, please help

Hello,
I am new to this site. I have been stressing/worrying for so long now about various lumps I have. It all started about 2 years ago when I found a pea sized lump in the side of my neck (posterior) I went the docs who told me to wait and see which I did for a month went back and was told it was nothing by a different doctor but I wasn't happy with that so I kept going back so finally they referred me to an ENT who referred me for an ultra sound. They said it was tiny and that the nodes in the front of my neck at the top were slightly large but nothing to worry about so I tried to carry on with life and forget about it but since then more have popped up. one under my jaw around 2cms I have 2 pea sized lumps on the left of my neck and 2 on the other side I also have tiny lumps under both armpits which were not there before (they have been there for about a year now) the doctor said its just fatty tissue! anyhow I keep going the doctors and get told its fine and its my anxiety. Also just before I found the first lump I had bloods and it came back low iron, not anaemic just very low iron stores. I have been on iron tablets ever since and no answers to why my iron has dropped as at the time i wasn't having periods,my diet hadn't changed and it's not because i can't absorb it.
I finally got a doctor to send me to an another ENT specialist which isn't till august but i'm hoping they will biopsy one of my nodes, the biggest was 3cm from the last ultrasound. I was hoping for some advice and your experience with lymphoma. I have no night sweats,fevers or itching. I have been very tired and run down for so so long now. It's hard to motivate myself and i can't seem to fight off infections, getting colds and suffering with blocked ears, tongue sores and what i think is oral thrush in my mouth which ive suffered with for about 2 years.
Sorry this is so long. This has taken over my life and it is all i think about. I can feel 10 lumps of different sizes in my neck. is it normal to feel your nodes?
Any advice or help would be so much appreciated

Sarah

 
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Old 08-17-2012, 11:36 AM   #2
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MyrtleVol HB User
Re: So many lumps, please help

Any news? I have been going through something similar. Found a node at the base of my neck on the left side and panicked last September. Went to the doc who gave me a round of antibiotics and it didn't do anything...went back 10 days later, doc ran CBC and it came back normal and they told me not to worry about it. In January I went to a different doc who said it was definitely a lymph node and I had noticed a few other smaller ones in my neck on both sides. This doc said that it didn't feel like cancer, but to be on the safe side ordered a CT scan. CT scan for my neck, which showed inflammed nodes on both sides of my neck but none in my chest and apparently the largest node was 8mm. At the time I had a badly decayed wisdom tooth and found out that I needed 7 cavities to be filled as well as having all four wisdoms removed...so, I was beginning to think that the dental problems were the reason for the inflammed nodes, which is also what my doctor said could be a major possibility. I had my wisdom teeth pulled in June, all cavities filled...nodes are still inflammed and palpable on both sides and I feel like I can literally move around a mass near my carotid artery in my neck on the right side. I'm hoping it is just the carotid artery and that I never noticed it before, but I'm worried that it is a lymph node or tumor that is growing...I feel the pulse of my heartbeat through it, but I can move it around so much that it just doesn't feel right. Anyways, I went to the doctor in May before my wisdom teeth surgery just to check on the nodes again and he said he could still feel them...ran a CBC and an Epstein-Barr panel and both came back negative...so, the nurse said quit panicking and just move on...well after waiting over 2 months from my wisdom teeth removal I can still feel the nodes and decided to go to the doctor this week. It's been nearly a year since I felt the first node, so I'm just wondering what in the world is causing them to be inflammed. Doctor felt them, said it could be allergies that are causing them to stay enlarged so she said take claritin for a couple weeks. She referred me to an ENT and I go at the end of August...I'm freaking out because I have young twins and I'm just 31...In May, the doc literally gave me the option of being referred to an ENT or to just do a blood test for CBC and Epstein Barr as he was confident the nodes were "scarred" or just reactive. Anyways, that's what I'm hoping the ENT says in a couple weeks...I hope all is well on your end...just so you know, you are not alone with those symptoms.

 
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Old 08-19-2012, 09:04 AM   #3
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Linda J HB User
Re: So many lumps, please help

If this makes you feel any better, I have had a node in my neck on rt. side that has been reactive for about 40 years. It's size goes up and down, but it never goes away completely. Doc not concerned about it. Also about 20 years ago I had 3 or 4 groin nodes swollen so I saw a surgeon. He told me to watch them and if they grew to come back. He said many people have nodes that are "followed" and are not cancer.They never grew and eventually ( i'm talking like 10 years later) resolved.

As for your dental work...I am experiencing the same thing after extensive dental work. Doc felt 2 small nodes in neck...one on each side kind of above the thyroid gland and below chin. He thinks they are due to my recent dental procedures and abcessed tooth. I am having them rechecked in a month and trying not to worry. I cannot even feel these and neither can my dentist, but primary care doc said they are there.

 
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Old 08-29-2012, 06:36 AM   #4
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MyrtleVol HB User
Re: So many lumps, please help

Thanks Linda, I hope all is well with you. Just yesterday I had my appointment with the ENT and he did a thorough exam on the nodes I complained about that have been there since last September. He really poked and prodded and pushed around and said that he really doesn't even think the nodes are enlarged enough to even do a biopsy and that the feel and size doesn't warrant a biopsy. If they swell larger in the future he mentioned I should get them checked again, but I have had four doctors, a ct scan in jan, bloodwork multiple times and now an ENT tell me not to worry. So, here goes not worrying. I am going to put my faith in the Lord and go on with my life. If they get bigger I surely will have them checked out but for now I am going to trust that they are indeed reactive n

 
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Old 08-29-2012, 06:38 AM   #5
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Join Date: May 2012
Location: South Carolina
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MyrtleVol HB User
Re: So many lumps, please help

Thanks Linda, I hope all is well with you. Just yesterday I had my appointment with the ENT and he did a thorough exam on the nodes I complained about that have been there since last September. He really poked and prodded and pushed around and said that he really doesn't even think the nodes are enlarged enough to even do a biopsy and that the feel and size doesn't warrant a biopsy. If they swell larger in the future he mentioned I should get them checked again, but I have had four doctors, a ct scan in jan, bloodwork multiple times and now an ENT tell me not to worry. So, here goes not worrying. I am going to put my faith in the Lord and go on with my life. If they get bigger I surely will have them checked out but for now I am going to trust that they are indeed reactive nodes and try not to obsess about touching them. Im sure that the dental issues had something to do with the swelling of the nodes especially considering there was a lot of decay in the teeth....all the best to you!

 
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Old 02-11-2013, 11:50 AM   #6
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Join Date: Jul 2012
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sezza978 HB User
Re: So many lumps, please help

Hello

Sorry just seen this.

Sorry to hear about your worry. It's very distressing and takes over your life.
How are you now?

Well I persisted with the docs and finally got a FNA biopsy on my largest node. All came back fine thankfully. I was to told that all my nodes are fine. I have 1o lumps of different sizes in my neck and some in my armpit. After the test I came away happy but I still worry as the FNA is not always right so I still and will always have some doubts. I wanted a CT scan but never got one. The doctors mustn't be worried if they have said your results are ok, I know it showed up some nodes but they will know what they are looking for.
I try not to poke and prod my nodes now as it just sets me off again. I will always worry about them. My biggest node is 4cm! Apparently this is ok!!!! I have always been lumpy and new about 3 of my lumps in my neck since I was a teenager so I'm hoping the others have been there all my life too.

Thank you Linda thats reassuring to know. My brother found a lump at Christmas and he's going through the watching and wait period. Such a worrying time finding a lump but I think it's important to get it checked out and persist if your not happy. It your body and you have to take care of yourself


Sarah

 
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