Hello all...I am new to this site and I would like some input on my situation so here goes....I am 41 years old and generally pretty healthy until about 4 months ago.
I first went to see my primary doctor in July for a terrible head ache that would not go away. She automatically scheduled me for a CT scan of my head and neck. The radiologist report came back and said i had 3 lymph nodes on the side of my neck and by my ear that were slightly enlarged. She then ordered an MRI. It showed basically the same thing and she said the reason for my headache was because of one of the lymph nodes pressing on the perodic gland.
My doc then referred me to an ENT doctor. He did a needle biopsy and it showed reactive lymph nodes. Nothing to worry about. About a week after this appointment, I noticed 2 bumps approximately 2.5 cm and swelling in the left side of my neck. I called the ENT doc and he referred me to a neurologist to see if the lymph nodes had any relation to my headache. I went to see the neurologist and he seemed very concerned so he ordered a spinal tap and the "million dollar" blood work up. The only thing that came back was that my ANA was possitive. Hmmmmm...he thought possibly Lupas.
The nuerologist set me up with a Rhuemotologist and they did more blood work and xrays of my hips and wrists (have pain in joints). Blood work came back and he is pretty sure I don't have Lupus. Thank goodness! Meanwhile, I am continuing to have a terrible constant headache and now a stiff neck. About 2 weeks later I had a headache that was so bad that I was sick from it. I went to see my primary doc again. She was feeling around and noticed that my lymph nodes were enlarged on the right side of my neck now. She set me up with a new ENT doc. I went to see him the following week and he set up surgery to remove one of the nodes for a biopsy. That came back as reactive lymph nodes.
I haven't had any colds or sickness at all. I am going on 4 months with a headache and now have swollen lymph nodes on both sides of neck, in front of my ears, under my jaw, by by collar bone, and in my right arm pit. I am extremely tired all the time, I do sweat alot, but not just at night, I have lost about 10 lbs and I have itchy skin for no apparent reason....just itches. My primary doctor called the Mayo Clinic in Rochester, MN and they want the see me on October 29th. Hopefully, they can find out what is going on. Any input is welcome....I just want to feel better. Please let me know if anybody else can relate. I am praying that they tell me it's just something that will pass with time. God Bless