Thank you so much for replying you guys, I REALLY apriciate it!
Ive had a trillion blood test, CBC, LDH, CPR, multiple viruses and everything came back clear! Low vitamin D and bilirubin a little low were the only "abnormal" results.
Ive been tested for lactose and gluten intoloranse and chrons. all negative.
My neck lumpnodes have been looked at by 3 different ENT specialist (with ultrasound) and they havnt grown in 2 months. (saw my third ENT a couple of days ago) Largest is 2,7 cm, long and has a fatty hilum. The others or just around 1 cm, with a fatty hilum. The largest one is the one thats under the jaw (submandibular node). The ones around my intestines are 1,6 cm at the biggest (ct scan)
NONE of my doctors are worried, they say the ct scan does not indicate lymphoma. That confuses me, how can I have so many nodes and they still dont consider it might be lymphoma!? Is it because the biggest node os "only" 2,5 cm or can they see it by the shape of the nodes. I dont know
My finde needle biopsy was negative but I know these are not conclusive. Im having a full node biopsy in 4 weeks so Ill get my answers then but Im really trying to hang on to the little hope i have of this being something else
Did any of you have stomach problems with your lymphoma? I dont have any pain, just chronic loose stool with undigested food and some mucous in it. Very strange!
were your nodes more round than long and did they have a fatty hilum? Im trying to comfort myself with the fact that the biggest node "looks" benign....
Is it a good sign that the node hasnt grown in 2 months?
thank you SO much for your help