I'm here simply looking for someone to take to that can relate. about 2-3 months ago I noticed a lypyth node under my jaw. I easily forgot about it since I had one once that was in my neck and it went away. ( small knot left there but had dr check it) about 6 weeks ago I felt it again and my anxiety and panc sunk in. Went to doctor and she said no worry a week later I felt pain in my ear, throat and jaw so I went back again and got Amox. Took that and a week later it was the same and went to doctor and she said to ease my anxiety she would order lab work and ultrasound. Since then I have had lab work done twice... Both normal and a ultrasound. When I left the ultrasound they said looks normal and leave it alone! 3 hours later my primary called and said it looks normal but mildly adnormal but non cancerous?.. I need a Cat scan?. My anxiety sinks in and since then I have panicked completely. I am continuing to touch it non stop.prob 20 times a day and I move it around and roll it. I dug under the other side of my jaw until basically I found a tiny normal one and can't stop touching it. Then my war and jaw pain continued nd my jaw started popping and locking. Went to doctor where he said he really thinks its TMJ ( I have a mild over bite, I clinched my teeth and grind them) my jaw has always popped a little but is literally cracking an popping. My cheek is also burning and feels a little swollen. My lympth node was 1.4x0.9x0.4 and the one I dug to find feels less then 1cm. They are very moveable and oval and smooth. My point is I need support to stop touching and moving them. I can't even function. I am 3 young kids, I'm 26 and about to get married and I'm hysterically panicked over my health. I am embarrassed to talk about this with anyone
I can relate.. Im only 25.. Iv already had one biopsy, ultrasounds, and more blood tests and CT scans then I can remember. Its very frustrating. And all I hear from the docs is the L word. About to go under the knife again to pull out another node on the other side of my neck. Crappy thing is sometimes like me they just dont really know whats causing it. Been going through this for about a year now. Any diagnosis good or bad id be happy with. Just want answers. Of course its caused me to turn into a total nut case too from searching the internet almost daily haha. I call it doing my research. Trying to find what the doctors couldnt. Iv had a whole year to do this. Im practically a qualified immuno pathologist. Graduate from university of google.
I had Non-hodgkins Lymphoma a few years ago. I am currently dealing with Common Variable Immune Deficiency (CVID) too. Swollen nodes in the neck are nothing to be ignored. It took 9 months to diagnose the NHL for me. NHL is different than say breast cancer lumps. The lymph node will roll around even with lymphoma in it. Several doctors missed diagnosing the NHL and then I finally went to see an Ear, Nose, and Throat specialist (ENT) and he said that a large percent of adults coming into his office presenting with lumps in their neck have some form of cancer. We started with a needle biopsy and it was inconclusive. He then did a surgical biopsy and had a pathologist available to look the nodes over that they removed. I was a stage 4 B-Cell Follicular Lymphoma.
Recently diagnosed with CVID, I am learning that there is some connection between NHL and CVID. One thing that I find interesting is the enlarged lymph nodes that lots of people talk about. The CVID was also a tough one to get diagnosed. I've had different kinds of infections for years, lung, sinus, throat, etc. I was finally referred to an Immunologist. Thank goodness for him. He was great and did the right test and discovered it.
My point in both of these stories, trust your body, it is telling you something. Be an advocate for your self and if your doctor is not giving you a good enough answer, find someone else. Wishing good health to you! - Z