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Old 08-29-2006, 08:48 AM   #1
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why wont someone help me

i have been posting on this board for over two years now and i wont to thank everyone who has helped me.
however, i need some input from you ladies if you can, i fear this is going to be a long post, but hear goes.
about 2 years ago at the age of 47 i started to feel depressed, hair falling out ovary cramps and period pain, even when i wasnt on a period and other what i now think of as peri symptoms.
i went to my gp and told her and she put me on 1mg estrogen, i didnt need progesterone as i have a mirena coil fitted, i started to feel better but i still had the cramps so she arranged for me to see a gynae.
he said he thought it was the coil, although i had had it fitted for 2 1/2 years with no problems, so he took it out.
boy was that a mistake my periods were reall heavy with clots so for the next five months i felt worse than ever.
september he put the coil back in, and back on the estrogen, this time 1 1/2mgs as other symptoms had started, hot flushes, anxiety, muscle aches, tingling the list goes on.
by december 2005 the cramps were really bad, had an endoscopy and intra-virginal scan, everything ok, no problems.
this year i am still battling with all these problems, constant cramps and most of the peri symptoms you can mention, had fsh levels checked in june this year and came back 36.5, which my gp said were elevated, even though i am on estrogen, so should be normal range, back to gynae who raised my estrogen to 2mgs saying this should work.
i have now been on the high dose of estrogen for 2 months, although some days i dont feel too bad, still having these cramps and for about 3 weeks out of the month peri symptoms seem out of control and i am like a witch
went back to my gynae today and he cant understand why the estrogen is not working as well as he had hoped. so his idea now is to stop the estrogen take out the mirena coil and see what happens.
he basically told me he hasnt got a clue as to what my problem is, but he hasnt done any blood work and other investigative proceedures.
my husband came with me and hit the roof at the gynae, saying if i was a dog someone would have put me out of my misery months ago.
i am sooooo upset today, i just want to know what my problem is and some relief.
i have now made an appointment to see another gynae privatly, as i have no faith in my previous one, he just doesnt seem to care.
i am sorry this is a long post but i am really frightened this is never going to end.




andrea

 
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Old 08-29-2006, 11:48 AM   #2
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Re: why wont someone help me

I am so sorry for all of the trouble you are going through. I know what it is like to go to a couple different doctors, and not find out anything more than when you first started. Do you have a doctor in the area that deals with naturally compounded hormones? Also, did this gyne test you for endometriosis? With all of the cramping that you are having, this is what it sounds like to me. And I can't understand why you didn't get blood work done??? I would try to find a female doctor that knows about naturally compounded hormones and try her. I think you can do a search for your area on the internet. Good luck.

 
Old 08-29-2006, 01:15 PM   #3
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Re: why wont someone help me

Hi danigirl

Oh what an awful time you've gone through. I will strongly suggest you get an appointment with a new GYN. (preferably a women Dr that deals with meno issues)
Many of us can relate, specially feeling so frustrated with trying different things, thinking this time the symptoms may ease...& having no faith in your Dr just compounds the misery.
I guess you've had the normal tets done...ultra sound showed no cysts or fibroids. No endo.

I am sure your Dr has talked to you about PCOD? Your hair loss thing & ovarian pain made me wonder.
Stein-Leventhal Syndrome or Polycystic Ovary Disease (PCOD).

Good luck, I hope you find a Dr that will help you figure this out!

 
Old 08-29-2006, 01:21 PM   #4
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Re: why wont someone help me

just curious, have you had your thyroid checked?
thyroids cause all kinds of problems that you wouldn't think of

 
Old 08-29-2006, 05:33 PM   #5
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Re: why wont someone help me

I can't add anymore than what has already been suggested...since these ladies have provided some good ideas. I just wanted you to know that I also understand your frustration, but once you get under the care of a knowledgeable and compassionate doctor you will begin to start seeing some positive results. I wish you health.

God Bless

 
Old 08-30-2006, 12:55 AM   #6
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Re: why wont someone help me

I just wanted to comment on the problems that many of us have during peri. They do go away. I am proof of that. I went through 8 years of trying to 'fix' all of my symptoms only to have them only get worse with each treatment. I finally went off everything and let nature take it's course. I now have had only 4 periods this year. I have mild hot flashes, but they are livable. What I am trying to say here is that trying to find 'normal' just isn't going to happen when you are in perimenopause. Your ovaries aren't going to continue to work and so as they continue to shut down and finally do stop working, we have problems. It is a mind set that we fight it and want what we had before. It will never be the same. I sympathize with every woman that experiences the pain and confusion that happens at this time, but it does get better. I am now 50 and I know that the worst is over. My advise is to try and look at it from a different perspective. That this too shall pass. Spending money and time, trying to fix it all is not going to really help.
I hope I don't come off as someone who doesn't care about any of you. I just wanted to give you another take on all of this.
Wishing you all the best!

 
Old 08-30-2006, 06:42 AM   #7
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Re: why wont someone help me

I agree with MommaBee 100%. Menopause hit me hard and fast and I went through a few really rough years. After lots of trips to the doctors I just decided to let nature take its course and go through menopause naturally. And when I finally just accepted the changes that were happening, and that I just wasn't going to physically feel the same as I did before menopause, I actually started to feel better. I think that when that happened, I moved into a much better place mentally and emotionally, which helped lower my anxiety level, and therefore helped me feel better physically. I'm not saying it was easy, but now that I'm "over the hump" so to speak, my life is pretty good. It does get better! So now when I feel a hot flash coming on, or my foot starts "buzzing" or I get a bit queazy, or I'm just feeling cranky or weepy, I just ride it out, knowing that I'll feel better after it passes, and it will pass. Hugs to everyone!

Wink.

 
Old 08-30-2006, 08:10 AM   #8
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Re: why wont someone help me

I totally agree with you both but it is hard. I am 50 now, and have been going through this since I was 41. My periods are still here, still heavy, I still have every single symptom you've all described on the boards and I feel like crap most of the time. There are only a couple hours each day when I feel slightly normal. I absolutely hate it. I have no energy to exercise so I am gaining weight. I am sore and achy all over, so I don't strength train any more. I have no ambition to do anything when I get up in the morning. I have taken millions of different things, they help for awhile and then they quit working. I have spent thousands of dollars in the last 10 years on this. The only thing I am taking at this moment are my calcium, magnesium, flaxseed, and once in awhile I will use a bit of naturally compounded progesterone cream during my period just because it helps with the cramps. I also take two homeopathic sprays that help with my anxiety, and help me to sleep. But other than that, I'm letting nature pretty much take its course because I've given in. And I think that's what you have to do, is just give in, and try to let it take its course. Think of our mothers and grandmothers....they never took all of this stuff. My mom took One A Day Vitamins and that was it!! And they are fine. And we will be too. Thank God and every other supreme being that we have these boards. If I didn't have all of you to share this with, and know that I am not going crazy, I would be in a mental hospital.

I am so thankful MommaBee that you say it does get better. That gives me hope. I am sorry this went on so long, try to have a great day everyone.

 
Old 08-30-2006, 08:38 AM   #9
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Re: why wont someone help me

Danigirl,

Have you considered Lexapro? I hate to sound like a walking commercial since I started taking it, but it has worked WONDERS. When I feel okay mentally, I can deal with the physical changes much better.

 
Old 08-30-2006, 10:24 AM   #10
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Re: why wont someone help me

thanks to all of you for taking the time to reply, i have had my thyroid checked, it was fine.
i too was wondering about endo, i did have this about 15 years ago and had it taken away, the gynae i have been seeing says its not, how does he know when he hasnt done any tests.
i am going to see a different gynae on tuesday who specialises in endo, pcos and hrt, i will post back when i have been.
thanks again, i really value your support

andrea

 
Old 08-30-2006, 03:38 PM   #11
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Re: why wont someone help me

Hi Andrea,
I had a Hysterectomy because my endo was so bad and I was always in pain, within 6 months of surgery my pain returned. I thought I would loose my mind. I did some reading and found the one thing I had not tried was to give up sugar and white flour. Wow, it made so much difference. Not right away but with in 4-6 months my pain was gone. That was 8 1/2 years ago and the pain has not come back but I also still do not do sugar and very little white flour. With endo. it will grow back over 50% of the time. It could cause the cramping. Just something to think about. I hope this helps.

Julie

 
Old 09-06-2006, 02:46 AM   #12
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Re: why wont someone help me

hi everyone, i just wanted to give you an update.
i have finally found a gynae that understands my problem and can help.
i am having a lap shortly as he thinks my endo may have come back or that my ovaries are stuck down.
this doc was sooooooooo nice and understanding and he has promised me he can make me normal again
this doesnt come cheap because i am going privately, but it is such a relief that at last someone is listening to me.
he will also sort out my meno symptoms by tailor making my hrt for me.
i cant believe the difference in gynaes, he has already taken blood for full tests and to see how well i am absorbing the estrogen i am taking, maybe this is it and i am going to be ok again.
i will keep you all updated as i progress, and thanks again for all you support



andrea

 
Old 09-20-2006, 03:52 AM   #13
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Re: why wont someone help me

well just an update, i have just come out of hospital from having my lap and my new gynae has told me i have cysts on 1 ovary and that sooner or later i will need to have this ovary removed, now i am really frightened as to why he needs to take this ovary out, i suppose i will know more on friday when i go back to see him, just needed some assurance.




andrea

 
Old 09-20-2006, 07:20 PM   #14
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Re: why wont someone help me

Andrea,
You've gotten thru a big hurdle, the lap!! And the doctor said 'sooner or later'...so it doesn't sound to me like hes too worried about an immediate problem with your ovary. You're right, Friday will tell you more, but like all us 'girls'...we tend to obsess and over analyze things, so I will keep good thoughts for you that the appointment brings you some peace of mind.
Conni

 
Old 09-21-2006, 11:33 AM   #15
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Re: why wont someone help me

hi conni
thanks for your post, i could do with a lift, as i feel soooo down at the moment, i think it is that post operative thing i feel so tired and worn out but i have been assured by a few people that it sometimes takes time to recover from the effects of the lap and in a few days time i will start to feel better.
i will post back when i have some more news




andrea

 
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