Junior Member (female)
Join Date: Sep 2008
Is anyone vibrating inside?
Bethsheba asked me if I would post my story here. I'll admit, I wasn't so sure it was a good idea, but she said many people here were having vibrations. I had vibrations in my chest for some time. Mostly while trying to sleep, but others I have known had it while waking up, and a very few experienced it during the day. In the people I have spoken to, it has occurred in the legs, crotch, chest, arms.. Mine was in my chest alone. I also had ankle pain and swelling recently, and I've had random pains, in my chest, breasts, legs, arms, and neck. Headaches, vertigo, constant fatigue... Obviously I went to a doctor. The pains I could live with, as long as they weren't anything serious. The vibrations, however, scared the heck out of me.
I was diagnosed with carpal tunnel, costochondritis, sinus infection, and, big shocker here, stress. Lots of bloodwork ensued. My white counts and sediment rates were high. Doc suggested otc motion sickness pills for the vertigo, got a cortisone shot in my wrist, and said the vibrations were stress. Two months later, nothing had changed, except the frequency of pains (slight increase) and some different headaches. White counts and sed rates still high. I went back. I told him that other stuff can be explained but the vibrations are not normal. I believed I had lyme. It would explain everything.
He finally put me on antibiotics for my sinuses (Doxycycline. Clever guy knew it's great on sinus infections AND it's one of the best antibiotics for lyme... But didn't tell me that part.). The vibrations went away within days. The frequency of my non-chest pains dropped significantly, and my ankles, knees, and shoulders markedly improved. When I told him about the improvements, he said he expected that might happen if it was lyme. Still waiting on the chest pains to improve, but he said that could take longer if it is lyme. I asked him if he finally believed me. He said yes, and if two more weeks of antibiotics didn't finish it off, then I go to an infectious disease guy. I didn't promise to wait, but I probably will. I am finally starting to feel better.
Lyme has a known symptom of vibrations. Lyme is epidemic in this country right now, and not even my doctor, one of the best I know in Mass, suspected. Why? Because lyme can present as nothing. No symptoms. Or it can have a mess of them, and they all look like other conditions. Or something in between. It can have some strange neurological and physical effects. Even if you live in a city and never found a tick on you, and have no bullseye rash, you can get lyme or a similar tickborne disease, because deer ticks are as small as the periods in this sentence, and birds can drop them. Plus, most doctors will only lyme test, when it's possible it's a different common tickborne disease.
I called an infectious disease specialist today, and he agrees that Lyme, or a similar tickborne disease is a very likely possibility. Problem is, Lyme tests are very unreliable. The lyme specialists treat based on symptoms.
Maybe this seems off-topic to all of you, but as I said before, Bethsheba felt that I should warn you all about this because she had seen many people on these menopause boards discussing vibrations, and wanted to make sure you all checked it out, as a precaution, if nothing else. I agree. Not many doctors are lyme-literate. Even in a rural part of Mass, where I live, and where deer ticks are as common as grass.
My handyman, my best friend's entire family, save himself, and many more people I know, all had lyme this year. Bethsheba and I don't want to see more people live with pain like so many have, because they tested negative, or didn't know what the cause could be. Please don't suddenly start assuming you have lyme. All I ask is that, if you are vibrating, have an infectious disease specialist screen you for common tickborne diseases. It doesn't take long to take the samples, and it could answer some questions. And if you're negative, then you at least know what it isn't, and please come tell us what it is that caused your vibrations, because staying informed is key.
Don't settle for "it's just stress" if you really, truly feel sick or scared. Get a second opinion.
Oh, and why didn't I consider menopause a possibility for my vibrations over the past few months? I'm 24. I know menopause can have some crazy effects on the body, but you should make sure it's not something else, just to be safe. Make sure your doctor doesn't just do an eliza. Ask for a full tickborne disease screen. And if possible, get the tests done by Igenex. They have the best, most reliable tickborne disease tests in the country.
I realize this post might seem a bit over-the-top, like I'm talking about some new plague. I'm not trying to scare anyone, and I don't want anyone suddenly terrified, and convinced they have lyme. I just want to ask you to rule it out.