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Old 11-13-2008, 10:36 PM   #1
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Is anyone vibrating inside?

Bethsheba asked me if I would post my story here. I'll admit, I wasn't so sure it was a good idea, but she said many people here were having vibrations. I had vibrations in my chest for some time. Mostly while trying to sleep, but others I have known had it while waking up, and a very few experienced it during the day. In the people I have spoken to, it has occurred in the legs, crotch, chest, arms.. Mine was in my chest alone. I also had ankle pain and swelling recently, and I've had random pains, in my chest, breasts, legs, arms, and neck. Headaches, vertigo, constant fatigue... Obviously I went to a doctor. The pains I could live with, as long as they weren't anything serious. The vibrations, however, scared the heck out of me.

I was diagnosed with carpal tunnel, costochondritis, sinus infection, and, big shocker here, stress. Lots of bloodwork ensued. My white counts and sediment rates were high. Doc suggested otc motion sickness pills for the vertigo, got a cortisone shot in my wrist, and said the vibrations were stress. Two months later, nothing had changed, except the frequency of pains (slight increase) and some different headaches. White counts and sed rates still high. I went back. I told him that other stuff can be explained but the vibrations are not normal. I believed I had lyme. It would explain everything.

He finally put me on antibiotics for my sinuses (Doxycycline. Clever guy knew it's great on sinus infections AND it's one of the best antibiotics for lyme... But didn't tell me that part.). The vibrations went away within days. The frequency of my non-chest pains dropped significantly, and my ankles, knees, and shoulders markedly improved. When I told him about the improvements, he said he expected that might happen if it was lyme. Still waiting on the chest pains to improve, but he said that could take longer if it is lyme. I asked him if he finally believed me. He said yes, and if two more weeks of antibiotics didn't finish it off, then I go to an infectious disease guy. I didn't promise to wait, but I probably will. I am finally starting to feel better.

Lyme has a known symptom of vibrations. Lyme is epidemic in this country right now, and not even my doctor, one of the best I know in Mass, suspected. Why? Because lyme can present as nothing. No symptoms. Or it can have a mess of them, and they all look like other conditions. Or something in between. It can have some strange neurological and physical effects. Even if you live in a city and never found a tick on you, and have no bullseye rash, you can get lyme or a similar tickborne disease, because deer ticks are as small as the periods in this sentence, and birds can drop them. Plus, most doctors will only lyme test, when it's possible it's a different common tickborne disease.

I called an infectious disease specialist today, and he agrees that Lyme, or a similar tickborne disease is a very likely possibility. Problem is, Lyme tests are very unreliable. The lyme specialists treat based on symptoms.

Maybe this seems off-topic to all of you, but as I said before, Bethsheba felt that I should warn you all about this because she had seen many people on these menopause boards discussing vibrations, and wanted to make sure you all checked it out, as a precaution, if nothing else. I agree. Not many doctors are lyme-literate. Even in a rural part of Mass, where I live, and where deer ticks are as common as grass.

My handyman, my best friend's entire family, save himself, and many more people I know, all had lyme this year. Bethsheba and I don't want to see more people live with pain like so many have, because they tested negative, or didn't know what the cause could be. Please don't suddenly start assuming you have lyme. All I ask is that, if you are vibrating, have an infectious disease specialist screen you for common tickborne diseases. It doesn't take long to take the samples, and it could answer some questions. And if you're negative, then you at least know what it isn't, and please come tell us what it is that caused your vibrations, because staying informed is key.

Don't settle for "it's just stress" if you really, truly feel sick or scared. Get a second opinion.

Oh, and why didn't I consider menopause a possibility for my vibrations over the past few months? I'm 24. I know menopause can have some crazy effects on the body, but you should make sure it's not something else, just to be safe. Make sure your doctor doesn't just do an eliza. Ask for a full tickborne disease screen. And if possible, get the tests done by Igenex. They have the best, most reliable tickborne disease tests in the country.

I realize this post might seem a bit over-the-top, like I'm talking about some new plague. I'm not trying to scare anyone, and I don't want anyone suddenly terrified, and convinced they have lyme. I just want to ask you to rule it out.

-Chikazz

 
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Old 11-14-2008, 01:21 PM   #2
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bethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB User
Re: Is anyone vibrating inside?

Chikazz , you couldn't have summed it up any better!! Thank you!

Last edited by bethsheba; 11-14-2008 at 01:22 PM.

 
Old 11-15-2008, 06:36 AM   #3
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Re: Is anyone vibrating inside?

Glad you like it I was wracking my brains over it >.< I'm so terrible at writing.

 
Old 11-17-2008, 12:59 PM   #4
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Re: Is anyone vibrating inside?

Thanks for your story.

I have had internal daily vibrations or shaking for almost a year now. Had it once before in 2003 for a few months and then it died down greatly to only occasionally when I laid down. In 2003/04 I was tested several times by several Dr's for lyme, including by a reumatologist as well as other Dr's, in a few months time and all came back negative. All were done via bloodwork. Back then I had many other symptoms as well, which I don't have now.

New internal shaking came on during the winter this time, where I was not outside at all, however I was under extreme stress due to daughters illness and my new condition of BPPV, which is another story. I think for me it put me into anxiety mode some how.

I may ask for another lyme test next time I go to Dr. Certainly can't hurt.

thanks

 
Old 11-17-2008, 05:35 PM   #5
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Re: Is anyone vibrating inside?

Silly...

Based on what I've read on the lyme boards, many recommend making an appointment with a Lyme Literate Medical Doctor as other docs aren't current on testing and treatment.

You might want to see what others who have actually been diagnosed (i have not) with Lyme recommend.

Bethsheba

 
Old 11-17-2008, 10:22 PM   #6
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Re: Is anyone vibrating inside?

I agree with Bethsheba, but on top of that, ask for a full tickborne disease workup, and not just a lyme test. If you do just ask for a lyme test, ask specifically for a western blot, and not just an ELIZA, as they are more unreliable. Most doctors use the ELIZA, and only confirm with a blot if the ELIZA is positive, however, ELIZA tests are very unreliable. I have known a few people who tested negative repeatedly until they got a workup from Igenex, including a proper blot test.

 
Old 11-25-2008, 07:18 AM   #7
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Re: Is anyone vibrating inside?

Hi. We have a Lyme Specialist in our town. I will be going back to Dr. soon and will ask. I do know if I am nervous or scared I shake more, so don't know if that happens with lyme or just anxiety. I am also having vertigo and dizzyness issues due to inner ear problem ( BPPV) which makes everything worse. Other than those two and being tired, I don't have other symptoms. I went down this path with thryroid testing, asked for extra tests, but all came back negative including antibodies. However I just feel so rotten daily I need to do more.

Thanks again

 
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