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Old 03-10-2012, 07:45 PM   #1
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Question Spotting after 5 1/2 years

Hello all,
I have been on tamoxifen for 5 years to shut down my ovaries, I had ER+ breast cancer and periods stopped after first chemo treatment Sept 2006 5 and half years ago, doc's said I was in menopause and if I had spotting to come in and get checked. This week 4 months after stopping tomaxifen I have been spotting, at first brown then a pink to red, cramps, mood swings, low back pain, it lasted a day then stopped, and started again a day after stopping (cramps never stopped, this has gone on for a week now and I was hoping someone might know whats going on. I am a little nervous and need advice. I will be 49 in a couple months and I feel like I'm 11 years old again
I do have 3 doctor appointments next week Onc, Gyn and Primary.
Thanks for helping me,
Emmy

Last edited by emmy001; 03-10-2012 at 07:48 PM. Reason: MISSPELLING

 
Old 03-10-2012, 08:06 PM   #2
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Re: Spotting after 5 1/2 years

Also have been having blood in my urine and had many tests done that have came back negative for anthing that could cause it.

Last edited by emmy001; 03-10-2012 at 08:09 PM.

 
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Old 03-10-2012, 08:18 PM   #3
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Re: Spotting after 5 1/2 years

hi emmy001. not sure if the tamoxifen had something to do with stopping your periods. you're still kind of young to be in full blown menopause. my periods didn't stop until i was 52. they had stopped the previous year for for almost a year and then started again for a few months. after 2 1/2 years i had another period. they did testing on me but could not do a biopsy because of previous scarring from either a previous biopsy or my sjogrens. doc's aren't sure. that was in november and now i'm spotting but haven't actually started a period. i think when our bodies are altered in some way....by disease, that they may react weirdly. i wouldn't worry...just make sure that you get it checked out. my gyna said if i had another period to call him and make an appt. not sure if i'm helping....but hang in there and wait until you see your doc. i have to call mine on monday. good luck.

 
Old 03-10-2012, 09:30 PM   #4
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Re: Spotting after 5 1/2 years

Thanks BooBoo, It's the chemotherapy that was supposed to have put me into menopause, (fried the ovaries) so the doc's are worried my estrogen may start feeding the cancer again, So looks like they will put me on another Aromatase inhibitor to shut down the ovaries They thought I was done with all that menopause stuff and would have no worries, (under 40 function of ovaries likley to return, 40 and over most likley not to) I guess I'm gonna be one of the unlucky ones)

Thanks again BooBoo

 
Old 03-10-2012, 10:13 PM   #5
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Re: Spotting after 5 1/2 years

you don't know if that's what's going on. just wait until you see your doc emmy. no sense in worrying now. i don't know how to do a hug on here....so i'm giving you one. let me know after you see your doc, okay.

 
Old 03-11-2012, 10:59 AM   #6
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Re: Spotting after 5 1/2 years

Thank you BooBoo, I'll have some answers tomorrow hopefully.
I try not to worry but it's hard when out of 6 brothers and sisters 5 have had cancer and my last brother is fighting lung and larynx cancer now(it's not looking good)

Thank you for your kindness,
Emmy


 
Old 03-11-2012, 11:53 AM   #7
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Re: Spotting after 5 1/2 years

miracles do happen emmy. just gotta believe.

 
Old 03-11-2012, 12:49 PM   #8
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Re: Spotting after 5 1/2 years

Yes they do, I'll keep you updated.
How is it going for you, everything ok?
Emmy

 
Old 03-11-2012, 01:00 PM   #9
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Re: Spotting after 5 1/2 years

ohhhh....i'm going through a lot of different changes that i still don't quite understand, but i'm trying to cope with it. i'm getting so sick of seeing specialists all the time. i get more answers from doing my own research than i do from them. i joined this site because i find that trying to help others, keeps me from focusing on my own problems. in the past 5 years, i helped looked after my dying uncle, then my mom and my stepfather just passed away in august of last year. i was working full time and doing all of that and now i work part time and wonder where the heck the energy went that i had then. but...that's what these autoimmune things do to us i guess. thanks for asking emmy. that's sweet of you.

 
Old 03-12-2012, 03:36 PM   #10
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Re: Spotting after 5 1/2 years

Hi BooBoo sorry for what you have been through, I've lost 2 brothes, dad, grandparent, uncles, aunts, cousins and a sister in law plus a few others to cancer.
Like you I'm sick of the specialists but gratefull.
Doc said today spotting of anykind is not normal for me so I know this week and next is gonna be long and painful but I'll hang in there and do as I'm told.
Hope your feeling better and my thoughts are with you.
Emmy

Last edited by emmy001; 03-12-2012 at 04:03 PM.

 
Old 03-12-2012, 06:42 PM   #11
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Re: Spotting after 5 1/2 years

thanks for the kind words emmy. i don't always believe everything that doctor's say and i'm praying that this is just a fluke. i know you're strong and you just need to draw from your inner energy and you will be fine. my thoughts are there with you too. let me know how things are going okay.
wendi

 
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Old 03-16-2012, 04:17 PM   #12
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Re: Spotting after 5 1/2 years

Well back from the Gyn and Endometrial lining was 19 mm thick ( should be 5 mm for post menopause), and uterus was the size of a large grapefruit, he said it looked like an 8 week pregnancy, So the dreaded surgeries began. Wed. I go for diagnostic D&C with hystoscopy + eta (what is eta) needs to be looked at ( Doc wouldn't tell me if he thought it was cancer)

Doc said I was definitely post menopause and should not be spotting.
Thanks I will keep you updated

Emmy

 
Old 03-16-2012, 05:55 PM   #13
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Re: Spotting after 5 1/2 years

i still have faith that this is going to be okay emmy. stay positive, no matter what. cancer is a difficult disease. my mother started with a blood disorder called myelodysplasia. the white blood cells rise and the red drop. in 40% of the elderly it can develop into leukemia...which it did with my mother. the whole thing was that my mother was a jehovah's witness and the only treatment for this disorder is blood transfusions or stem cell transplant, which of course...she refused. my mom was getting very weak and started getting a lot of panic attacks. i just said to her....just live. surprisingly....the day she went into the hospital....she went out in the service with her friends from her religion. she came home exhausted and had a nap and when she woke, she started vomiting. she died 2 weeks to the day after that. i understand what you're going through and that's why i say....stay positive. the mind has amazing ways of dealing with ailments in the body. not sure if you might be interested in this, but there's a new form of healing the body, called...qigong. dvd's are available online and i have friends that are into it and think it's wonderful. once you get everything taken care of....you might want to look into this. hang in there emmy....you can do it. keep in touch and let me know how things are going okay.

 
Old 04-07-2012, 08:26 AM   #14
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Re: Spotting after 5 1/2 years

Hi BooBoo, wanted to let you know I had the surgery and had quite a few large polyps removed plus entire Endometrial lining, all came back cancer free but if bleeding dosen't stop may have to have hysterectomy.
Thanks for your support and I hope all is well with you.
Emmy

 
Old 04-10-2012, 03:01 PM   #15
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Re: Spotting after 5 1/2 years

Hi there, been following your case on HealthBoards. I am having the same procedure as you next week. Been in menopause for 3 years and have been having cramps. Did a transvaginal ultrasound and came back with the lining at 6cm. My doc wans to do the D&C plus the cameral look around. I have had surgery in the past, but for some reason, terrified. Says it is in and out. But we need to go under. I do not inabate real well and get sick after surgery. How did you feel. I also understand, everyone is different, but any feedback would help....by the way, so happy all is clear with you!!! janie

 
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