I'm looking for others with a chronic, red, burning scrotum problem -- often called "red scrotum syndrome" or "red bag syndrome". I have had this for over a year and it is significantly affecting my life. I know there are others out there with this condition who are frustrated, and I want to try to put together a forum where we can share ideas and see if we can figure out some kind of resolution. I have been to a number of doctors about my case and most of them are of little help. Is there anyone out there who has ever gotten rid of this condition? Does it eventuallly go away by itself?
Dermatologists insist this condition is not caused by an infection, but I am convinced that they are 100% wrong in this assertion. The most distinctive characteristic of my case is that the redness has had the exact same boundary the entire time and the boundary follows the boundary of hair follicles EXACTLY. This is characteristic of some type of bacterial infection. Irritation would not have such a well defined boundary for so long and coincidentally follow the hair follicles so closely. Have others noticed this about their case? I have a theory about the type of infection that causes this, and luckily it is not contagious. Unluckily, it is a type of infection that would be extremely difficult to resolve with the medications currently available on the market.
Anyway, hopefully we can get some more posts on here and bounce some ideas around. If you have this condition, please feel free to share details about your case (patterns, how long it has lasted, theories about the cause, anything that has helped with the symptoms, etc). Maybe we can get this miserable condition figured out.
JinL -- How long did it take for yours to resolve? I have been using strong antibacterial agents like chlorhexidine with no success.
clwilson -- definitely let me know what you find out. My theory is that this is a bacterial "biofilm" infection (probably Staph). I think it happens when you leave vaginal fluid on your scrotum overnight. Bacteria in a fluid environment are able to create these films. The bad news is these films are highly resistant to all kinds of antibiotics/antiseptics. If you want, run this theory by the docs at Duke and see what they say.
sq10680, I think you might be on to something. I developed this exact same problem about 3 days after unprotected sex and not cleaning up. Damn annoying as I'm sure you already know. I'm curious to know if you're making any progress with your self-treatment.
Just wanted to write back with an update. Unfortunately, I still have the problem...going on fifteen months now. I know how much this sucks so I wanted to share some of the information I've found. I've read some anecdotes of other guys getting rid of similar problems by using Gold Bond after every shower. I think the trick is to be persistent as this is not something that will clear up in a few days or even weeks. It will probably take months (if it clears up at all). What I am doing now is showering twice a day and applying Gold Bold (green bottle) liberally after drying off. I'm going to keep this up for awhile and see what happens. I started a few days ago so I'll write back about any progress.
Something like this will sure teach you to clean up after sex...hell of a way to learn such a lesson.
I've recently been to the dermatologist and diagnosed as having this "red bag syndrome", too. My condition is not painful, though it used to be sore and itchy like a bad jock itch. Now I just have a red scrotum, with a defined line right where the scrotum meets my body, which has not spread or anything like that. I've had it since like last memorial day, so what is that, ~6 months?
I ended up at the dermatologist after trying numerous anti-fungal medications from my regular doctor, and after keeping talcum powder on me did nothing.
The gist of what the dermatologist said, was that they don't really know exactly what causes RBS, but they pretty much know what to do a/b it. He prescribed me Alcortin, which is like an anti-bacterial, anti-fungal, and topical sterroid (for the slight inflammation/redness) all in one cream. I've been applying Alcortin twice daily regularly for a little less than a week now, and it *SEEMS* to be helping. Cross your fingers...
yik -- Thanks for the input. Definitely write back about any progress. I'd be interested to hear if the Alcortin works. Since it has some antibacterial activity it might be something that will work after awhile.
I've been continuing with the Gold Bond after every shower and while there has been no change in the redness, the skin does seem to feel better most of the time. We'll see how it goes for awhile.
I have had this going on 2 1/2 years, but in my case it started on a mission trip in Mexico working in the heat, etc. I thought it was jock itch for that reason, but it has remained to the present. I suppose that the bacterian might have been introduced by the shower, environment, etc down there.
I have gotten relief at times during beach vacations while swimming daily in salt water; none of the anti-bacterial stuff prescribed by my doctor has helped, so I eagerly await the latest from yik. I had tried Gold Bond but gave up after it seemed to inflame rather than help the situation. Sq10680, what type of Gold Bond are you using? I'll try again.
That's interesting how you say yours started, squire. Was there anytime when there was moisture covering your skin for an extended period of time?
The Gold Bond is definitely worth another shot. It has provided the best symptomatic relief of anything I have tried. I'm using the extra strength body powder in the green bottle. The regular strenth is in a yellow bottle. Keep checking back...hopefully we'll find someone who has gotten rid of this.
Let's get to the bottom of this. I've been to at least a dozen doctors for my symptoms--going on a year and a half--which i'm sure are the same as many of yours. Burning, red, swampy scrotum continuing up to the perianal area, and under the buttocks, most noticeable while sitting. It appeared within several days of a sexual encounter--my theory is that it had something to do with the lubricant i used. I've tried prescription steroids, antifungals, antibiotics--no effect. Right now I'm using topical otc Lamisil and Gold Bond Green--it relieves much of the burning throughout the day, but nothing is going away.
I'd like to find a doctor who WANTS to treat this. Isn't there someone who wants to do research? good grief, this is clearly something that's going around and the doctors i've been to just pass me off to someone else. and what's worse is that every doctor says something totally different: "it's excezma", "it's clearly intertrigo", "it's probably nerve damage", "I don't see anything," "It could be Red Scrotum Syndrome, but there's dispute whether RSS even exists," "it's psychosomatic..." Give me a break! I know my body--and these nimrods have no interest in figuring out what's wrong or treating me. They simply forward me from specialist to specialist then i'm back at square 1.
Are there any doctors interested in researching this? There must be someone. I will gladly volunteer.
also, just a general question: I've largely abstained from sex for fear of passing this on. Have any of you been able to have a normal sex life?
and the question of the year: Has anyone gotten rid of this??
Hey man, I know how you feel. I tried going to doctors for awhile, but it was worthless. I've stopped going. Basically this is something that the field of Dermatology has seriously dropped the ball on for awhile, and it doesn't seem like any of them care about figuring it out.
I wouldn't worry too much about having sex. This is not some kind of transmissible disease that all of us caught from an infected partner. We got it from temporary poor hygiene and nothing else. However, I would be careful to always clean up after sex. Any kind of moisture (vaginal fluid, etc.) left on the affected area for an extended period of time may make things worse.
I've been using the Gold Bond Green twice a day for about a month now. The redness is still not going away, but the skin continues to feel much better most of the time.
If anyone finds out any new info, definitely post.
I think I may have the same problem, but I'm not sure of the cause. I've never has unprotected sex, or not cleaned up afterwards, so that can't be it. Only thing I can think of is that sometimes pretty much everything below my waist sweats a lot when im sleeping if I have a lot of blankets on, which I usually do.
Anyways, after having these same symptoms for about a year, I've gone to dermatologists and physicians, and gotten 2 types of pills, and at least 6 topical creams. Most of the doctors said I had "lichen simplex chronicus" or something like that. None of them have worked yet.
Today though, I had an appointment and the doctor told me I might have this Red Scrotum Syndrome, and he prescribed me anti-depressants for it. Apparently it's supposed to help with the nerves, or something along those lines.