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Old 10-26-2009, 12:43 AM   #1
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Chronic Red Burning Scrotum

About Red Scrotum Syndrome, Red Scrotum Disease, Red Scrotal Syndrome

I started on Oral Doxycycline treatment 4 days ago.
No improvement at all yet. We'll see.

Last edited by Administrator; 04-28-2010 at 03:04 PM.

 
Old 10-31-2009, 04:10 AM   #2
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Re: Chronic Red Burning Scrotum Thread 9

Well some rather disappointing findings on my part. It appears what I had was not Candida, Yeast or any type of parasite although the change in my diet and some of the other more natural things helped to clear me out and make me healthier. I had a neat test done after my MMS treatment and it confirmed I had no parasites or yeast or candida and I did before so at least that worked for that but the MMS treatment did not cure the problem down there. it appears my problem has no cure. My biggest fear was confirmed finally by personal research, my family Doctor and a Derm. I know I largely criticize Doctors and such but my Doctor I must say has been really good. They can be really hit or miss but at least he listens and talks and sympathizes to the extent he can. The Derm is older and has lots of experience so at least I know he has seen lots of ****, he was also nice and such. What I first thought it was and most dreaded, is what it does appear to be and is the only thing that makes any sense seeing as nothing has helped it at all.

Inverse Psoriasis. Disaster. It is a total mofo and it can only be managed until I guess one day it might go away. It appears mine flared up a year ago probably due to massive stress and getting completely burnt out. I have accepted that there is no curing this and really there only appears to be coping. It sucks large. I am not working at the moment so quite broke, no girlfriend and no desire to get one as it is quite embarrassing and it can totally consume you sometimes. I have trouble doing things I want to sometimes and it can be sheer hell. Anyways, not fun but that appears to be the way it is for me. All I am trying to do is eliminate stress, rest up, apply some moisturizers and hope it goes away. The derm gave me steroids but these have never worked well for me and are really only a temporary relief and require continual use until maybe it goes away. Prolonged use of that stuff can be bad so I just don't even bother.

For me cope is the only cure, and that is a tough pill to swallow.

We all could have different things, but if it is Psoriasis the research I have done and the information that is out there is not very promising. You could have any number of skin issues which seem to be just really hard to treat with no known reason the arise. Genetic possible? What is your family history of skin issues? My Dad and Mom both have different skin issues, my Mom has a bit of psoriasis it appears of course I get blessed with the Inverse but hey what are kids for right? I think the best thing you can do is not stress. The last year I was hell bent on solving this and the tests and failures and inability to work and the irritability of it caused massive stress. What I am finding now, the more I relax and eliminate stress, the more it becomes manageable. It is still annoying as hell, but acceptance is a good first step. No stress is my goal and hopefully it will up and vanish because of it, if not well at least I won't have stress which should help in other areas. I browsed a Psoriasis forum a few times and it is a pretty depressing place and it just seems totally hit or miss when it comes or goes. I also have plaque psoriasis on my hands and a bit on my elbows which helps to confirm that is what I have. The plaque is manageable, the bloody Inverse is disaster though. You should check other areas of your body for some skin issues, maybe Psoriasis is what you have. Pray it is not, although at least you will have closure. Unfortuantely finding out it is Psoriasis is closure equivalent to finding a missing persons dead body, there is closure but ain't nothing bringing them back.

Anyways. I haven't posted much, for awhile and may never again now that I know where I stand, or itch and shed I guess.

Good luck.

 
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Old 11-02-2009, 12:16 PM   #3
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Re: Chronic Red Burning Scrotum Thread 9

I'm very sorry to hear that, Anon.
I wish you the best of luck. I hope someday this hell-born syndrome will be cured from us all.

As for me,
I started oral doxycycline 11 days ago. I stopped using it 6 days ago.
I believe I am alergic to this drug. I developed a full body rash that looks really nasty. I believe they called it "drug extrusion" which basically means an alergic reaction to a drug.

I've been going through a full-body chronic itch now, which makes it even worse. I will stop taking this antibiotic now. I have bumps on my palms and fingers all around. It looks real disgusting. I had to stop and scratch about 5 times just to write this.

CONCLUSION:
Oral Doxycycline has helped with my Red Scrotum thus far 40% after 6 days of treatment. Unfortunately for me I'm alergic to it.

Last edited by Mod-S4; 11-05-2009 at 07:48 PM. Reason: Huge quote removed.

 
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Old 11-05-2009, 06:33 AM   #4
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Re: Chronic Red Burning Scrotum Thread 9

Anon1010, how did they determine that it was inverse psoriasis? Biopsy? Because nothing else fit? I am just wondering because it is the first I have heard of this being the case on this board. That seems like such an obvious thing that I would think all these cases would be determined to be inverse psoriasis instead of (Red Scrotum Syndrome) or (scrotodynia).

Last edited by Mod-S4; 11-05-2009 at 07:47 PM. Reason: Huge quote removed.

 
Old 11-26-2009, 04:52 AM   #5
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Re: Chronic Red Burning Scrotum Thread 9

Hi all,

Ive been watching this thread since its inception - thread 1. There are some pretty interesting discoveries being made, some of them still standing and whilst others fall away. Firstly big ups to all of you for persisting. I want to share my own experience and improvements which have been MAJOR. I had previously suffered RBS for 4 years. Sometimes going then returning - each time getting a little worse. Balls sqack getting stickier, more saggy, more red until it was just beetrooot red for weeks, if not months. then irritation spread into my inner thigh area and the head of my penis and part way down the shaft. It has gone through all manner of variations - and until recently if was completely ******* with my sex life to the point of me not wanting to even go there. i would spend my days - and nights - fixated on it - it was itchy or irritating and often my thighs and sac would burn to high hell. It was taking over. I monitored my diet and went through various stagess of testing things out on myself. I even ran a course of Doxycycline as per what has been mentioned on these threads - after checking with the clinical trial for myself. Various things have helped and other things have not. Below I have listed what has helped and would eventually lead to close to cure for the condition. It is early days but I have been without any serious incidence for three weeks now and am happy to keep posting.

What has worked....

1. Cutting out coffee completely - I noticed some improvement in all symptoms especially irritaated balls within 3-7 days. I have trialed this on and off about 5 times and it works to some degree every time.

2. Taking large meals of green vegetable salads. I have tested many different vegetables and fruits over the years. the following ingredients worked the best - Cellery, Capsicum (bell peppers), Cucumber, Broccili. I have very large portions which would take 20-30 minutes to each, in two to three days I woulod go through two full bunches of cellery, three capsicums, one large stem of broccili and at least one, in not two long cumumbers. These ingredients are highly alkali to the system and also clean the bowel.

3. Pro-biotics - capsules. I use the refirdgerated type, I have had better results with them but I am not an expert on this, its just my experience.

4. No sugar, wheat, flour, milk in diet. This means very little fruit due to fructose and staying away from high starch/sugar vegetables such as potatoes to some degree.

5. No alcahol - especially beer and wine, if any alcohol then only vodka straight or with soda water will do. However, now I tend to stay away from it all as I am very much recovered.

I am not going to go into the theories behind this particularly. I will say that the most important thing for me is the mega huge portions of vegetable. they seem to clean out the system and provide a very alkaline influence in my system. this tends to also explain why staying away from coffee is the next most important as coffee is highly acidic to the system -so too is alcohol. On the pro-biotic and candida like diet as well it has been postulated that improvement in the digestive system keeps acidic bacteria out fo the digestice tract and reduces the amount putrification in the intestines.

Anyways, the above explanation is just theiry, its the function that matters. I have seen about 10 doctors and many many specialists on my skin condition and the candida type symptons (tiredness, exhaustion, memory issue, other skin conditions, etc etc etc) and it was one naturopath who is a biochemist who diognosed high acidity. He asked me to take ALKALA which is a sort of sodium bicarb some years back. Actually at that time it worked fantastically well and I just lgot lazy with it. It is possible that this would also work very well for me. However, I stuck with the super doses of green alakali vegies and they work fantastically well - and of course keeping my system in good condition with an anti-candida style diet and staying away from acidic bevs. such as coffee acohol etc.

For now I live a normal life and can have sex without any concerns. It takes work but I have my life back rather than being fixated and in horrible irritation all the time.

Hope it works for those of you who wish to have a crack at it

 
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Old 11-27-2009, 03:39 AM   #6
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Re: Chronic Red Burning Scrotum Thread 9

..can leaky gut syndrome be a cause for rss

 
Old 11-27-2009, 07:03 AM   #7
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Re: Chronic Red Burning Scrotum Thread 9

Quote:
Originally Posted by psychosak View Post
..can leaky gut syndrome be a cause for rss
Looks spot on for what I have experienced over the years and what has worked to remedy my physical condition as well as RSS irritation.

 
Old 11-29-2009, 04:05 PM   #8
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Re: Chronic Red Burning Scrotum Thread 9

Quote:
Originally Posted by none123 View Post
Anon1010, how did they determine that it was inverse psoriasis? Biopsy? Because nothing else fit? I am just wondering because it is the first I have heard of this being the case on this board. That seems like such an obvious thing that I would think all these cases would be determined to be inverse psoriasis instead of (Red Scrotum Syndrome) or (scrotodynia).
Well it was a matter of trial and error really. There wasn't one thing that sealed the deal.

When I started doing my research the thing I first thought it was was jock itch or inverse psoriasis, but you can't know for sure. Also the info on inverse psoriasis is depressing at best so I figured might as well put it to the test. I started trial and error methods to see if anything made it better. After personal tests and no results I went to my GP. The first thing he thought it was, was jock itch. After the normal ish didn't work he figured it was psoriasis. Of course he said it could be plenty of things like Candiasis, Yeast, Flushing etc. etc. etc. but after no tests came back showing any alternatives and the diet and treatments didn't cure it I went to a Derm. Immediately he thought it was psoriasis. He was old and had been in the game for awhile so he surely has seen his fair share of stuff. So he confirmed it and then when I compared everything and read more about it it really became obvious. I have a family history of skin problems and psoriasis and my hands and elbows have traces of it which is an indicator etc. etc.

So essentially it was like building a case. Sooner or later all the facts will lead you to an answer, mine happened to be inverse psoriasis. and it sucks, large.

That being said because of this my diet has become better, I am stricter on what I consume, I stay cleaner and have alleviated stress, so if this psoriasis ever goes away I'll be better then ever.

Just really look at pictures and stories and compare and relate and sooner or later you'll figure yours out.

 
Old 12-02-2009, 09:03 PM   #9
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Re: Chronic Red Burning Scrotum Thread 9

Quote:
Originally Posted by better balls View Post
Looks spot on for what I have experienced over the years and what has worked to remedy my physical condition as well as RSS irritation.

I completely agree that leaky gut syndrome is somehow related. Aside from the itchy scrotum, this condition is also associated with chronic fatigue, fibromyalgia, difficulty breathing, back pain, joint pain, chest pressure, foggy memory and general whole body unwellness. I am not saying that all of you have all of these symptoms, but almost all of us have some type of combination of them.

In order to deal with this, I have tried all the vegetable stuff and a strict vegetarian diet that was mentioned and that has really helped fortify my immune system and make the blood more oxygenated, which incidentally reduces acidity.

With all of this in mind, I spent 3 years researching and trying to treat a yeast infection with all kinds of antifungals. I tried homeopathic medicine and some other unorthodox methods that helped a little bit.

After much reflection and much research, I came to the conclusion that what I was dealing with was a bacterial infection that is perhaps coupled with a fungal infestation.

The bacteria that I believe most closely resembles the symptoms I describe above is Mycoplasma. It is very difficult to test for and thus difficult to treat. When scientists first discovered it they thought it was a virus because it straddles the field between viruses and bacteria. I have been taking clarithromyacin antibiotic now for almost 20 days and it seem that my body is reawakening and renewing from this affliction. The leaky gut symptoms have disappeared, the fibromyalgia is going away, fatigue is clearing, and I am noticing small improvements in the scrotum itching. From the articles I read, it appears that clearing Mycoplasma from the body may take months!!!

Many doctors had tested me in the past and came up with negative results for any infection. The last doctor I spoke with diagnosed me based on my symptoms. I made sure that I was prepared with what I wanted to say to him, and it seems that I was convincing enough. I told him that antifungals had not worked and that led him to prescribe clarithromyacin. Please read up on Mycoplasma, Ureaplasma and related topics.

Last edited by i7777; 12-03-2009 at 09:13 PM.

 
Old 12-05-2009, 07:57 PM   #10
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Get Zen I say - it worked for me

Hi all,

I've followed this thread for a good year or two and am posting now because I've had good progress and I can see that others have as well. I feel now is a good time to chime in.

Partly due to my experience with the problems we've all listed here, I have, over the years become more and more spiritual about things so please excuse the zen vibe of my post, but I do believe it has had a major impact on addressing this problem:

1) while for many it seems that topical and single treatments work to an extent (endep, cortisone, etc, etc all worked to an extent for me), I believe it's definitely, without a doubt, symptomatic of overall un-wellbeing, starting from the inside. It needs a holistic approach.

2) There are incredibly complex dynamics interacting with each other in our bodies and I don't think your average (western?) doctor or resulting treatments really respect the complexity and fragility of how all our systems need to operate in harmony.

3) My symptoms always seem to come up when there's some other factor like anti-biotic use, poor diet, constipation, high stress, sciatic aggravation, etc going on.

4) When I have most elements in my life in harmony, my redness goes, my scrotum relaxes, my sex drives goes up and in fact everything else like sore muscles or tiredness goes as well.

Clearly, I'm no expert but what I do firmly believe is that we have evolved into a race that really is disconnected from our core selves, our earth and the universe, etc, etc... *play sitar music here*

I now exercise every day, I stretch, I meditate, I eat well however from these discussions need to eat WAAAY better (and the concept of the candida diet is something I'm going to look into), I'm now ditching any anti-biotic use unless I'm about to die, I do my best to simply not think about it and I look after my lower back and core strength.

On the nerve / lower back side of things, when I lie down, it's all good. When I stretch it almost instantly gets better. When I'm sitting or if I haven't exercised, the symptoms return. I got a lumbar xray and had a minor bulged disc and while it didn't show nerve compression (because you do the xray lying down), when standing I definitely feel sciatic pain down the leg so there HAS to be nerve compression going on somewhere.

And just finally, on the diet / bowel side of things, when my bowels are operating really well (ie; properly), symptoms subside considerably. Generally, we eat crap and we're meant to crap crap not eat crap.

So, I dunno if that helps anyone and I'm not saying I have found a solution. I've just found that the more zen I get the less I seem to have these complex problems. And in a weird kind of way I'm glad it was something like this that motivated me to actually start looking after myself because if it wasn't this, it could be something far, far worse.

 
Old 12-06-2009, 09:55 PM   #11
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Re: Chronic Red Burning Scrotum Thread 9

This has been the best thread for my issue so far.

My problem is very similar to some of the things i have read. My exception is that i have no rash, flaky skin or much of the said symptoms. I only have itching, and the redness probably associated with my constant touching of moving of my boys trying to inspect them and or make them comfortable.

I visited a hotel a week or so ago with my GF, who i had been sexually active with for at least a month and a half prior and frequently with no reaction. During our stay i noticed that i had an intense itch and i immediately assumed it was from not washing up after sex. We had sex many times a day and did not shower right afterward.

I washed up and it didn't feel much better, so i thought that i was suffering a reaction from not washing the hotel soap off my body completely. I purchased some of the soap i use frequently at home and things got better, i was able to ride home on the plane without any itching.

When we landed me and my GF had sex again and the itching started again, but slightly more intense. I normally use gold bond on a daily basis before the itch and i noticed that i helped, but not completely eliminating my issue.

I started to investigate. I took note that a few weeks prior my GF claimed to have been irritated by a lubrication we used. The lubrication is a very good brand and is allergy tested, so i was curious if that was truly the cause. We had tried anal sex and in the course we also had vaginal sex. I remembered thinking that might have been the cause of some irritation and the transfer of some germs or bacteria to her vaginal area.

My girlfriend also douches, which is something that is known to increase the number of bad bacteria in the vagina due to out of wack PH levels and thus is no longer recommended by gynecologist

I would not call this an STD but maybe an STI? My GF and i are very careful about STD's and i have been tested recently for HIV (negative). I think that for various reasons the levels of bad bacteria in her body could have been elevated. We had sex and those bad bacteria landed on my crotch, a warm damp area. Over a period of time they started to cause me problems, even though my girl had no symptoms at that exact time....but possibly a few weeks earlier.

After a few days of agony, i came across this thread and others. One doctor did recommend using alcohol to remove any type of irritants or bacteria soap cannot do alone. This has worked best for me with a combo of other things.

I wash with antibacterial soap and let dry.

I then wipe down my area with 70% alcohol.

I wipe down again with warm water and dry.

I apply lamisil deodorant and anti fungal powder in the can, i too thought i had jock itch, but the powder works good and eliminates the possibility of fungus.

I then apply a bit of goldbond powder as well.

After this type of treatment i was able to go a great deal of my day virtually itch free. When i got home i did the process again...i am hoping to wake up just fine in the morning.

To give some credit to the nerve theory, i have issues with my sciatic nerve on my right side. I was about to take Roids to get rid of the inflammation but decided not to for a bit. From what i hear, it would have made things worse for me

Last edited by RidersRevenge; 12-06-2009 at 09:58 PM.

 
Old 12-07-2009, 03:10 PM   #12
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Re: Chronic Red Burning Scrotum Thread 9

I wish I had some good news here, but I'm really just posting to let everyone know that my condition is still the same. Just didn't want you guys to think I'd found a cure and left you out on the info. I will say that I've tried some serious anti-fungals and they did not work. So now I'm moving back to trying long term anti-biotics (doxy) if I can. Sorry for the long break in posting.

 
Old 12-09-2009, 12:17 AM   #13
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Re: Chronic Red Burning Scrotum Thread 9

Hi all, just reporting 5 weeks down the track, condition still damn good with on outbreaks, no major issues, a couple of time I noticed a slight irritation after violating diet and going into acid forming foods (large quantities of meat). Life is worlds apart now keeping acidic foods out and sticking to sort of candida and leaky gut style diets, etc.

Obviously, I prefer going back to a more normal regime and that is my aim so Im working on repair type supplements and processes and will keep tabs on my intestinal condition via stool samples such as those taken by the more advanced alternative diagnostic labs.

Either way, Im not going to make any assumptions or provide too much opinion as who really cares too much on the why but rather what works, but happy to report how it goes, for now my RSS is still under control by staying away from the food mentioned in my earlier post and adding a ton of green vegies.

Last edited by moderator2; 12-14-2009 at 01:50 PM. Reason: please do not post websites except as described in the Posting Policy

 
Old 12-10-2009, 03:56 AM   #14
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Re: Chronic Red Burning Scrotum Thread 9

Just wanted to report that my method has been successful so far. I have no more itching and my coloration looks normal.

I took a pause in my "treatment" to see if the symptoms would come immediately back and lucky me....they do not.

I will do the process again for a few more days to make sure, but i think i have this beat so far.

I did not make significant diet changes.

 
Old 01-04-2010, 02:18 PM   #15
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Re: Chronic Red Burning Scrotum Thread 9

I have the same problen since october 2009, at least i think i have the same problem. basically, i have red balls, that become more inflamed iin the evening. I have no itch or pain and there is a clearly defined border of redness. Is this similar to you?

 
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