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Old 09-30-2010, 12:41 AM   #1
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Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Hello just wondering if any one have any thoughts or connections between sleep apnea, low testosterone and polycythemia? I'm being treated for sleep apnea with a cpap and also have the testosterone therapy the pellets implanted in my hip. Have been crazy tired thought I had the wrong pressure setting which was correct. But now it turns from a blood test I have low iron, low b12, and I have elevated red blood cells and white blood cells. Doc thinks maybe polycythemia and has ran every test in the book right now. Doing phlebotomeys to lower rbc, WBC and bring my testosterone down a bit to see if that helps any thoughts.

 
Old 09-30-2010, 12:54 PM   #2
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Thank you for your post. This all started from extream fatigue and thinking I needed a better pressure setting but test said I was fine. Sleep doc on a lark did blood test and found very low iron and b12. She put me on iron and b12 for month in meantime saw hematologist who did blood tests and found high ed blood cells and high red blood cells and low iron and low b12. Had red blood cell mass test which prooved I had elevated red blood cells. Also had pulse oximety test which was normal. Also being treated for
Low testesterone and have the implant which raises my levels. Doc doesn't think testosterone therapy is the cause if it is polycythemia. Also from what he said I don't have the jk... Gene.

 
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Old 09-30-2010, 12:57 PM   #3
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Also had catscan of pelvis and abdomen but don't know results. Also have my second phlebotomy coming up on Monday to lower testoerone and rbc

 
Old 10-01-2010, 12:59 AM   #4
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Also I'm 33yeara old if I didn't mention it before. And i wish I could excercise more but my muscells feel like there burning or someone is gnawing at them. Tonight I had this crazy gnawing feeling n my arm, leg and foot. I also thought this was the Herniated discs.

 
Old 10-01-2010, 12:47 PM   #5
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

After the RBC is normal donate blood to the Red cross every 2 months. That will keep the RBC count normal.

Low testosteone will cause the symptoms you describe, but not the high RBC count.

High E2 will do the same. Get your Estradiol tested.
Your doctor may say males do not have estrogen problems. He will be wrong.

My testosterone was lower than my wifes & E2 was higher than hers.
I had the same problems as you have.

My Testosterone is now in the upper 1/3 of the range & the E2 is about in the 20s

 
Old 10-01-2010, 10:15 PM   #6
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Thank you for your help currently my levels for testosterone are high because of the implants I'm wondering if that's causing my elevated rbcs

 
Old 10-04-2010, 06:39 AM   #7
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

You did not state the testosterone levels & ranges for your tests.
Did they test for Estradiol E2?

If your T is about twice the high of the range that may be the problem.
A T gel raised my hemocrit & RBC to over range & I think polycythema.

I now use T injection so I can control the levels of T to the upper 1/3 of the range.
My T:E2 ratio is now around 30:1. Before I started Hormone controL MY T:E2 was 2:1, very low T & very high E2

 
Old 10-04-2010, 02:50 PM   #8
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

erythrocytosis is what the doc is calling. Did second phlobotomy and says rbc are dropping though free testosterone is slightly above normal. He thinks the rbc increase could be from testosterone, sleep apnea, or from a cyst on my kidney or some unknown but we have to keep an eye on to make sure I'm not sure of levels but I know testesterone 1was at 1000 at one time

Last edited by Crimsonwolf; 10-04-2010 at 02:52 PM. Reason: Typo

 
Old 11-03-2010, 02:11 PM   #9
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

I would have your doctor check your CBC counts if they are elevated above the norm (roughly 250,000, mine have been as high as 1.8 million), I have the exact same issues with Iron, testosterone, and sleep, but I have had Polycythemia for 11 years.

 
Old 11-13-2010, 04:42 PM   #10
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

My doc had me do a Red blood cell mass test which proved I had high levels for red blood cells

 
Old 12-13-2010, 09:43 AM   #11
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Quote:
Originally Posted by Crimsonwolf View Post
Hello just wondering if any one have any thoughts or connections between sleep apnea, low testosterone and polycythemia? I'm being treated for sleep apnea with a cpap and also have the testosterone therapy the pellets implanted in my hip. Have been crazy tired thought I had the wrong pressure setting which was correct. But now it turns from a blood test I have low iron, low b12, and I have elevated red blood cells and white blood cells. Doc thinks maybe polycythemia and has ran every test in the book right now. Doing phlebotomeys to lower rbc, WBC and bring my testosterone down a bit to see if that helps any thoughts.
I too am using CPAP and feeling fatigued which prompted my doc to test my testosterone, which the free testosterone was low. My iron and B12 were normal though.

Chronic OSA can also produce polycythemia. It is your bodies response in trying to increase oxygen transport. If you take someone and make them live on Mt Everest for awhile they too will develop a degree of polycythemia. That is why the olympics training headquarters is in Denver, CO. To a degree, it is beneficial for athletes to have polycythemia because they will fatigue less from exertion. There is also something called blood doping in which an athlete takes and stores their blood and adds it back in later increasing their red blood cell count....which is against most sports regulations. However practicing at higher elevations is not prohibited because it is a natural physiologic response. http://meeting.chestpubs.org/cgi/content/abstract/128/4/458S

You need B12 to make red blood cells so it could just be the polycythemia that is causing it to be low ie you produce so many RBC that your B12 plasma levels are low due to being involved in the RBC production.

I would recommend repeating your sleep study (titration study) to correct your pressures or going with an autotitrating machine like the REMstar Auto which is what I use.

 
Old 12-19-2010, 02:52 PM   #12
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Re: Please Help, low testosterone, polycythemia, low iron, low b12, sleep apnea

Already did a repeat of the sleep study they said it was at the correct setting there not totally shure what's going on but think the polycythemia is related to the testestesterone but we will see at the end of the month

 
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