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Old 07-05-2012, 03:57 PM   #16
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Re: penis damage from steroid creams

Quote:
Originally Posted by gator12 View Post
Hey guy202 & Boromir, how long has it been since you stopped using the steroid? From what I have read it can take anywhere between a few months to 3 years for it to heal. I'm considering asking a doctor to prescribe me doxycycline for it. There has been some research on that antibiotic cuing red scrotum syndrome. There is also some research by a dermatologist in California on red skin syndrome and topical steroid withdrawal you might find interesting to read about. It is a bummer, I just got a girlfriend too and not sure what to say when I can't do anything intimate with her and that sucks. So far I've been eating super healthy, cut out all soda, alcohol, most caffeine, and also taking a lot of supplements like vitamin c, a, e, zinc, tumeric, fish oil. I'm trying to exercise every day by going running. I wear loose fitting cotton clothes and don't apply any friction to the area. I think there has been a little bit of improvement but the burning and redness continue. It really is a shame though that doctors won't listen or communicate the adverse side effects of overusing steroids. I've been feeling down about it but trying to stay focused on the positive and do what ever it is to heal. If I come across anything that will help I'll let you know. Good luck guys and I hope you all get better too.
Hi, im 7.5 months after stopping steroids. I bought some bionect for a few days ago im waiting for it too arrive. I hope that it can thickens my skin or improve it somehow but not i´m not that hopeful.

Doctos won´t prescribe anything i been to many doctors they only say moisturizers and when they do prescribe things (steroids) they dont warn you about it.

I bought bionect online, and i will read carefully about it before i use it because i asked doctors but no one of them has any knowledge about anything, so no i am on my own.

doxycycline is it like retin? if yes then be careful it can give bad side effects, not everyone can tolerate it, i talked to another guy that tried retin a it was quite bad for his skin.

Last edited by guy202; 07-05-2012 at 04:09 PM.

 
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Old 07-05-2012, 04:49 PM   #17
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Re: penis damage from steroid creams

Good luck with the Bionect and let me know how it works out. I'm really interested to know if you see any benefit from using it. The doxycycline is an antibiotic that is sometimes used to treat inflammatory skin conditions, there are a couple of studies you can find with a google search on the treatment of red scrotum syndrome with it. Retin is a synthetic form of vitamin A, I tried applying vitamin A oil a few times, didn't work out too well for me. I have found a lot of good information researching the side effects of topical steroid withdrawal. Also, just bought some vanicream skin moisturizer and and waiting on it to arrive.

 
Old 07-05-2012, 04:53 PM   #18
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Re: penis damage from steroid creams

Quote:
Originally Posted by gator12 View Post
Good luck with the Bionect and let me know how it works out. I'm really interested to know if you see any benefit from using it. The doxycycline is an antibiotic that is sometimes used to treat inflammatory skin conditions, there are a couple of studies you can find with a google search on the treatment of red scrotum syndrome with it. Retin is a synthetic form of vitamin A, I tried applying vitamin A oil a few times, didn't work out too well for me. I have found a lot of good information researching the side effects of topical steroid withdrawal. Also, just bought some vanicream skin moisturizer and and waiting on it to arrive.
Okey, i will keep u posted. Ok i also got the red scrotum syndrome so maybe i will try that someday:P

 
Old 07-08-2012, 06:47 PM   #19
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Re: penis damage from steroid creams

It has been a year or so.

You are taking the correct steps gator. I really think living well is the key the recovery. I do not think any creams will help as I've read many threads and I cannot find any consistency to what works. That skin is very sensitive and I'd just keep it clean.

I don't think doctors are well informed about this as it is probably not a common occurrence. My doctor told me just to let it be and it will grow back.

Did any of you guys try having sex after the thinning? Is there pain? I don't care about it's appearance as it looks kind of normal but more about the pain which is sometimes there, and sometimes it feels perfectly normal. That is something I'm trying to figure out like what affects the skin so that one day it hurts, the next it does not.

 
Old 07-08-2012, 07:45 PM   #20
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Re: penis damage from steroid creams

No I haven't tried sex, I'm actually trying to avoid any friction what so ever. I've decided to not do anything to aggravate it until it heals. That might be difficult being that I just started dating someone. Are you experiencing a red or burning sensation any longer? I think the occasional pain may be due to the steroid withdrawal process. There are a lot of people out there who have chrinic eczema and have used topical steroids for years and they go through hell when they stop the steroids sometimes for a few years. The symptoms are very similar to what we have experienced. There is a doctor in California who is an expert on this, his name is Dr. Rapaport, I would suggest finding the information he has published. How long did it take for your worst symptoms to stop? I think you and used the steroids for about he same amount of time. So far it's been 7 weeks for me and still have the constant redness and burning sensation, some swelling on the corona. Please let me know of anything that worked for you. Thanks for the info man.

 
Old 07-12-2012, 06:59 PM   #21
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Re: penis damage from steroid creams

Went to a dermatologist recently and he pretty much said there's nothing that can be done about the skin atrophy, redness, and burning except to use an emmoilient and hope it heals. He basically said to get over it. I wish I had just saved my money. I'm doing everything I can to make this heal, started taking cod oil for the omega 3 fatty acids, vitamin a, and vitamin d, and trying to do whatever I find that's good for the skin. The burning sensation is still persistent and sucks pretty bad.

If there is ever a doctor who reads this I hope you take note of what people are saying here and quit prescribing steroids for conditions that DONT need steroids. I'd rather have the fungal infection I had back than deal with this any day. I thought an experienced medical professional's recommendation for treating a simple jock itch infection could be trusted, I was dead wrong. I'll personally never trust another doctor again after this.

 
Old 07-20-2012, 12:15 PM   #22
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Re: penis damage from steroid creams

hi guys, im the person who started this thread but forgot my password to my old account so could not log on. Im still suffering these symptoms and my mental health is a major concern at the moment, i've been steroid free for quite a long time around 11 months and I have now been using Dr Wheatgrass cream for just over 3 months, im not sure if its helping or not I really dont know, ive been told to use it for another 3 months but im doubtful it will help. I keep trying to give up masturbation until this heals but usually only last about 2-3 weeks, when i have an erection is when the symptoms are worse as capillaries are visible on my penis glans and my foreskin. Please let me knows if anything works for you guys, im going to contact a homeopath next week to see if that can help at all. Im only 19 and this is getting to the point where its pretty much destroying my life, about 75% of the time I would say im ok just not trying to think about it. Im reasonably healthy diet wise already but am thinking of maybe cutting out dairy or something like that to see if my diet could be linked to my condition.

 
Old 07-21-2012, 06:22 PM   #23
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Smile Re: penis damage from steroid creams

Quote:
Originally Posted by heathenpride View Post
I've used several prescribed steroid creams to try and get rid of some irritation on my penis head. Inittialy the inflamation went down so I assumed the creams were working. However, ever since when I get a erection my penis head apperas very shiny, wrinkly and red in appearance. I have been to many doctors and they always say it seems fine but i know it is not as I know my own body. Can anyone advise a way of how I can get back to normal. SOme people have said abstaining from mastubation or sex will eventually let the skin heal. Its been about 4-5 months since I last used any steroid cream on my penis, but I've only managed to not masturbate for around 2 weeks. Will this eventually recover if I just leave my penis alone for as long as possible?
I tell you exactly what happened and how to resolve this:

Corticosteroids not only releive imflamation but they also thin the skin. I gather you're circumcised cause the cream thinnned the skin of your glans and also dekeratinized plenty. Keratinization occurs with circumcised men over time and toughens the glans up.
Basically your glans is close to what an uncircumcised glans feels and looks like.
To solve this problem if simply carrying on with life and masturabte more to keratinize the skin back also wearing no underwear will speed it up too.
I'm uncut I would never use a corticosteroid on my gland unless my doc told me to

Kris

 
Old 07-25-2012, 05:07 AM   #24
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guy202 HB User
Re: penis damage from steroid creams

Quote:
Originally Posted by gator12 View Post
Went to a dermatologist recently and he pretty much said there's nothing that can be done about the skin atrophy, redness, and burning except to use an emmoilient and hope it heals. He basically said to get over it. I wish I had just saved my money. I'm doing everything I can to make this heal, started taking cod oil for the omega 3 fatty acids, vitamin a, and vitamin d, and trying to do whatever I find that's good for the skin. The burning sensation is still persistent and sucks pretty bad.

If there is ever a doctor who reads this I hope you take note of what people are saying here and quit prescribing steroids for conditions that DONT need steroids. I'd rather have the fungal infection I had back than deal with this any day. I thought an experienced medical professional's recommendation for treating a simple jock itch infection could be trusted, I was dead wrong. I'll personally never trust another doctor again after this.
Yes the same thing all the doctors have told me too.

Im now using bionect carefully on the glans and the foreskin and see if it will help some. So far i have noticed no improvements but i havn´t used it for very long maybe 2 weeks and not every day. I hate this, but their is nothing you can do about it, maybe pay like 4000 euros and put some fat in to it, maybe it looks more normal again, and circumcise. But who the hell want to do that anyway.

Last edited by guy202; 07-25-2012 at 05:08 AM.

 
Old 07-25-2012, 08:06 PM   #25
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Re: penis damage from steroid creams

Thanks for the update guy202, hope the bioconnect works for you. Please keep us posted.

@heathenpower - hang in there man. I've been doing some research on topical steroid withdrawal and it is temporary. What I have read from people who have gone though this is that it can sometimes take 2-3 years to heal completely and depends on the potency of steroid, location, and length of time used. I'm only in month 2 and it sucks man, but I am trying to do some things to help alleviate the symptoms. I've found that going swimming or soaking in water for 15-30 minutes can help for a little while. I was using vaseline, aquaphor, or vanicreme a few times a day but have cut back and sometimes it seems that using a moisturizer less is better, guess it depends on how bad the symptoms are. Also the fewer ingredients the better usually, most lotions have a long list of ingredients and usually contain something that is going to irritate damaged skin. I ordered a cream recently called egyptian magic that is supposed to help with dermatitis, will let you all know if it helps. Also, been taking fish oil 2-3 grams per day, eating more protein, 5-10 grams biotin, 50-100 mg zinc, 10-15 mg astaxanthin, and a multivitamin daily and trying to eat an anti-inflammatory type of diet. I also ordered l-arginine, supposed to help increase blood flow. I've been exercising almost every day too, mostly cardio and swimming. I’ve seen what I hope is a bit of improvement but still experiencing a constant burning sensation, redness and swelling of corona. There is an antibiotic that can sometimes help called doxycycline. If you search for "doxycycline red scrotum syndrome" you'll find the study. If you want to do some research try using the terms "red skin syndrome", "topical steroid withdrawal", and "topical steroid addiction". I'm pretty sure that's what we’re going through. Keep us posted on your progress man.

 
Old 07-27-2012, 12:00 PM   #26
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Re: penis damage from steroid creams

A Dr. once told me that if you used strong (prescription) steroid creme on your nose every day for like a year or more it will "rot your nose off". I hope he was wrong.

 
Old 07-27-2012, 03:17 PM   #27
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Re: penis damage from steroid creams

I don't know if it works for you guys, but I had a scalding burn on my finger a while back. I used raw store bought honey and applied it liberally every day as often as needed. It took the pain and was incredibly soothing. Today it's impossible to notice anything ever happened.

You can also try an aloe vera cream, though I'd try honey first.

Ensure you have the right nutrients for your body to rebuild optimally. This means staying away from foods with estrogen-like hormones, and eating a lot of veggies. Fruits are ok too. Meat, dairy and grain should be consumed in small quantities.
Stay away from processed and manufactured foods.
Take a multi vitamin each day.

Get some exercise every day. Moving your body does more than burn calories, it stimulates your entire endocrine system.

I would stay away from putting creams and other topical agents (aside from honey and certified aloe vera) on your penis when trying to let it heal. Many lotions, even those designed for allergic hyper sensitive people, contain chemicals that can hinder wound healing.

Disclaimer: Store bought raw honey may contain spores that might aggravate a wound. That wasn't my experience though, and it is possible to buy special manuka honey from new zealand meant for medical use with superior wound healing abilities. Since you're just using it as a lotion, that's hardly worth the extra expense. Besides, even regular raw honey has antimicrobial properties.

Last edited by wachix; 07-27-2012 at 03:18 PM.

 
Old 08-02-2012, 12:37 PM   #28
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Re: penis damage from steroid creams

Hey guy202, just wondering how the bionect is working for you? Does it cause any irritation? I was thinking about trying a Hyaluronic Acid Serum. I found this study - Hyaluronate Fragments Reverse Skin Atrophy by a CD44-Dependent Mechanism. Basically says that the hyaluronate thickens the skin caused from steroid atrophy. I know it will take some time for it to work but just wondering what your experience with it so far has been.

 
Old 08-02-2012, 01:19 PM   #29
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guy202 HB User
Re: penis damage from steroid creams

Quote:
Originally Posted by gator12 View Post
Hey guy202, just wondering how the bionect is working for you? Does it cause any irritation? I was thinking about trying a Hyaluronic Acid Serum. I found this study - Hyaluronate Fragments Reverse Skin Atrophy by a CD44-Dependent Mechanism. Basically says that the hyaluronate thickens the skin caused from steroid atrophy. I know it will take some time for it to work but just wondering what your experience with it so far has been.
Hello, not much has happend. No irritation so far , i used it on the glans and thought i maybe become a little bit more sensitive so takes a small break to not risk anything, but maybe im just imagine that. But im still using it on the foreskin and can´t really see any improvements, but i think i only will use it their for a while.

 
Old 08-07-2012, 01:37 AM   #30
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Hi, im still using the wheatgrass cream but dont really think its doing much, im thinking of ordering something called Egyptian magic cream not sure if it will do any good or not. Researching this issue is hard as the information is very confusing. I've been trying to find some pictures to compare my situation too but cant seem to find any. I know this sounds horrible but have any of you uploaded any pictures of your condition anywhere? it would help to be able to compare conditions with someone. I have also heard about Doxycycline but am unsure of where to get any from

i've been thinking of maybe looking into some surgical procedures to get the skin back to normal and remove the scarring, im willing to pay alot of money to get this sorted and my life back on track, the various creams i've used to try and heal this have done nothing and it looks horrible. Has anyone else had the same thoughts

Last edited by Mod-S4; 08-10-2012 at 09:48 PM. Reason: 2 posts merged.

 
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