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Old 08-09-2012, 06:01 AM   #31
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Re: penis damage from steroid creams

Hey man, I got the Egyptian magic, it's a good moisturizer and doesn't cause any irritation, I don't think it's a cure though. There's another cream out there called emuaid that is a bit more expensive but could be worth looking into. I haven't uploaded any pictures, have you? The doxycycline you have to get through a prescription. In the study where the red scrotum syndrome was cured the people took 100 mg 2x/day for one month then 100 mg once a day for 1-2 more months. Doxycycline is also used for steroid induced rocasea. I think it would be worth giving a shot before surgery. I think I had mentioned this before but the doctor who wrote the research article about red skin syndrome caused from topical steroids is Dr. Marvin Rapaport. You can find out more by looking up the International Topical Steroid Addiction Network. Dr. Rapaport is one of the only dermatologists willing to come out and say that steroids are causing more harm than good in many cases, especially when they've been used longer than the steroids should have been. If you're willing to travel he may be a good doctor to see about this.

 
Old 08-09-2012, 10:53 AM   #32
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Re: penis damage from steroid creams

hi, im in the UK so don't think I would be able to visit that doctor. I have looked up the Steroid network and has provided some help. I've ordered some of that Egyptian magic cream and am still using the Wheatgrass cream, I have an appointment with a homeopath coming up and a further doctors appointment to then get a referral to a specialist. I may ask about Doxycycline. And il look up that other cream. Cheers for your help.

 
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Old 08-09-2012, 01:49 PM   #33
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Re: penis damage from steroid creams

So do i , i cant take it anymore really. I dont know if their is any surgery that can fix this, but a fat injection might do some good i dont know.

But if you do any surgery that is successful let me know what you done.

Last edited by moderator2; 08-10-2012 at 05:35 AM.

 
Old 08-10-2012, 01:03 AM   #34
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Re: penis damage from steroid creams

yeah i am unsure about surgery im not sure what would help, but there has to be something

 
Old 08-10-2012, 02:00 AM   #35
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Re: penis damage from steroid creams

Quote:
Originally Posted by heathenpower View Post
yeah i am unsure about surgery im not sure what would help, but there has to be something
I really hope so. Im actually sending some email to a lots of plastic surgery clinics right now, but usually their isn´t any doctors answering this, just nurses.

 
Old 08-10-2012, 02:22 AM   #36
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ok let me know if you have any luck

ive just read the big study by dr rapaport on red skin syndrome but its very hard to find information about the condition on the penis, i do not suffer from the symptoms such as burning or itching, there is no pain. The cure on that study seems to be just not doing much and letting the skin heal, but im not sure if this applies to the penis as well due to this area having a much higher absortion rate of the steroid cream, its really hard to find consistent information on this

Last edited by Mod-S4; 08-10-2012 at 09:51 PM. Reason: 2 posts merged.

 
Old 08-10-2012, 01:31 PM   #37
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Re: penis damage from steroid creams

Quote:
Originally Posted by heathenpower View Post
ive just read the big study by dr rapaport on red skin syndrome but its very hard to find information about the condition on the penis, i do not suffer from the symptoms such as burning or itching, there is no pain. The cure on that study seems to be just not doing much and letting the skin heal, but im not sure if this applies to the penis as well due to this area having a much higher absortion rate of the steroid cream, its really hard to find consistent information on this

Yeah if i only could get the red colour go away i think i could accept my condition actually. But i got no itching and no pain. The redness is because the skinned has become thinner i think, in my case anyway.

 
Old 08-11-2012, 02:03 AM   #38
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Re: penis damage from steroid creams

my main problem is how the skin looks and sorry for the details but it looks really bad when i get an erection and even worse after masturbation, if i could get that problem sorted i think i could accept my condition, im not sure if the main problem is being caused due to the fact that i do have some scarring down there or the side effects of the steroid creams, i think its a combination of both, as i had a problem before i applied the creams its hard to definitively tell

 
Old 08-11-2012, 08:39 PM   #39
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Re: penis damage from steroid creams

Yeah if I could get the burning, swelling, and redness to go away that would be great. It sucks pretty bad, been three months for me so far and no improvements. Doctors think I'm crazy or just imagining this, they have no idea what hell the side effects topical steroids put people through. I'm not sure where to go from here. Be careful with surgery guys, who knows what a doctor would do with a knife down there, fk that. I'm just trying to be healthy, take vitamins for the skin, apply a non-irritating moisterizer when I can, and hope that this this will heal.

Last edited by gator12; 08-12-2012 at 05:59 AM. Reason: Delete sentence

 
Old 08-12-2012, 09:08 AM   #40
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Re: penis damage from steroid creams

Quote:
Originally Posted by gator12 View Post
Yeah if I could get the burning, swelling, and redness to go away that would be great. It sucks pretty bad, been three months for me so far and no improvements. Doctors think I'm crazy or just imagining this, they have no idea what hell the side effects topical steroids put people through. I'm not sure where to go from here. Be careful with surgery guys, who knows what a doctor would do with a knife down there, fk that. I'm just trying to be healthy, take vitamins for the skin, apply a non-irritating moisterizer when I can, and hope that this this will heal.
Yes but my skin won´t heal that for sure it is like 9 months now i have seen no improvement for atleast 6 months. If there is anything to do it has to be some kind of surgery. But i really dont know where i should go and ask for help.

 
Old 08-12-2012, 06:28 PM   #41
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Re: penis damage from steroid creams

Yeah man I understand wanting for this to heal as fast as possible, just not sure that surgery would be the best answer. Seems like it would be quite risky. If what you are dealing with is the side effects of the topical steroids and not a separate condition I think time and good health are what it's going to take. There are some guys who have seen benefit from a few months of doxycycline, it is frequently used for red scrotum syndrome and steroid induced rosacea. I would try that before surgery. Dude I'm with you on how bad this absolutely sucks, and doctors should quit prescribing steroids for guys to put on their damn penis. I seriously think they should try it themselves before recommending it to patients, but that'll never happen.

Last edited by Mod-S4; 08-13-2012 at 03:00 PM.

 
Old 08-13-2012, 02:56 AM   #42
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Re: penis damage from steroid creams

Thanx to Gator12 to alerting me to this particular thread as I am a new member & posted a "new topic" without realising it seems to be a well-established discussion point on this site already.

Wow, some of u are young guys & I feel for u guys! [I am in my 40's & in a long-standing relationship of nearly 25 yrs, but sadly unable to have sex with my partner due to extreme thinning skin, redness, pain & intense itching of the foreskin & glans especially].

My original post I repeat here: [[....it appears after 6 mths use of Kenacombe [prescribed by my G.P. for "dermatitis"] I have all the symptoms of a damaged, reddened, extremely thin skinned penis head. Can anyone offer advice as to treatment.....I stopped using the cream 9 days ago, but the itching & redness & shiny, paper thin skin [especially the "rim" of the glans] is causing me no end of depression & fear that I am damaged permanently]].

Also: [Never had the constant, intense burning & itching like this UNTIL I stopped using the topical steroid [didn't even know it was a steroid, was just told it was "broad spectrum" treatment for my condition!!]. I just thought the slight itching at the time meant I had "contact dermatitis" the Dr. referred to, so I kept re-applying the cream until it stopped. As I said above I have used this for 6 mths or more.....now after 10 days of not using the cream I wonder if my Dr. is a complete jackass....don't they know their stuff? [wow]

I am physically & mentally scarred for life, u would think more ppl would know of this "thin, shiny skin" steroid problem, but once i again google has told me.......so many ppl seem to have this. My Dr. said keep using the cream until "all symptoms" had gone. Little did I know the so-called symptoms after all this time were the damn side effects of the cream!!!]

P.S. Has anyone tried medicinal honey as a soothing balm or treatment regime? I am told it has healing, anti-oxidant, antiseptic properties?? The latest advice I have from another Dr. who apparently treats "Doctor's mistakes" [her words not mine] is to apply sweet almond oil to the head of the penis as it is "neutral" & has no chemicals, allergens etc. Does not oil [it is cooking oil, or massage oil after all] create heat? I am confused....

 
Old 08-13-2012, 04:48 AM   #43
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Re: penis damage from steroid creams

Quote:
Originally Posted by kjkjkj View Post
Thanx to Gator12 to alerting me to this particular thread as I am a new member & posted a "new topic" without realising it seems to be a well-established discussion point on this site already.

Wow, some of u are young guys & I feel for u guys! [I am in my 40's & in a long-standing relationship of nearly 25 yrs, but sadly unable to have sex with my partner due to extreme thinning skin, redness, pain & intense itching of the foreskin & glans especially].

My original post I repeat here: [[....it appears after 6 mths use of Kenacombe [prescribed by my G.P. for "dermatitis"] I have all the symptoms of a damaged, reddened, extremely thin skinned penis head. Can anyone offer advice as to treatment.....I stopped using the cream 9 days ago, but the itching & redness & shiny, paper thin skin [especially the "rim" of the glans] is causing me no end of depression & fear that I am damaged permanently]].

Also: [Never had the constant, intense burning & itching like this UNTIL I stopped using the topical steroid [didn't even know it was a steroid, was just told it was "broad spectrum" treatment for my condition!!]. I just thought the slight itching at the time meant I had "contact dermatitis" the Dr. referred to, so I kept re-applying the cream until it stopped. As I said above I have used this for 6 mths or more.....now after 10 days of not using the cream I wonder if my Dr. is a complete jackass....don't they know their stuff? [wow]

I am physically & mentally scarred for life, u would think more ppl would know of this "thin, shiny skin" steroid problem, but once i again google has told me.......so many ppl seem to have this. My Dr. said keep using the cream until "all symptoms" had gone. Little did I know the so-called symptoms after all this time were the damn side effects of the cream!!!]

P.S. Has anyone tried medicinal honey as a soothing balm or treatment regime? I am told it has healing, anti-oxidant, antiseptic properties?? The latest advice I have from another Dr. who apparently treats "Doctor's mistakes" [her words not mine] is to apply sweet almond oil to the head of the penis as it is "neutral" & has no chemicals, allergens etc. Does not oil [it is cooking oil, or massage oil after all] create heat? I am confused....

You used if to 6 months!!? that is a really long time. Did you use it every day?

We havn´t find anything that helps the skin recover

 
Old 08-13-2012, 07:03 AM   #44
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Re: penis damage from steroid creams

The creams I have found that have provided some relief are cetaphil restoraderm lotion, vanicream, aquaphor ointment, and Vaseline. Seems like the more ingredients the more likely it may irritate the skin. Retinol has been used for thin skin but will cause a lot of irritation. Also a cold compress may help, use a clean cotton washcloth with ice water. I can only wear cotton boxers now too, anything else seems to irritate the skin. Please keep posting on your progress and let us know if you find anything that works for you. It's pretty much been trial and error so far, there isn't a whole lot of research on this. The only Doctor who really gets it is in California, mentioned his name in a separate post.

Not sure about the honey, manuka honey I think is what you are referring to, or the almond oil. If it doesn't stick vaseline is probably the most neutral ointment for mixing something else with. I considered trying pure shea butter but never got to it.

Last edited by gator12; 08-13-2012 at 07:19 AM. Reason: added info

 
Old 08-13-2012, 02:34 PM   #45
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Re: penis damage from steroid creams

Just read this thread and want to add that we need to learn how the body responds and research what diseases and imbalances really are, rather than to demand that doctors tell us what to do. Doctors have no more healing power than the average person. They can only offer ideas to try. The body does the healing. We can sometimes alleviate symptoms, that's all.

Sensitive skin can be soothed with benign oils like Almond or Jojoba oil, and a cool compress can be soothing. Outside of a proven bacterial infection it needs soothed and left alone, not rubbed or further irritated until it recovers. If this means no sex, then so be it! Skin doesn't recover fast. Irritated and damaged skin needs soothed and left alone for as long as recovery takes.

Candida is an internal 'good VS bad' bacteria imbalance that takes time to re-balance. It is not relieved instantly. It requires a change of diet, including abstinence from alcohol and sugar, and the results are far from immediate.

To put anything at all on sensitive skin is a serious risk. Penis skin is already sensitive and thin. Do not put petroleum jelly on it or anything else made from harsh chemicals. Wear 100% cotton boxer shorts underwear that have been washed with a small amount of hypo-allergenic and no perfume detergent.

Bathe but not excessively and don't rub wet skin. Use hypo-allergenic and no perfume soap and avoid soaping the groin. Be gentle with that area.

Bite the bullet and leave your penis alone! Stop torturing it. Soothe it with a very small amount of Almond or Jojoba oil and otherwise let it recover. It will on it's own.
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Last edited by lanmar; 08-13-2012 at 02:43 PM.

 
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