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Old 03-15-2007, 05:37 PM   #1
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Natja Kristy HB User
Unhappy Occasional strange & severe symptoms: 10 years and no diagnosis!

I just joined this forum a few minutes ago, so also am new. Hello everyone!
I noticed while researching this forum that there are a great deal of you that suffer all sorts of strange things. My issues I also feel are very unique and can be devastating on occasion. I wonder first if anyone else has heard of such symptoms as those I am about to describe and is there anything that might help like St. Johns Wort? Here is a synopsis of my illness:

For many years now off and on I have suffered very strange symptoms that seem to come out of nowhere and can be moderate to extemely severe. I feel perfectly normal for weeks or even months at a time. I have no noticable restrictions during these times and feel like anyone else would who is considered fairly normal. But then and for no apparent reason I will get these symptoms out of nowhere.

At first they feel like I am coming down with a flu, or perhaps like I am feeling flushed or a little dizzy. As it progresses over the next few days these symptoms become more pronounced and more severe. As this continues I will also experience a feeling much like having the worst hangover you can ever imagine, extreme fatigue, dizziness that can get so bad that it seems to drift into a feeling like I am losing touch with reality. Basically at it's worse it is like the feeling you might have if you had a severe flu and how you might feel in your head. Very disoriented, terrible headache, dizzy, extreme fatigue as though one might have a high temperature. Yet physically I have all my strenth and energy. During the course of this I practice Yoga, Go to the Health Spa and do Aroebics, breathing excercises, night walks, sitting in Steam, Sauna & Jacuzzi's, Vitamins, anything I can do that might help. Most of this only helps on the level that I feel more relaxed as I go through the symptoms. Sometimes these activities make me feel worse, and when the symptoms begin to clear up they sometimes can literally be the catalyst that breaks me out of it and then I begin to recover.

These symptoms can last as little as 3 days or go on as long two weeks and rarely more than a month or longer on rare occasion with the symptoms being constant and without ceasing. It can get so bad that at times that It can be impossible to sleep and can make you feel literally as though you are going to die due to being extremely severe.

Medical experts kept insisting it might be diabetes. yet I have been tested for that about 20 times with nothing but negative results. Another time threy thought it might be Severe clinical depression, but that also has never been determined due to the long periods where I feel perfectly normal. sometimes the symptoms can be triggered by a mild cold. Other times by extreme stress. Yet other times extreme stress does not trigger the symptoms. Sometimes the symptoms will be relatively mild and go away within 1 to 3 days, and other times can get extreme to where you feel so wacked out it seems like it will never go away, then 3 days later it just goes away and you feel completely normal.

Over the years I have been tested for everything under the sun from lime disease to STD's. Never have they found anything. The medical experts say it's mental, and the psychiatric experts say it physical and effecting my mental state, and perhaps some rare disease that hasn't been found yet. They think this because of the way it unsets (like your coming down with something).

Then when the symptoms begin to clear up, it is as though you are recovering from a lengthy illness. Then I feel so normal that it seems impossible to imagine that it ever could have happened or that it ever could return. Perhaps it is some sort of chemical embalance that occures in my brain? So has anyone ever heard of anything like this? Could this be severe depression (clinical depression)? What disease if any could be this ellusive?

I have been taking Rainbow light-Complete nutritional system, B-100, B-12, chromium, and a couple of other vitamins, plus juice veggies, and take a protien shake every day and have been for many years. I also take 1 to 2 0.25 xanax a day. None of it even phases these symptoms when they begin or helps them much.

I am now in the middle of another period of the symptoms again. I was fine for months and this episode has been going on for about 5 weeks straight with no relief. When I feel better for a long period of time I will have a period of about a week when I feel extremely great, and this is often when the symptoms will actually begin (when I am feeling my best).

This problem has runied my life. I haven't been able to hold down a job for very long and finally had to go on SSI. I had a full a busy life before this happened. Any help would be greatly appreciated, and thank you in advance for any thoughts or ideas

 
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Old 03-16-2007, 12:44 AM   #2
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firenice HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

It sounds a little like the symptoms from mutliple chemical or environmental sensitivity. You encounter something in the environment, could be something as simple as a particular perfume fragrance, and it knocks you down for days. Have you explored that avenue?

 
Old 03-17-2007, 02:55 AM   #3
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Natja Kristy HB User
Talking Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Quote:
Originally Posted by firenice View Post
It sounds a little like the symptoms from mutliple chemical or environmental sensitivity. You encounter something in the environment, could be something as simple as a particular perfume fragrance, and it knocks you down for days. Have you explored that avenue?
Thank you so very much for the reply, interesting insight, and really grabbed me when I read it. My mother has mentioned this possibility several times before. Maybe I should consider it now that you are mentioning it as well. At another forum a person there suggested that it could be something toxic inside of me which I found interesting as well because I took an 800 question survey at a medical website and paid about $200 for the results awhile back. They sent the results by snail mail and it suggested I had a toxic galbladder or something like that. They wanted to do special blood tests but the cost was so high I couldn't afford to do it. Your thoughts on this only places greater emphasis on this possibility. I live in an area of the country where there are a lot of people with strange ilnesses, so I wouldn't be suprised if this were true. I am not sure what to do to figure out what exactly it is if this is the trouble. Do I see some kind of allergist? Thanks again for the reply! Maybe there is hope

Last edited by Natja Kristy; 03-17-2007 at 02:56 AM.

 
Old 03-28-2007, 02:50 AM   #4
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Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Hi there,
I was searching ****** and i found you.
I have exactly the same symptoms. Except my good days are few. The good days that i have are like heaven. Everything is so clear and i feel so happy. I have only had this for around 6 months now and i was hoping it would go away. There is one thing though i stopped getting my period about a year ago but i am having all the same symptoms you do. I have had all the blood tests and I have about a month to wait to see a specialist about my period. The dizziness sometimes is so hard to handle. Do you find it hard to speak to people to? Disorientated? and yes it's not mental it's physical. I am so sure of it. I am not depressed. I only get upset because the dizziness hurts!
I know you understand that statement.
love to talk. On a happier note..
Katie

 
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Old 03-28-2007, 06:21 AM   #5
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Sannah HB UserSannah HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Christy, my daughter and I have been helped quite a bit by our alternative doctor and I know that he helps people with chemical sensitivity. I have a list of good alternative doctors in California. The cities are Arcata, Pleasanton, Napa, Torrence, La Jolla, and Carmel. Let me know if you want any of their names.

 
Old 03-28-2007, 10:58 AM   #6
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firenice HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Alternative doctors are often much more aware of multiple chemical sensitivites and how best to approach it. Allergy tests are not necessarily that informative for this, but it couldn't hurt - if you can afford it. The problem with those tests is that I believe they test for specific allergy reactions so you'd have to go through a long list to find out what it is and more likely it's several things -could actually be anything, something simple and common, in the environment.

A good start is too remove all unnatural chemicals in your immediate environment; start with artificial fragrances in body products such as soap, shampoo, etc. Laundry detergent, house cleaning supplies....even new furniture! New carpets are horrible!! Gasoline fumes, smoke, artificial and highly processed foods are other culprits.

Try a net search on multiple chemical sensititives and see what you find. Good luck...

 
Old 03-31-2007, 02:09 PM   #7
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Natja Kristy HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Quote:
Originally Posted by MissKatie001 View Post
Hi there,
I was searching ****** and i found you.
I have exactly the same symptoms. Except my good days are few. The good days that i have are like heaven. Everything is so clear and i feel so happy. I have only had this for around 6 months now and i was hoping it would go away. There is one thing though i stopped getting my period about a year ago but i am having all the same symptoms you do. I have had all the blood tests and I have about a month to wait to see a specialist about my period. The dizziness sometimes is so hard to handle. Do you find it hard to speak to people to? Disorientated? and yes it's not mental it's physical. I am so sure of it. I am not depressed. I only get upset because the dizziness hurts!
I know you understand that statement.
love to talk. On a happier note..
Katie
Thanks so much for the reply. I think it's time for those of us who are enduring this hell to figure out what it really is. After years of suffering this I can tell you that at first it does nail you more often. I would also like to mention that I have issues with IBS like symptoms when the symptoms are not present. It's almost as if there is some disease that attacks the brain then moves on to the bowels because when the mental symptoms are gone the intestines get irritated. Then when that goes away often the other symptoms will kick back in within a day or two. It is true that I do have months once in awhile when I feel totally normal but often I might feel ok just for a couple of weeks and then the symptoms return. When the symptoms are gone I feel completely normal like nothing ever happened. I don't feel any mental issues or act paranoid or wierd, just feel great and there are no restrictions in my life. If the symptoms get real bad I do find it hard to talk because I feel so wierd and wacked out. But sometimes I can have symptoms that are severe without dizziness being present, and instead I might have extreme fatigue, a bad hangover feeling, and nausia. It often feels like you might imagine if you were poisoned or were bitten by a rattlesnake and the venom is killing you. Yes it's a very strange thing. And yet I am in complete control of my emotions. I don't freak out or anything like that. I think those of us that are suffering this hell should work together and try to figure this out. I have been told over and over again that this may be some kind of toxicity in my body. This possibility may be a good place to start. cuz I'm tired of feeling like this. I'm too smart and determined to commit suicide, but sometimes I feel like I have no hope and I wish I were dead.

Last edited by Natja Kristy; 03-31-2007 at 02:11 PM.

 
Old 03-31-2007, 02:14 PM   #8
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Natja Kristy HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Quote:
Originally Posted by firenice View Post
Alternative doctors are often much more aware of multiple chemical sensitivites and how best to approach it. Allergy tests are not necessarily that informative for this, but it couldn't hurt - if you can afford it. The problem with those tests is that I believe they test for specific allergy reactions so you'd have to go through a long list to find out what it is and more likely it's several things -could actually be anything, something simple and common, in the environment.

A good start is too remove all unnatural chemicals in your immediate environment; start with artificial fragrances in body products such as soap, shampoo, etc. Laundry detergent, house cleaning supplies....even new furniture! New carpets are horrible!! Gasoline fumes, smoke, artificial and highly processed foods are other culprits.

Try a net search on multiple chemical sensititives and see what you find. Good luck...

Yea it is like searching for a needle in a sea of needles the size of the Atlantic ocean. Very good advice, but where to begin !!

 
Old 03-31-2007, 02:18 PM   #9
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Natja Kristy HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Quote:
Originally Posted by Sannah View Post
Christy, my daughter and I have been helped quite a bit by our alternative doctor and I know that he helps people with chemical sensitivity. I have a list of good alternative doctors in California. The cities are Arcata, Pleasanton, Napa, Torrence, La Jolla, and Carmel. Let me know if you want any of their names.
That would be great. I live near pleasanton, about 45 miles away or so. If the guy doesn't accept SSI I'm screwed though.

 
Old 12-13-2010, 09:00 PM   #10
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Animal66 HB User
Re: Occasional strange & severe symptoms: 10 years and no diagnosis!

Have you had your Thyroid tested? I had most of your symptoms that you have listed here and I was diagnosed with Graves disease.

 
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