Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
Hi to everyone reading this post,
It's been a while since I posted so I thought I'd drop a line to let you know how things are going.
Dad celebrated his 64th birthday on the 060608.
He visited his specialist today. He had to have blood tests and a chest xray prior to his appt. Dr said he has a slight deterioration in his condition since he last seen him.
He has started to get the pain back in his side (which he hasn't had since his morpheine patch was increased quite a few months ago) so the dr has decided to increase his patch strengh. Hopefully this will help. He tires easily and gets breathless, but again this is part of this disease.
We are still taking 1 day at a time, enjoying every good day and trying to keep our chins and faith up on the not so good days.
my heart goes out to everyone reading this and going thru this horrible disease. take care Linda xxx.
The Following User Says Thank You to linda64 For This Useful Post: Danny678 (11-10-2012)
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
My father was diagnosed this Friday the 13th with Peritoneal Mesothelioma. this is in the stomach and now in the chest cavity. He had fluid drained from around his lung and the pictures from his biopsy surgery shows no mass but it does show multiple nodules on his stomach lining which is the cancer. He is not a candidate for surgery or radiation, only chemo and he is unsure about taking it. He is so weak, breathless (on oxygen), no appetite and has lost lots of weight. He has been feeling unlike himself since January but just got diagnosed and has been told he has 9-12 months to live, but if he does not regain energy he will not make it 2 more months in my families eyes(so sad). This is the hardest thing I have had to face at the happiest time of my life, my husband and I have finally had a child after 2 years of trying and now dad will not get to see his grandson grow up. He is named after my dad and it breaks my heart. Any advice on how to get through this, what time you think my dad may have and should he consider the chemo? I am at a loss for words, direction, feelings etc. The only good thing that has come from this is that he was saved on June 7, 2008. Thank you for your help in advance and I am sorry for anyone else experiencing this terrible disease. Who knows, my mom, sister or myself may end up with it now b/c of the contact with daddy's clothes.....a friend of mine told me of this board to help me and I hope that I may find some hope or comfort here. Please Help!!
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
Hi
Here is the posting that I never wanted to come. My father succombed to this horrible disease on Tuesday 240608. My family and I are devastated as it happened so quick it took us by surprise. He was taken to hospital on the Sunday by ambulance as he got so weak and blood tests confirmed on the Monday that his kidneys and liver were shutting down. We were with him when he took his last breaths. We had him for almost 11 months from when he was diagnosed. I'm grateful that we had this time with him and were able to spend as much time as we could with him, but it is still so hard to go on without him, but I would never wish him back to go thru it again. Dad I will love you for eternity.
Mise08, my heart goes out to you and your family. My advice would be for you to take 1 day at a time, make everyday count and spend as much time as you can with your dad.
my prayers will be with you. take care. Linda xxxx.
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
Linda,
I am so sorry to hear of the passing of your father. Please keep strong for your family and know that things will get better with time. At least you had 11 months with your dad and you took advantage of every moment you could. This disease is terrible and just when you think you're making progress...bang, you get a set back.
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My dad suffered for 9 months with this disease and during that time I did a lot of research and read a lot of books about the disease. While there is no cure there is new hope every day. Please take care and Linda, my thoughts are with you from the other side of the world. take good care, Robert
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Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
Hi Robert,
Thankyou for your kind words. It really helps knowing other people care.
I have often wondered how you and your family are going.
I often spoke with my father about your dad's progress and treatments when you were posting but I could never tell him that he had passed away. I just wanted him to stay as positive as he could to stay with us for as long as he could.
I just really didnt understand how quickly everything would happen. One minute he was going ok, tired and breathless and had just started to get the pain in the side again but still able to get around,. shower himself and the next so weak, hospitalised and everything shutting down, all within 2 days. I never really seen it coming......... not this soon........ not this quickly.
I'm missing him terribly but I have a wonderful family and I would never wish him back to go thru it again.
Take care Robert and to all those out there going thru this horrible disease.
love Linda xxxx xxx.
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
this is such an awful disease and the best thing you can do for your father is support his decision in regards to treatment, thankfully for him he has the choice, my nanna passed away on valentines day this year after battling with mesothilioma for 6 months...she never had the option for treatment as hers was in the lining of her lung, which her doctor said was inoperable. having seen my nanna go through the torture which is methosilioma, my heart truly goes out to you and your family. this is possibly the hardest thing any of you will ever experience and the best advice i can give is to stay strong for your father, but still take the time to look after yourself...you need to care for you to care for him, and be prepared for sudden changes in his condition, this illness takes over very quickly. and in regards to other members of your family who may have came into contact with the asbestos that has caused your fathers illness, look into diet, a lot can be done with diet to eliminate the free radicals in your system, the more fresh fruit, veg (preferably raw) and unprocessed foods your diet contains, the more ability your body will have to fight off cancer causing substance before it actually turns into cancer. i hope your father makes the right decision for himself, and hopefully recovers well
xx
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
well....as we all will post one day or another due to this illness.....my father has passed away after only less than a month after diagnosis. He was spitting up blood on July 4th and we rushed him to the ER via ambulance...he quickly faded and on July the 9th at 11:30 with me, my sister, my mom, my niece, his sister, my sisters boyfriend and daddy's friend my his side, we watched him take his last breath....this was the hardest few days I have ever been through and I just have an empty spot in my heart and in my life...how do I go on? I miss him so much already. This disease is so awful, fast and cruel. It is also unfair that they get this from a product that someone KNEW would kill someone one day and they did it anyways...his kidneys shut down and the toxins started filling his body making him halucinate (sp?), and that was the worst thing in the world to watch, but we had to be there to calm him down during his spells. I know that my daddy is in a much better place with no pain or worry but we, who are left here without him, hurt the most for our own selfish reasons...he was my dad, my best friend and I will miss him with every ounce of me until I see him again....for all of you who are going through this, my heart breaks for you, but please take every opportunity you get to tell that person just how much they mean to you.....I am thankful for that.....
God Bless each of you.
Missy
The Following User Says Thank You to misE08 For This Useful Post: Danny678 (11-10-2012)
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
Missy,
I'm so saddened to hear about the passing of your dad. There's no words that I can say or find that makes the loss for you any easier, but know others out here do care and with the love and support of your family & friends they will help you get thru.
It is so early for me too after losing my dad only 3 weeks ago I'm feeling your grief and that emptiness. I visit my mum and it is so hard I am still expecting him to walk out & sit and have a cuppa with us. His bedroom is still the same way it was, we havent even washed the pyjamas he last wore, or unpacked his suitcase that we took to hospital for him, we just cant change anything, not yet.......its too soon.........
I miss him so much but I could never wish for him to come back and go thru that again.
take care Linda xxx ooo xxx
Re: father just diagnosed with malignant mesothelioma 07/31/07. age 63
I'm so sorry for everyone out there with this disease or a a loved one. Myself, my mom died last year from head and neck cancer.
My sister in law's father is dying from meso and I'm looking for information on pain management. He know's he's dying but won't tell his doctor that he is in pain.
My questiion is - what pain management drugs are available out there? He's on Fenanyl patch right now - not sure of the dosage amount.
